Thread by @VABVOX

A little🧵about supply chain + USPS + healthcare + poverty: I have been waiting for oxygen tubing for nearly two months. It's likely on a container in some port because it's mostly made in China. My healthcare provider doesn't pay for tubing, even though I'm on oxygen 24/7.
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People on oxygen get tanks for travelling and an oxygen generator for daily use, which is large, loud and you're tethered to it. Insurance will pay part of the rental, but won't pay to buy it. So I've paid thousands of dollars to rent it over the past decade. Madness.
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And they won't pay for tubing which should be changed every month or so but most people only change it once or twice a year because of the extra expense. But the plastic canula on your face gets hard and brittle over time. 3/🧵

Just a small thing, perhaps, but the quality tubing costs more. Of course. And the comfort level of the canula is in direct proportion to the quality of it. So a nice, soft, pliable one is more $ than a cheaper one. And that is just another indignity for #disabled folks.
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I just though you should know that every day chronically ill and #disabled people have to deal with this kind of stuff that imperils us for no reason. And millions of Americans are on oxygen. Which is, you know, air to breathe. Sigh.
#DemolishDisabilityPoverty
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