@autismcrisis My thoughts about this PDA systematic review.
I note that the systematic review is going quite broad in terms of searches and search terms. I suspect some would challenge the search terms for not referring directly to PDA, as in they are not names for it.
I note that the systematic review is going quite broad in terms of searches and search terms. I suspect some would challenge the search terms for not referring directly to PDA, as in they are not names for it.
@autismcrisis The results are going to be biased by the campaigning to have PDA recognised as an ASD, both in terms of the research conducted, broader stakeholder opinions.
@autismcrisis Then there will have issues that demand-avoidance is a generic process, that its features are seen commonly in the human population. Not all of the features in various PDA behaviour profiles cluster with demand-avoidance features.
@autismcrisis There are conceptual issues with viewing demand-avoidance as caused by deficits. it locates the issues within the person, when it is a transactional process...
@autismcrisis ... There are good reasons why I am currently viewing PDA to be about stress-management and as a form of OCD & Related Disorders ...
@autismcrisis ... (if only temporarily - I think PDA is a new type of Disorder, that can be placed within a new diagnostic grouping, which OCD & Related Disorders is).
@autismcrisis Then there are other issues like is social avoidance behaviours strategic or manipulative, in my view they are on a continuum of "strategic" at one end, to "manipulative" at the other.
@autismcrisis Many of Newson's Surface Sociability trait features either do not reliably measure their deficits, or are actually anxiety-based RRBIs, like panic attacks.
@autismcrisis There are huge problems with a descriptor in NICE guidelines CG128 for demand avoidance behaviours, as it is just extreme responses to other requests, such as it also includes lability of mood features and also trauma responses.
@autismcrisis Generally, PDA is an ASD literature avoids mentioning anything mildly problematic, such as the first critical PDA article, Garralda (2003) is rarely referenced, despite it making important contributions to it!
@autismcrisis This systematic review should notice many flaws in the current literature, and much disagreement, I doubt one can draw much firm conclusions from it about the nature of PDA.
@autismcrisis "Perspectives on pathological demand avoidance: A meta-study analysis and synthesis of qualitative literature."
@autismcrisis Oh there will also be issues due to disagreements over what traits are present in PDA behaviour profile, diagnostic & if PDA is specific to autism or not.
@autismcrisis This SR should provide interesting results about the debates surrounding PDA, but it is all it should really do.
@autismcrisis @threadreaderapp if you could please unroll?
Thank you in advance.
Thank you in advance.
@autismcrisis @threadreaderapp @autismcrisis anything against me commenting on this protocol?
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