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Arianne Profile picture
@ravensspirit68
Aug 7, 2021 • 15 tweets • 9 min read • Read on X
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And this is how we pain patients die. 😓
How many more lives will be lost to #OpioidHysteria and the #GreatOpioidLie?
#NoneOfThisIsOK
People in pain are dying. We are losing hope. #NoneOfThisIsOK
#PainKills
#NoneOfThisIsOK
#SavingUsToDeath
#PainKills
Carla died fighting for herself and for all of us.
She was ridiculed by medical 'professionals' and begged the CDC director for help.
#NoneOfThisIsOK
#PainKills
#OpioidsSaveLives
#PainKills
#OpioidHysteria creates bias in medical practice, clouds judgement, and ends in poor or no treatment resulting in suffering and/or death for those in pain.
#NoneOfThisIsOK
#CDCLiesPeopleInPainDie
So many of us have illnesses that are referred to as 'suicide diseases'.
With proper pain control and symptomatic management, most can continue breathing, continue living.
Existing in pain day after day, minute by minute, year after year is often unendureable.
#NoneOfThisIsOk
Pain patients with severe illness know that opioids work. Yet we are gaslit, told our real and lived experiences are not real.
We are told to accept our fate, find joy in our pain, be mindful and life will magically get better.
Those doing this to us are monsters.
And for all those who pass judgement, who think it won't happen to them...
People in pain are labeled paid Pharma shills, or 'addicts' who 'just want their drugs'. This is often done by people who proclaim they are about reducing #stigma.
Yeah, right.
#NoneOfThisIsOk
The lies and misinformation about the so called '#opioidcrisis' has been rampant for years now.
'Real' numbers are likely FAR LESS than even 12,000 when we factor in intentional suicide, smuggled narcotics, stolen, etc...
Yet here we are, no meaningful changes for pts in pain.
It's almost impossible not to lose hope when you are drowning and you know no one is coming to save you.
In fact, they dropped a message by plane telling you that will take years to send help and to just keep treading water. 😔😪
#NoneOfThisIsOk
#OpioidsSaveLives
#OpioidHysteria
Dawn Anderson, another CPP who has fallen due to the #GreatOpioidLie. acsh.org/news/2019/03/1…

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More from @ravensspirit68

Arianne Profile picture
Nov 17
Kolodny laid out a detailed plan in how to reduce opioid Rxing in a meeting in NY, before guideline was even published.
@jmkillingnyc has so much information on how insidious this anti-opioid agenda was from inception in early/mid 2000s and even earlier I believe.
#PainCareCrisis
2-In order to fight back against draconian prescribing protocols, we need to understand how we got here & what's preventing change.
Changes in Standard of Care requires MDs to stay withing the bounds of restrictions.
Law enforcement in medicine has created a chilling effect.
3-With changes re: opioid Standard of Care, if MDs stray, Medical Boards can target them, DEA can charge them, jailing at worse, destroying their reputation and financial standing at the very least. Pts claiming harm by opioids have increased ability to sue for malpractice.
Read 8 tweets
Arianne Profile picture
Nov 13
Thread...1-Prescribing practices should never have gotten to the point where some of the most vulnerable people in our society-the sick/injured/elderly-are left in agony, driven to the point of desperation with little to no hope in sight of things changing.
#PainCareCrisis
2-People with serious illnesses and injuries have been being told every year for over a decade to 'hold on', that change is coming. I know from having boots on the ground in the chronic illness community that for most, things have only gotten worse.
#PainCareCrisis
3-Right after CDC/PROP's unrolling of the 'opioid guideline', I and others watched medical professionals convene boards to change the Standard of Care in managing pain in EVERY aspect of medical care, with an anti-opioid, 'dangerous drug', directive driving those changes.
Read 10 tweets
Arianne Profile picture
Jun 21
1-What I've noticed over 14 years of advocating for people in pain is when you make it clear you're not anti-opioid, MDs, legislators, media, and GOV officials become rude then dismiss you. If you still don't go away, they'll then attack your character/ignore you.
#PainCareCrisis Image
2-Even when presenting facts-like the extremely low incidence of 'addiction by prescription'.
Or if we explain the safety/efficacy of opiate medicines when taken as prescribed, or the real dangers of leaving someone without effective pain control, including death- we are ignored. Image
3-More often than not, a pain patient advocating for themselves is automatically judged as ignorant and having no credibility. We are usually labeled as people 'just wanting THOSE drugs', called junkies or pharma shills, or bots.
Read 6 tweets
Arianne Profile picture
Jan 3
Thread-There's probably more to unpack here than X or my current flare will allow me to elaborate on.
From deflection to gaslighting and than on to dismissal of anything we #chronicpatients or even professionals say.
#ChronicPain #PainCareCrisis @DEAHQ
federalregister.gov/documents/2024…
2-Section 306 of the Controlled Substances Act (CSA) (21 U.S.C. 826) requires the Attorney General to establish aggregate production quotas for each basic class of controlled substance in schedule I and II...
Maybe next letter writing campaign to the U.S. A.G?
#PainCareCrisis
3-DEA received 4,699 comments from people with chronic pain, patients (ADHD), pain advocacy associations, U.S. professional associations, U.S. nurses, and far more.
Read 15 tweets
Arianne Profile picture
Dec 13, 2023
1-The most idiotic & insulting things those with #ChronicPain face is the implication or direct accusation that we 'just want opiates'.
The truth is, we ARE 'seeking' the meds from MDs we require for pain relief but usually ONLY AFTER trying almost everything else already.
2-When one is ill or injured they usually try the old standby's first vs before going to a doctor.
Ice, heat, OTC meds like Ibuprophen or Tylenol-Even both. Some try herbal supplements, massage, gentle exercise, diet, even acupuncture before seeking help from an MD.
#ChronicPain
3-Those w/#chronicillness have usually done their research & avoid medical offices/ER like the plague if at all possible.
From cost to gaslighting, we'd rather deal with our issues at home. But facts are, we require MDs help as THEY are the only ones who can RX meds we need.
Read 5 tweets
Arianne Profile picture
Jun 12, 2023
1-Objective: SAVE LIVES.
Recently I said a #SafeSupply is the pinnacle of saving lives but I realized it's not; it's the FOUNDATION, upon which we build policies to actually save lives.
I'm going to refer to this moving forward as the GOLD STANDARD in reducing #DeathsOfDespair. Image
2-Drugs would be legalized. A safe, known potency supply of substances created by existing drug manufacturers. It would include supply for RX'd medicines as well as for OTC public, adult, sales and consumption. Similar to how alcohol is sold & consumed now.
#SafeSupply Image
3-The BILLIONS UPON BILLIONS being funneled into the #DrugWar and the 'opioid crisis' would be put into improving efficacy and access to AFFORDABLE HEALTH CARE, including mental and dental health, while bridging gaps in regard to other #socialdeterminants of health. Image
Read 7 tweets

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