I and many others like @apresj20 have been fighting misinformation on #LongCovid severity, promoted even by verified accounts on this very same platform
I'll continue to support top-notch biomedical research and advocacy work to ensure care and recognition to patients worldwide
It is a pity to see some scientists, journalists and medical professionals contributing to minimizing the true extent and nature of SARS-CoV-2 infection
This is a great disservice to covid | #LongCovid patients and society in general
We are paying for this misinformation dearly
For those interested in SARS-CoV | SARS long term symptoms and sequelae, you can find some information in this 🧵 I compiled several weeks ago
Many SARS survivors were ill for years. Some have never fully recovered and have started to speak up about the dangers of severe CoV infections since *January 2020* | see articles in the 🧵 | MERS CoV the other severe coronavirus that spread to humans, also led to high morbidity
All this information on both #LongCovid and the long term health effects of SARS and MERS can be found im the published literature with a few minutes search on Google or pubmed (=platform for medical literature).
There is no excuse for bad policy and misinformation
People have died, have been left at home with no care with #LongCovid and our communities have been devastated
This is when all the scientific and biomedical evidence is fully and easily accessible
We need accountability
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It's now proven by a very significant number of publications: sadly, SARS-CoV-2 infection causes prolonged symptoms and damage in multiple organs and body systems 🧵
My gratitude to @apresj20 for their constant effort to promote top-notch science | advocacy on #LongCovid
I also find this concept of "Less is More" troubling in view of viral-onset disease's history, where #pwME and other patients with complex, chronic diseases have been left with no care and appropriate research on their severe condition
I just did another short thread on the deeply flawed @JAMAInternalMed study on #LongCovid | as I should have expected, I bumped into a medical doctor account using the study to minimize Long Covid... and retweeting material from the Great Barrington Declaration, too!
The fact that the @JAMAInternalMed study is being picked up and retweeted with positive feedback by accounts that look at the Great Barrington Declaration sympathetically puts the nail in the coffin into any residual credibility the research migh have imo!
This is the positive tweet about the study by the account I was talking about
This is the @JAMAInternalMed#LongCovid study, which is drawing huge criticism by top experts because of severe flaws in study design, data collection, and interpretation
I provide 🔽 some comments based on key scientific evidence available on Long Covid
First, we must address conflict of interest. The study's main author is a psychiatrist, as many other authors. Notably, the paper doesn't address key biomedical evidence on #LongCovid
It focuses on illness "beliefs" and suggests cognitive and behavioral intervention as therapy!
We perfectly know that #LongCovid has been proven to be a severe, disabling, and sometimes fatal disease by a significant number of top-notch research papers, including in key scientific journals like @Nature 🔽
Thanks @LongCOVIDPhysio for sharing my 🧵 on silent hypoxia | O2 drops in #LongCovid, especially in the context of exertion
I agree 💯 that people with Long Covid as well as other (post) viral conditions should *always* be accurately screened before being prescribed exercise!
Exertional desaturation (= O2 dropping after exercise) is only one of the many challenges #LongCovid patients may encounter: cardiovascular damage, myocarditis, exacerbation of symptoms after physical and other forms of exertion, are all critical issues to assess appropriately
Symptoms exacerbation as PEM/PESE is widely reported in viral onset and other (post) infection diseases like #MECFS
But there are many contexts, such as indeed some forms of cardiovascular disease, where exercise must be practiced with caution or avoided (as appropriate)
🔥 Discussion of❗silent hypoxia in acute covid= low oxygen levels, but not associated with feeling out of breath | many don't realise they're in a life-death situation
A note: hypoxemia | O2 drops may persist in #LongCovid even after pneumonia resolution 🧵
A pulse oximeter is a key tool to monitor your oxygen saturation | silent hypoxia comes with non-specific symptoms, such as dizziness, feeling uncomfortable or unwell etc. | many people in acute covid are, or have been, unaware of their hypoxic state exactly because of this!
People with #LongCovid have been long reporting about dropping oxygen levels and low saturation | this may come after exertion or in a relapsing-remitting pattern | drops in O2 in Long Covid have also been proven in a clinical setting, for example via a walking test