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skye xe/xyr

@stimmyskye

31 Oct

*muffled screaming* my nerves

I have 3 days left to clean the living room and too much to do in addition to that and oh yeah still doing medication withdrawal and in a depressive episode

maybe it's okay if I don't advance my life goals for 3 days

Read 9 tweets

skye xe/xyr

@stimmyskye

30 Oct

the problem is that "men" and "non-men" aren't groups that exclude each other.

there is overlap in multiple ways. there is the perception of others - who is seen as a man and who isn't? this is not always easy to answer and often depends on circumstances.

there is an insecure self perception - who sees themselves as a man and who doesn't? this, too, can be complicated, and is often painful: men whose dysphoria tells them they're women. women whose dysphoria tells them they're men. people who simply aren't sure.

and then there's the people who break that distinction cleanly apart.

plural people who have headmates that are men and ones that are not.

genderfluid people who are sometimes men and sometimes not.

multigender people who are men and also other genders at the same time.

Read 6 tweets

skye xe/xyr

@stimmyskye

29 Oct

I don't even know how to process all of this

So 2 days ago my electric bicycle was stolen in spite of being 2 years old, dirty, badly repaired, and having a 80 € abus lock. They just took an angle grinder

My specific mix of disabilities means ebike is my only way to get around

The bike is my wheelchair, my car, my cargo transporter. My only alternative is my beloved manual wheelchair which I sadly don't get far with & can't transport anything on

With bike i can do it all. Transport everything. Go everywhere. Help friends and strangers with everything

Without bike I am a sad little ball of pain that dreads leaving the house at all

Now comes the part I'm not really processing yet.

Someone offered to give me their old ebike. Just... just like. Wow. The bike is a dream. I mean like I cannot describe how perfect it is

Read 6 tweets

skye xe/xyr

@stimmyskye

23 Sep

okay so as some people don't seem to know this is happening:

when someone replies to one of your posts asking you for your paypal / venmo / etc, there are bots that will IMMEDIATELY clone your account and reply with a payment link. they block your account in the same second.

because you're blocked, you'll see that there's 1 reply to that question but the reply tweet won't show up.

if you see a ghost reply to a comment like that, it's almost always a scam bot.

they delete as fast as they clone your account. you won't even know it happened.

they will delete the reply tweet, but the account itself will usually not be deleted, just change the user name. so the accounts are usually not brand new, they even have followers. you need to check closely.

Read 11 tweets

skye xe/xyr

@stimmyskye

21 Sep

https://twitter.com/Hotsun___/status/1439605952026607623

self diagnosis was the only way I knew to ask for specific meds, and to self medicate with OTC and supplements, and THAT was how I went from needing a wheelchair to get from bed to toilet to... well I haven't used my wheelchair in almost 2 years.

clearly, I've harmed myself.

https://twitter.com/Hotsun___/status/1439605952026607623

I'm tired.

I have never met a single doctor who actually knew *anything* about my underlying condition (MCAS).

I have met plenty of doctors who didn't believe me that it even exists.

There is precisely 1 place in germany that offers MCAS diagnosis and I can't get there.

without self dx and self medicating, both for mental health as well as physical health, I would be dead.

long, long dead.

what harms is gatekeeping of information. doctors *shouldn't* be the only ones with the power of diagnosis and treatment.

they fuck up too often.

Read 9 tweets

skye xe/xyr

@stimmyskye

13 Jul

every time one of these "1 like = 1 answer" images goes around I get to unfollow so many people because nobody cares about access! you don't care about me, I don't care about you either, goodbye

I know the questions don't all fit in the alt text! it's better to write them out as you post the answers anyway, because nobody will keep scrolling up and down to see what you're even answering.

but you're not even making the slightest effort.

I'm fucking tired of this kind of exclusion, and it hurts especially if it's other disabled people doing it.

at this point there's no excuse for not even *trying*.

just say you don't care about disabled people and save us all the trouble. yes, even if you're disabled yourself.

Read 9 tweets

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