I sure hope the "PDA is an ASD" community is avoiding Spectrum10K like it avoids critical opinion, i.e., avoiding the demand to take part & provide genetic data to try & find subgroups.
The reason for this should be obvious, if they are looking to try fix, or erase autistic persons for not being "able" or productive in society. Any belonging to a group with "Pathological/ Extreme Demand Avoidance is highly likely to be near top of that list.
This makes sense when one considers that PDA as a construct is fundamentally based on non-compliance to non-autistic social norms, with often has extreme, socially outrageous, "challenging behaviour" to others requests.
Then when you consider that if you view (fallaciously) assume PDA is an ASD, its issues are routed to deficits, i.e, located within individual autistic persons. PDA strategies are meant to be used all the time.
PDA is meant to have high exclusion rates, low attainment, high support needs, many other issues, such a mental health comorbids.
Generally, image associated with PDA is not a positive to lay persons.
If you believe PDA is an ASD, value autistic persons & those with PDA, avoid Spectrum10K like "PDA is an ASD" researchers seem to avoid good research standards.
Disclaimer I do not view PDA to be part of the autism spectrum, I think such an outlook is blatantly silly, which undermines integrity of autism, PDA & PDA research that views it to be an ASD.. That PDA's etiology is likely to be trauma/ aversive experiences.
Or avoid Spectrum10K like how "PDA is an ASD" supporters generally are avoiding strong demands to change its name, especially away from something which would force them stop associating PDA with PANDAs.
Or avoid Spectrum10K like how "PDA is an ASD" supporters seem to avoiding demand to take an ethically neutral position & stop assuming they understand:
autism
PDA
demand-avoidance
Disorders
typical research norms
better than other persons.
Or avoid Spectrum10K like "PDA is an ASD" advocating researchers seem to avoid disclosing COIs.
Or avoid Spectrum10K like "PDA is an ASD" advocates generally avoid referencing Garralda (2003).
Yes, I had fun typing these, I will stop there.
Generally, if you care autistic persons, with, or without a PDA dx, avoid Spectrum10K, like the Tories avoiding responsibility for anything negative relating to Brexit, or Covid.
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While I am sympathetic & support the notion of boycotting #StopSpectrum10K, reading it raises more questions than answers for me. So Aucademy is meant to be involved with this.
The statement acknowledges issues dividing autism & makes points I agree with on the topic.
Yet Aucademy platforms PDA is an ASD supporters, i.e., persons which view PDA as a subgroup/ subtype.
"Which option leads me to act like the kind of person I want to be?"
Embraces good practice inclusive scientific-method based: theory, research, & practice. Advocating for all autistic persons are adequately supported.
Social model neurodiversity supporter.
Which in relation to PDA, is either it is a separate Disorder/ "diagnostic entity" from autism. Or, PDA's features are attributed to accepted constructs, like anxiety, ADHD etc, that informs support packages.
The principles about advocating for autistic persons support needs being adequately recognised, are also applicable to non-autistic persons with various ways of being/ "disorders"/ "conditions".
@noellevivante Potentially disregarding a minority groups wishes is something I have been reflecting upon recently due to my own research & how some autistic persons strongly view they have extra rights because they identify with PDA.
@noellevivante First point, just because some persons think PDA is an ASD, & strongly identify with it, does not automatically grant them extra rights. One only has to look at perspective taken in recent systematic review, BPS & NICE to see that.
@noellevivante Some would argue that PDA gives them extra rights under "biological citizenship", & it is from birth. There is good case PDA does not have to be developmental in nature, & is probably caused by trauma/ aversive events.
I will see what #PDASpace response to the email is before deciding if it needs to be added as another example of "PDA is an ASD" community not changing its position, i.e., being dogmatic.
Anyone want to take odds @PDASociety will be adding another example of "PDA is an ASD" supporters being dogmatic with its imminent monthly newsletter?
@autismcrisis My thoughts about this PDA systematic review.
I note that the systematic review is going quite broad in terms of searches and search terms. I suspect some would challenge the search terms for not referring directly to PDA, as in they are not names for it.
@autismcrisis The results are going to be biased by the campaigning to have PDA recognised as an ASD, both in terms of the research conducted, broader stakeholder opinions.
@autismcrisis Then there will have issues that demand-avoidance is a generic process, that its features are seen commonly in the human population. Not all of the features in various PDA behaviour profiles cluster with demand-avoidance features.
Simply put. Why the **** are the likes of @PDASociety@Autism making the stupid decision to view PDA as an anxiety based disorder within the autism spectrum?
I know the logic & reasons why people often view to be an anxiety-based disorder within the autism spectrum. If we can critique Spectrum10k for autism not being an anxiety/ panic disorder. Same point is equally applicable to PDA!
I have had enough of the nonsense around PDA, the seemingly systemic poor quality, research, theory & practice associated with PDA is an ASD. The lack disclosure of conflict interests. The lack of transparency of the PDA Development Group.