It took 8 yrs of showing up & advocating for pain pts in a myriad of ways. Of giving a megaphone to many of the 'important' ppl. It took a while, but I learned from some of the best.
@StefanKertesz @maiasz @OldHeadFighta @speakingabtpain @funchefchick @headdock @BethDarnall
Maybe these people's stories will matter somehow down the line.
Thank you @GeneW22614687 for highlighting the heinous results of the 'opioid crisis' response. Thanks to Dr. Kline for his sacrifices for the pain community. 💔
I've seen the abuse you've faced Gene for telling the real and tragic stories about the torture of people in pain. Abuse many of us in the pain community have had to face all too often.
I actually have been diagnosed with IC this year, on top of everything else. #PainKills, it's often death by a thousand cuts.
The reason I saw for having followers was to reach as many people as possible about things that matter. ⬆️
CPP suicides happening not only in the U.S, but worldwide. Maybe w/over 10K followers someone important will see this thread & actually CARE enough to act.
#OpioidsSaveLives
There are far more people in pain we will NEVER hear about. The people who will lose their life due to pain induced complications, more CPP deaths than not will be written off as 'natural', suicides that will go unreported due to both opioid and suicide societal stigma. 😔
"State Sactioned Torture". We need to call pain patient deaths for what they are. acsh.org/news/2019/03/1…
@threadreaderapp Please unroll...💕💔💕

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More from @ravensspirit68

26 Sep
It's not by 'accident' that some of us are left out of the conversation, left off the 'lists' of the elite. Our voices relgated to the echo chamber; hundreds who have been fighting for JUSTICE for pain pts since the beginning, while fighting for our very lives. 😔 Image
2-I see based on most of the names that either you're all about addiction with a nod to CPPs, or a CPP who toes the 'moderate' opioid line...😔
People wonder why I'm angry? Why I've reached the end? Really?!
Fighting since before many were even aware of what was happening, while watching the 'opioid moderates' gain more and more traction, more and more CPP support.
Lauding those who support the chains around our necks. Image
Read 5 tweets
21 Sep
Almost three years ago, this was sent.
Among many more I'll include in this thread, along with form letter responses.
Our Representatives KNOW what is happening to us.
They have known all along.
#NoneOfThisIsOK
#SavingUsToDeath
#ScreamLouder
2-Written Dec, 2018...😔
3- 2018 Regulations comment submission...
Read 9 tweets
21 Sep
Thread-1- Our President, today in his speech, cited specifically upholding Article 5.
The Universal Declaration of Human Rights.
How many of these basic HUMAN RIGHTS are people in the pain community being denied at this very moment...?
2-Article 5 states:
"No one shall be subjected to torture or to cruel, inhuman or degrading treatment or punishment."

Ask any person being denied adequate pain treatment about the torture they endure day in and day out, every minute of the day and night.

@HRW confirmed it.
3-We can't uphold basic tennants of HUMAN RIGHTS in the U.S.
How can we preach to the world about what should be done in other countries?
How can we 'lead by example' on a world stage if we demonstrate a lack of concern for the most vulerable of our own?
un.org/en/about-us/un…
Read 5 tweets
20 Sep
Thread...I remember when they sprayed my neighborhood with malathion, I was about 11... There was orange red dust everywhere, on our bikes, the cars, the lawns where we played and layed to watch the stars at night.
sfchronicle.com/chronicle_vaul…
I remember the recluse bite that caused an infection so bad that my knee was the size of a large cantaloupe, severe tissue necrosis, fever of 105...
They came in on a lumber shipment to the local Handyman store here in CA. Flyers were put out to warn the locals.
I remember the fluoride experiments. Our water was fluoridated, we did fluoride rinses at elementary school like this one below, I was given fluoride pills during my 1st pregnancy; told it would give my child stronger teeth. It didn't help me or her. nytimes.com/1983/06/19/nyr…
Read 8 tweets
19 Sep
This person blocked me then wrote this... Image
Here's information.."the prevalence percentages for the diagnoses for drug abuse, drug dependence, and drug addiction were in the range of 3.2-18.9%" pubmed.ncbi.nlm.nih.gov/1633386/
Ppl don't realize that TRUTH is being wiped from the internet & public record. It's NOT conspiracy.
From older studies on opiates re: safety/efficacy, To info such as Siobhan Reynold's advocacy & House Judiciary testimony being wiped from public record. doctorsofcourage.org/siohban-reynol…
Read 7 tweets
19 Sep
2-Dr.Sally Satel has been dragged through the mud by many including 'Stat', for daring to state the truth.
“Contrary to media portrayals, the typical OxyContin addict does not start out as a pain patient who fell unwittingly into a drug habit.”
statnews.com/2019/11/19/how…
3-Deceptive marketing??? No more deceptive than alcohol manufacturers showing happy, healthy, young people drinking socially vs the college age alcoholic binge drinking and choking to death on their own vomit. Image
4-We as a society are more than willing to pick up our pitchforks to demand the heads of opioid makers delivered up on a silver platter.
Yet alcohol, that kills far, far, more than Rx opiates are exempt.
GOV Reps will tell us 'prohibition doesn't work' unless they say it does. 🙄
Read 8 tweets

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