The @NewYorker chose not to publish my Letter to the Editor regarding @DhruvKhullar's piece on #LongCovid.
newyorker.com/magazine/2021/…
A 🧵...
1/
The @NewYorker’s first article on #LongTermCovid, published in the September 27, 2021 issue, was a profound affront to everyone suffering the very real long-term sequalae of even mild and asymptomatic cases of #Covid_19.
2/
It is riddled with errors and was reported under false pretenses. @DhruvKhullar pitched this story to me as a personal profile – documenting how I started the world’s largest Covid movement, @Survivor_Corps.
3/
I worked with him for three months giving him unfettered access to my personal and work life. He abused that relationship and violated the tenets of journalistic integrity by writing, not a profile, but a damning referendum on whether #LongCovid exists.
(Spoiler: It does).
4/
Whereas the author had access to the leading scientific minds on the subject he did not interview a single doctor or scientist knowledgeable about this vexing and often debilitating panoply of symptoms that linger long after the virus;
5/
Notably, he did he interview a single patient currently battling Long-Term Covid.

Building on a long history of gaslighting people with chronic disease (notably a cohort that skews female) Dr. Khullar was dismissive and offensive.
6/
Rather than interview the leading drs and scientists w/ whom @Survivor_Corps works, he chose @VPrasadMDMPH, an oncologist at @UCSFHospitals @UCSF best known for his anti-masking rhetoric.
7/
.@VPrasadMDMPH plays at the fringe of medicine, dabbling in anti-Semitism, more keen on being provocative than furthering science.
8/
Contrary to Khullar’s “both sides approach” there is no real debate about whether or not people are suffering long after they are past the “acute” stage of Covid.
9/
There are Post-Covid Care Centers opening at hospitals around the country. The NIH has been entrusted with 1.15 billion dollars to study Long-Term Covid. Congress has held hearings.

Khullar and Prasad occupy a tent of their own in their skepticism of Long Covid.
10/
Khullar, after an unnecessarily graphic description of Heidi Ferrer’s suicide due to #LongCovid (in which he reported key details incorrectly), questioned whether or not Ferrer really had Covid in April of 2020 when Covid tests were almost impossible to find and often faulty.
11/
He ignored the inconvenient truth that Ferrer eventually received a Long Covid diagnosis and referral to the @CedarsSinai Post-Covid Care Center.

He was entrusted with this highly sensitive story and squandered it in sensationalism and doubt.
12/
As both a doctor and journalist @DhruvKhullar should be ashamed. He owes a true apology not only to Ferrer’s family but to the entire #LongCovid community.
@GirltoMom @NickGuthe
13/
Khullar stated that I was not constrained by science, something I believe would be contradicted by the many doctors and scientists with whom I work (and would have stated had he bothered to interview any of them).
14/
@hmkyale @VirusesImmunity @DrMJoyner @ACasadevall1 @kavitapmd
He dismissed the many papers and studies I have co-authored as mere “Facebook polls”.
Links here:
medrxiv.org/content/10.110…
medrxiv.org/content/10.110…
medrxiv.org/content/10.110…
15/
. @DhruvKhullar was fast and loose with his facts and biased in his narrative. In doing so he offered insult to injury to the tens of millions of Americans suffering from #LongCovid.
16/
Perhaps Dr. Khullar would benefit from reading through the New Yorker’s archives and focusing on the work of doctors who listened to and respected patients.
17/
I would ask him to pay particular attention to Oliver Sacks’ 2005 warning that a novel flu virus could cause a shadow pandemic of post-viral neurological complications similar to the encephalitis lethargica that followed the 1918 influenza epidemic.
18/
Sacks and Vilensky wrote in a 2005 @nytimes Op-Ed:

“Research has indeed suggested a recurring association, since the time of Hippocrates, between influenza epidemics and encephalitis-like diseases”.
18/
nytimes.com/2005/11/16/opi…
. @DhruvKhullar's article was a stain on the @NewYorker’s long history of credible medical reporting; the record should be corrected.
@JaneMayerNYer @adamgopnik @emilynussbaum @sbg1 @JiayangFan @tnyCloseRead @lawrence_wright @adamentous @ericlach @erinoverbey @suehalpernVT
/end
* he did NOT interview a single patient

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More from @dianaberrent

14 Sep
Thought it was hard to find monoclonal antibodies before? Well, it's about to get harder.

@HHSGov just announced that rather than take orders from hospitals they will allocate to states based on hospitalization rates and have the states distribute them.
1/
This system will reward the states with the lowest vaccination rates and harm those with the highest.

Ex: NY has high vax rate and low hospitalization rate. NY will receive 4000 doses weekly. How will they be given out?
2/
If they are distributed to each participating hospital no one will provide the therapeutic. It is too costly to set up an infusion center if you only have 10 doses to give out weekly.

Who is harmed?
3/
Read 5 tweets
13 Sep
PSA: if you weren’t able to get tested for Covid and / or didn’t have a detectable antibody response you are STILL eligible to be treated at a Post-Covid Care Center.

Find one near(ish) you:
survivorcorps.com/pccc
From @CDCgov:

“At this time, no laboratory test can definitively distinguish post-COVID conditions from other etiologies, in part due to the heterogeneity of post-COVID conditions.”
Read 8 tweets
5 Sep
I've tweeted you all through my mother's death. We buried her this morning and I want to share my eulogy with you all so you can know her in life, not just in the indignities of death... Please indulge me.

A eulogy for my Mother in a 🧵...
1/
My mother was elegant, discriminating, funny and complex. The ultimate critic, she could pick apart a novel, an art exhibit or your outfit with equal ease and strength of conviction.
2/
Her attention to detail was, at once, her superhuman strength - her ability to recall and recount the trim on a dress she bought in 1958, the tuna salad from the luncheonette in Far Rockaway, an exchange with a sixth grade teacher, a dish served by a friend fifty years ago.
3/
Read 24 tweets
2 Sep
A 🧵 on death (not Covid related)...
I’m sitting in a hospice room on death watch waiting for my mother to take her last breath. That said, I have a few thoughts about death that I want to share. And, trigger warning, it won’t be easy to hear… but we can do hard things.
2/
My mother is almost 82 and is over 2 years into a stage 4 cancer diagnosis with a 6-9 month life expectancy.
3/
Read 21 tweets
3 Aug
“Our members are getting denied disability every day and this is a recognition of the wrap-around services that we are going to need to provide to all survivors of COVID.”
1/
#LongCovid abcactionnews.com/news/coronavir…
“And it’s not the end of the line either. It is a good first step. I worry that it’s a bit toothless because we still don’t have a diagnostic code for long-term COVID, said Diana Berrent, the founder of the organization @Survivor_Corps.
She’s preparing to lobby at the Capitol.
2/
“We need long-term COVID care centers throughout the country. I could go on and on. We need a billing code. We need a name,” Berrent said.”

3/
Read 4 tweets
2 Aug
“Right now, Berrent is focused on long COVID advocacy and convincing the CDC to mandate reporting of all breakthrough cases.

“We have to step in where nobody else is doing it, and that is ludicrous,” she said. “But if it’s necessary, then we’re here to do it.”
#LongCovid @CDCgov
“In my opinion, CDC should be tracking all consequences of breakthrough cases, not just hospitalization and death,” Akiko Iwasaki, the Yale University immunology professor at the forefront of long COVID research, said in an email.”
@VirusesImmunity @YaleMed
“Even mild or asymptomatic infection can lead to long COVID. Tracking this on a national scale would be very informative.” Iwasaki is one of the only experts to have stated outright that fully vaccinated people can still get long COVID.”
Read 4 tweets

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