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7 Oct, 14 tweets, 13 min read
@earlybirdword @Sarahmarieob It depends on what you are after, first point is there no consensus over what PDA is, what features are associated with it, or how to approach it. For instance there are different diagnostic thresholds in print:
rationaldemandavoidance.com/2021/04/25/pda…
@earlybirdword @Sarahmarieob Some view PDA to be a form of autism, like:
link.springer.com/article/10.100…
@earlybirdword @Sarahmarieob Some view PDA to be a common mental disorder.
@earlybirdword @Sarahmarieob Some view PDA to be rebranded autism, and to be pathologising other features of autistic persons, not covered in an autism diagnosis.
Image is by @Allison66746425
journals.sagepub.com/doi/full/10.11…
@earlybirdword @Sarahmarieob @Allison66746425 Some finally some think PDA can be explained by features of accepted constructs, so it is pseud-syndrome.
Such as here:
thelancet.com/journals/lanch…
@earlybirdword @Sarahmarieob @Allison66746425 It must be said that independent reputable parties like NICE/ BPS have taken a neutral position on PDA, treating divergent opinions equally on the topic, i.e., they do NOT intrinsically view PDA as an ASD.
@earlybirdword @Sarahmarieob @Allison66746425 Screenshots of NICE/ BPS position.
@earlybirdword @Sarahmarieob @Allison66746425 Links to their recent documents with said positions on PDA.
@earlybirdword @Sarahmarieob @Allison66746425 Link to recent systematic review, which also did NOT assume PDA is a form of autism. Generally highly critical of it PDA research.
journals.sagepub.com/doi/full/10.11…
@earlybirdword @Sarahmarieob @Allison66746425 I have a short introduction piece to PDA here:
researchgate.net/publication/35…
@earlybirdword @Sarahmarieob @Allison66746425 About long term explanations for PDA.
I briefly discuss PDA as a form of OCD & related disorders here:
rationaldemandavoidance.com/2021/04/25/pda…

I have a more depth piece on the topic under review.
@earlybirdword @Sarahmarieob @Allison66746425 Also this conference talks about PDA in autistic persons from a monotropism perspective. It is a developmental model of monotropism.
researchgate.net/publication/33…
@earlybirdword @Sarahmarieob @Allison66746425 I hope it helps.

@threadreaderapp If you could please unroll?

Thank you in advance.
@earlybirdword @Sarahmarieob @Allison66746425 @threadreaderapp Oh, sorry this image if from O'Nions. Not claiming credit for it.

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More from @Richard_Autism

Richard Woods Profile picture
4 Oct
I am still playing around with this (mainly working out how to shade individual sides of the cube), I think I have a new 3D image for PDA. Although, it might be best doing a "radar" type chart.
I have split the frequency & intensity of demand-avoidance axes from these charts in two.
Frequency of demand-avoidance features displayed continuum represents how often demand-avoidance features tend to expressed over a given time period, such as a week. It really is arbitrary which time period a person uses.
Read 16 tweets
Richard Woods Profile picture
4 Oct
Question to the floor:
Should we be in this situation in with PDA in UK (i.e. a bubble on the notion PDA is an ASD), some descriptions from 2 articles:
at present a culture-bound concept UK.
Interest substantially outpacing PDA research.
Genuinely interested?
My own views on this is a definitive no, fact such descriptions of the present situation is present indicates something has gone wrong. There are few reasons for this.
First point is one should ethically be presenting balanced & accurate information on PDA, also not making claims beyond its evidence base. One should not be conducting research to favour a particular viewpoint, such as favouring notion "PDA as an ASD".
Read 23 tweets
Richard Woods Profile picture
3 Oct
Crikey, does anyone else get moments of inspiration when they are doing nothing serious, i.e., "trivial" activities (e.g., for me, making cups of tea, going to the shops, in the bathroom etc)?
Subtext to this, I just had a potentially important one. Yesterday's one about @PDASociety acting like a disreputable information source on PDA by claiming research has not disclosed conflicts of interest as "more authoritative".
For the record, I do not view the PDA Society, or the clinic which did that research as particularly reputable information sources on PDA. Presently viewing them akin to reputability of "pro" ABA/ PBS supporters on ABA/ PBS.
Read 39 tweets
Richard Woods Profile picture
2 Oct
Thought experiment to the floor.
Suppose I designed & conducted a PDA research.
I created PDA definitions based on my experience.
Ignore how PDA can be diagnosed at lower diagnosed thresholds.
Ignore how PDA can be diagnosed in non-autistic persons.
...
...
Ignore DSM-5 threshold for when something becomes "pathological", i.e., threshold for PDA.
Ignore accepted understandings anxiety is not a feature autism.
Used ADOS which is not design to assess for PDA features.
...
...
Only diagnosed PDA in persons I thought were autistic.
Only diagnosed PDA in a dual ASD + PDA traits diagnosis.
...
Read 7 tweets
Richard Woods Profile picture
1 Oct
I know I am late to party on this paper @DrMBotha. Currently, & reflecting upon it. Already seeing parallels with it, and my own experiences & observations of engaging with PDA literature & agenda to make "PDA an ASD".
frontiersin.org/articles/10.33…
There are parallel processes operating in similar/ same manner to what Monique describes in the paper. First off, there is lack of consideration of it divergent opinions on PDA are welcome or actively embraced.
I know from past experience, of myself & other dissenting voices we tend to be ignored, by "PDA as an ASD" leading experts, while attacked, or excuses made to not take our points credibly.
Read 25 tweets
Richard Woods Profile picture
1 Oct
I naturally spend time reflecting upon things. I naturally try to evolve & learn from situations. This is very much a central aspect of who I am.
Over the last several weeks, I spent more time reflecting than I naturally do; this is a resource intensive act, in time & spoons. It also means being horrifically open to being mistaken, so open that you can shake & mould your own sense of identity.
This process is also highly organic, it is not something that is done as part of a "routine".
Read 10 tweets

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