There are 2 questions here:
1. Is it real? It is, & case-control studies have shown this
2. What is it? We need to listen to those with lived experience to understand this.
We should all be worried about 11,000 kids reporting persistent symptoms for a yr regardless of 'controls'.
1. Is it real? It is, & case-control studies have shown this
2. What is it? We need to listen to those with lived experience to understand this.
We should all be worried about 11,000 kids reporting persistent symptoms for a yr regardless of 'controls'.
https://twitter.com/BillHanage/status/1438916897991442438
I disagree that we need a control to study every syndrome in every study. Once we've established the syndrome exists, we need to listen to those with lived experience, investigate it carefully to understand what it is. This is how clinical medicine described new syndromes.
Important not to dismiss people's lived experience. Or trivialise it because we cannot prove a counterfactual scenario for children who have been suffering for over a year after they got infected. If you have a control group, fine. If you don't, it's still very important.
There are clear temporal associations with development of symptoms in people post-COVID-19. People who were fit and healthy and now can't get out of bed post-infection. They shouldn't have to prove a counterfactual scenario to be taken seriously.
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