Non-disabled people who may or may not think they are allies to disabled people,
Please read:
You do not get to decide what is good or bad journalism, representation, or media about disability. You are not the decision-maker on what is "good representation."
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The same goes for if you do not have that disability.
As an autistic person with other disabilities, I don't get to decide whether that chronic illness piece was awful or not - people with chronic illnesses do.
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I don't get to decide whether the piece on wheelchair users with spinal cord injuries and caregiving is good representation or not - only people with spinal cord injuries and wheelchair users do.
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But especially non-disabled people -
Please stop pretending like you have to have an opinion about a piece or media, especially when it's created by a non-disabled person about disability!
Platform the voices who -should have- been in the room, who should have been hired.
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You cannot be a "good" non-disabled ally to disabled people if you speak over disabled voices and decide not to listen to the disabled people who are impacted by that media. That is not allyship, that's speaking over us.
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It was an ABA therapy service asking to be added to my resource page on my blog. 😂
Here's the scary part though:
The way their website is setup is real sneaky.
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I went to their website. They boast about providing online services. It seems like a relatively new businesses, as they're also hiring ABA therapists of course!
So if you go to the main "new to autism" for parents kind of page, you get a lot of relatively harmless info.
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They use person first-language throughout, but they do talk about how autistic people should be supported and not everyone can be independent. And at one point they even mention creating a safe sensory space for the autistic kid!
Just fyi, the sound they played to the autistic kids (were mostly boy-perceived)
was 73 dB SPL! That's loud!
"Each auditory stimulus in the sequence was a beep of 250 Hz frequency, 116 ms duration, and 73 dB volume, presented repeatedly with an inter-stimulus interval of 1 s."
There is a pretty large difference in how autistic kids responded compared to NT kids for auditory stimuli -
"The NT participant shows gradual reduction in ERP amplitude over time (negative slope), while the ASD participant shows an increase (positive slope)."
So, this is an assumption/interpretation, but it's likely that as neurotypical kids stopped attending to that sound and had it fade into the background,
autistic kids felt it was even more salient as the sound went on, which is definitely something I have experienced many times.
So I found this video about diversity in ABA therapy.
It's the most hypocritical/ironic thing -
"However, bare in mind that those who perpetuate overt hostility as well as microaggressions towards marginalized groups are often absent from these conversations." #SayNoToABA
And no, I'm not going to post the video because there's really no reason to watch it. This person talks about sexism, racism, xenophobia, a lot of other -isms..
and they of course leave ableism off that list and never talk about it. It's stunning.
They also talked about how good they were in life because they challenged when people said "No" to them.
Wonder how they treated autistic kids who challenge "no"... The whole thing was just filled with hypocrisy.
.@DesMephisto went on Dr. K's .@HealthyGamerGG twitch stream quite a while ago (when Color the Spectrum was happening),
Des talked about how most of us prefer identity-first language,
and they finally uploaded it to youtube with this title -
We can't even trust allistics.
@DesMephisto@HealthyGamerGG Like these are the (neurodivergent) people who think they're listening to us.. and then they just..
don't?
This is what is wrong with the medical community. What they're taught.
Dr. K's initial thoughts on what the word "disability" means:
"When you use the word disability, that triggers in me, something that could or should be fixed. What do you think about that?"
One of the most interesting things to me is how being gay was seen (even by gay people themselves) as a "behavior."
i.e. If you didn't "behave" in certain ways, you weren't gay.
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Being autistic is definitely still seen as a set of "behaviors." I think this is why even research perpetuates the myth that you can "grow out of autism,"
as if being "like neurotypicals," speaking, not stimming, and being compliant makes you "not autistic" anymore.
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Right after I typed that -
"I based being gay on my behavior, not my feelings. It was my behavior that made me gay, even though I still had feelings."
- person who used to be a leader that told people they could learn not to be gay