Thought experiment to the floor.
Suppose I designed & conducted a PDA research.
I created PDA definitions based on my experience.
Ignore how PDA can be diagnosed at lower diagnosed thresholds.
Ignore how PDA can be diagnosed in non-autistic persons.
...
...
Ignore DSM-5 threshold for when something becomes "pathological", i.e., threshold for PDA.
Ignore accepted understandings anxiety is not a feature autism.
Used ADOS which is not design to assess for PDA features.
...
...
Only diagnosed PDA in persons I thought were autistic.
Only diagnosed PDA in a dual ASD + PDA traits diagnosis.
...
... Would anyone be surprised if the research results, showed qualitative & quantitative differences in my three groups:
- autistic with PDA.
- autistic without PDA.
- non-autistic trauma based group.
Seriously wondering this?
...
Could one reasonably describe such research as "more authoritative clinically-based research" (assuming I was a clinician and research was conducted in a clinical setting)?
@threadreaderapp please could you unroll?

Thank you in advance.
...
Need to add.
*Ignores that PDA can be diagnosed as standalone diagnostic entity.*

@threadreaderapp please could you unroll again?

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More from @Richard_Autism

4 Oct
Question to the floor:
Should we be in this situation in with PDA in UK (i.e. a bubble on the notion PDA is an ASD), some descriptions from 2 articles:
at present a culture-bound concept UK.
Interest substantially outpacing PDA research.
Genuinely interested?
My own views on this is a definitive no, fact such descriptions of the present situation is present indicates something has gone wrong. There are few reasons for this.
First point is one should ethically be presenting balanced & accurate information on PDA, also not making claims beyond its evidence base. One should not be conducting research to favour a particular viewpoint, such as favouring notion "PDA as an ASD".
Read 23 tweets
3 Oct
Crikey, does anyone else get moments of inspiration when they are doing nothing serious, i.e., "trivial" activities (e.g., for me, making cups of tea, going to the shops, in the bathroom etc)?
Subtext to this, I just had a potentially important one. Yesterday's one about @PDASociety acting like a disreputable information source on PDA by claiming research has not disclosed conflicts of interest as "more authoritative".
For the record, I do not view the PDA Society, or the clinic which did that research as particularly reputable information sources on PDA. Presently viewing them akin to reputability of "pro" ABA/ PBS supporters on ABA/ PBS.
Read 39 tweets
1 Oct
I know I am late to party on this paper @DrMBotha. Currently, & reflecting upon it. Already seeing parallels with it, and my own experiences & observations of engaging with PDA literature & agenda to make "PDA an ASD".
frontiersin.org/articles/10.33…
There are parallel processes operating in similar/ same manner to what Monique describes in the paper. First off, there is lack of consideration of it divergent opinions on PDA are welcome or actively embraced.
I know from past experience, of myself & other dissenting voices we tend to be ignored, by "PDA as an ASD" leading experts, while attacked, or excuses made to not take our points credibly.
Read 25 tweets
1 Oct
I naturally spend time reflecting upon things. I naturally try to evolve & learn from situations. This is very much a central aspect of who I am.
Over the last several weeks, I spent more time reflecting than I naturally do; this is a resource intensive act, in time & spoons. It also means being horrifically open to being mistaken, so open that you can shake & mould your own sense of identity.
This process is also highly organic, it is not something that is done as part of a "routine".
Read 10 tweets
27 Sep
Something that has been bothering over the last two days. Is how some "PDA as an ASD" supporters seem to be confusing anxiety based RRBI's with autism's social communication issues.
Routed to DSM-5 autism criteria, Category A, social communication issues.
A—Deficits in social communication and interaction
A1—Deficits in social-emotional reciprocity
A2—Deficits in nonverbal communication
A3—Deficits in relationships
(Evers et al 2021).
Screenshot of actual DSM-5 category A autism traits, from here (for ease of convenience):
autismspeaks.org/autism-diagnos…
Read 39 tweets
26 Sep
Context for this: I spend substantial amount of time reflecting upon aspects of myself & actions, to try & better understand myself to regulate potentially problematic features. Some of communication style seems to be due to ADHD.
As I have not engaged much ADHD, & awaiting to be assessed for ADHD, there are potentially parts of myself I lack appreciation of how are viewed by others. Which then makes me on how we go about identifying aspects of persons.
So, yes, I accept that various diagnoses can be used to increase understanding for persons. Like how PDA pathologises different features to autism, hence why some persons find a PDA diagnosis better explains them than autism does.
Read 13 tweets

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