I've been getting a lot of media outreach lately from journalists, which is wonderful, but I want to be explicitly clear about my background and my advocacy work. 1/5
I am happy to talk about my particular disabilities (EDS, MCAS, Arnold Chiari Malformation, orthostatic intolerance) and all that comes with being disabled/chronically ill. 2/5
I'm also happy to talk about the history of medicine and disability history. And always delighted to discuss accessibility in higher ed, disability community building, and what measures we can take to ensure equitable access to college. 3/5
For most disability rights issues, though, there are far better and more involved activists doing policy work, organizing, and driving change. I work and specialize in a very niche part of disability studies, and most of my time is focused on equity in higher ed spaces. 4/5
I try to be very conscientious as to what I can and cannot talk about, as well as the privileges afforded me by my doctorate. My PhD does not qualify me to talk to any disability rights issue, nor should it. I hope that journalists can respect those boundaries. 5/5
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