I really dislike listing out ethical issues with PDA, pointing out what it should be doing. Where autism research & practice is. Where PDA research & practice is. It is rather depressing.
Example: I simply should not be able to write this:
I have a COI for advocating for DAP to be a common Disorder.
Clearly those advocating for DAP to be a form of autism have a COI.
E.g., Francesca Happé was committee that set DSM-5 autism criteria (Happé 2011).
Is aware that all attempts to autism have failed (Happé 2011; Fletcher-Waton & Happé 2019; Happé & Frith 2020).
Is not mentioned anywhere in their DAP articles… despite it would make it harder to view DAP as a form of autism.
Articles often have high engagements scores & one poor quality study has won an award for best paper in 2019 (ACAMH 2019).

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More from @Richard_Autism

14 Aug
@judehea I have quite clear views on how I think PDA should be viewed. I have an essay on this submitted, awaiting to receive feedback.
@judehea The issue is that no-one can really be sure of what looks like, & thus exactly what it is. I try to give a comprehensive over view on the topic, from different outlooks. While also being clear that PDA is blatantly not an ASD.
@judehea Recent systematic review.
“Problems concerning definition and measurement in the reviewed studies currently limit any conclusions regarding the uniformity or stability of the behaviours described, or the characteristics of individuals displaying them.” (p1).
Read 58 tweets
3 Aug
That moment when you realise just how dogmatic & pervasive a worldview must be to endlessly pathologise different characteristics of autistic persons. You could probably say it is a pathological tendency (irony is not lost on me).
The sheer ceaselessness of it (habit of pathologising any features seen in autistic persons), is highly disconcerting when you stop to think about it, & its implications. It is used to justify all sorts of poor standards & treatment towards us.
It makes me even more annoyed at the arrogance of "PDA is an ASD" supporters assuming PDA is an ASD due to potential similarities in behaviour presentations. Also that autism understandings will evolve to encompass PDA. Who the hell do they think they are?!?!
Read 4 tweets
31 Jul
@DrJudes03 @DrJoelSchwartz @PDASociety It is perfectly reasonable when
1) Help4Psychology produce an algorithm that is not representative of broader literature. E.g. see:
@DrJudes03 @DrJoelSchwartz @PDASociety 2) Goes against Christie's views to reduce number of PDA traits.

"refine our understanding of the essential criteria and the core difficulty with social identity" Christie, 2016, s60.
@DrJudes03 @DrJoelSchwartz @PDASociety From O'Nions and Eaton, 2021, p413. There are more traits there, than in most PDA behaviour profiles.
Read 28 tweets
28 Jul
@ndhumanoid I am unsure it is necessarily twaddle. Those who identify/ or are diagnosed with PDA often do experience substantial issues around stress caused by aversive demands & do need be supported.
@ndhumanoid Simply because the evidence base is small & poor quality does not mean it is "twaddle". It does mean anyone advocating for PDA needs to making claims in line with the current evidence base, & update their practice to reflect evidence base.
@ndhumanoid I.e., stop claiming PDA is anything specific to autism, and start being more inclusive about PDA with non-autistic persons. Or at least what I would do.

The results should be seen as a warning to those who have built a career on notion "PDA is an ASD".
Read 19 tweets
24 Jul
@KatyBenson20 @PughJoanne ADHD does have social communication issues, often receiving social communication interventions. Also strong case ADHD should be moved into disruptive, impulse-control, & conduct disorders. It was not due to some research (I am unaware of exact details).
@KatyBenson20 @PughJoanne Persons most likely to have ODD & Conduct Disorder are those with ADHD (From my understanding).
@KatyBenson20 @PughJoanne Also ODD & Conduct Disorder also often have social communication issues & receive interventions for that. PDA maybe social communication issues really is no excuse for it to remain in autism.
Read 28 tweets
21 Jul
That moment when you discover you have been stressing over a deadline, that does not even matter! Avoidable, avoidance of demands!!!!!!!!! Argh!
My response:
PDA as a term, seems not to be mentioned. There are also other issues that it is unethical to favour viewing PDA as an ASD over its other proposed outlooks, when they await direct empirical testing...
Read 27 tweets

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