if you had a 2/day pill organizer that was color coded coral & mint blue (aka an orangy red & a greeny blue) which color would you use for your morning meds if there were no labels making the decision for you?
(yes this poll is about me and my pill organizer, which I love.)
livesagely.com/product/sagely…
dang friends, my brain is currently in the minority.

I definitely chose via the association that daytime light is bluer and nighttime light is oranger. (esp on say my phone, which gets rid of blue light (?) in the evenings, so evenings are Very Orange to my brain apparently.)
spouse always assumes it's the other way and sometimes this causes confusion so he suggested I do a twitter poll and HERE WE ARE!

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More from @bennessb

7 Oct
the reason this gets so many hackles up is that every disabled person has had the following conversation:

disabled person: fun fact, my disability prevents me from doing XYZ.

some jerk: that sounds made up, real disabled people don't have that problem.

dp: but... I'm... real?
it's like yes, I know my disability sounds made up to you because

1. non-disabled people have been saying the same thing to me my entire life, and

2. you clearly have limited-to-no exposure to so-called real disabled people, which is pretty typical.
every single discourse about whether or not some inciting bs is ableist includes just an astounding number of people arguing that real disabled people talking about our actual problems are just trolls describing challenges no human could possibly face. 🤡
Read 6 tweets
13 Aug
like the fact that I need to completely ignore all the encouragement to exercise more from my (otherwise helpful) fitness tracker is the same problem as how just about every commercial electrolyte blend is developed & branded for either exercise or the stomach flu.
do these companies somehow not know that we're using their products?

do they think explicitly marketing to us will cheapen their brand?

do they lack the cultural competence to actually work with our communities?

🤔🤔🤔
even liquid IV, which has a special coupon code for dysautonomia, does this on their packaging.

I promise you that none of these are among my priorities. (yes I know we're probably under the Wellness umbrella.) photo of a section of liqui...
Read 7 tweets
13 Aug
I'm trying liquid IV for the first time because heat wave and I resent the heck out of needing expensive individually wrapped consumer products to survive.

(tho if you buy directly from them I think there's a discount code: POTS30)
lots of medical products need to be individually wrapped for safety. this is not one of those situations.
Read 7 tweets
12 Aug
tbh I’m actually pretty tired of articles about how doctors are SHOCKED to learn that they are treated poorly when they become patients.
thank you for announcing that you were completely unaware of the biases and abuses you were directly participating in for many years. I feel much better now.
or, more likely, thank you for announcing that you always thought people deserved to be treated that way until it happened to you personally.
Read 4 tweets
6 Aug
pitch: tv show called Fakers about a bunch of undiagnosed chronically ill people performing wellness in order to survive as they try to figure out wtf is going on with their bodies in the face of systemic disbelief.
maybe a dramady set in a Health Anxiety support group in which a couple folks genuinely have HA & everyone else is blatantly ill (and some both).

open with montage of doc appt in which each person is referred to the group & fobbed off according to strongest med biases they face.
patient: I feel faint if I stand too long & I'm worried I'm going to get hurt at work, are there any tests you'd recommend?

doctor: it sounds like you're really catastrophizing! before we talk tests I'm gonna refer you to a Health Anxiety group so you can manage those thoughts.
Read 5 tweets
5 Aug
I do not have the capacity to make words about a bbc article legitimizing illness faking claims. have not read; will not read.

the entire premise is poison.
Read 6 tweets

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