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ME/CFS Quotes

7 Dec, 4 tweets, 4 min read

@ColumbiaMSPH

1/ Dr. Ian Lipkin is internationally recognized in the use of molecular methods for pathogen discovery w/ 30+ years of experience in diagnostics, microbial discovery and outbreak response. He runs the ME/CFS Collaborative Research Center at @ColumbiaMSPH. #MECFS #LongCOVID

https://twitter.com/mecfsquotes/status/1465892906032513025

2/ On a recent panel, Dr. Lipkin referenced emerging #MECFS biomarkers uncovered by the Collaborative Research Centers, which may be applicable to #LongCOVID.

He also noted biological commonalities he has found between ME/CFS and Long Covid in preliminary analyses.

Related:

https://twitter.com/mecfsquotes/status/1465892906032513025

3/ In the past Dr. Lipkin has been known for his role in a $2.3M study (published in 2012) that showed no evidence supporting the theory that ME/CFS is caused by the XMRV retrovirus.

nature.com/articles/natur…

4/ More recently Dr. Lipkin co-authored a paper with Dr. Anthony Komaroff “Insights from ME/CFS May Help Unravel the Pathogenesis of PASC”.

reader.elsevier.com/reader/sd/pii/… #LongCOVID #MECFS

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@mecfsquotes

5 Dec

@NIHDirector

1/ Excerpts from Francis Collins’s (@NIHDirector) speech from the Accelerating Research into Myalgic Encephalomyelitis conference, April 2019. 🧵

As you said, Dr. Collins: “No action, no hope.” (Apr 2019)

bit.ly/mecfsquotes-co… #MECFS #pwME

@NIHDirector

2/ In March 2017, Francis Collins @NIHDirector and Walter Koroshetz @NINDSdirector had committed to “unravelling the underlying biologic cause(s) of #MECFS as swiftly as possible”. directorsblog.nih.gov/2017/03/21/mov…

@NIH

3/ “We want to be [the National Institutes of Hope] for ME/CFS” @NIH @NIHDirector #MECFS

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ME/CFS Quotes

@mecfsquotes

12 Nov

@PutrinoLab

Dr. David Putrino is a physical therapist with a PhD in neuroscience. He runs @PutrinoLab at Mt Sinai, which builds state-of-the-art tools to rehabilitate those w/ #LongCOVID & other conditions. 🧵

bit.ly/mecfsquotes-pu…

@MountSinaiRehab @microbeminded2 #PolyBioPodcast #MECFS

2/ The most devastating words for the severely unwell: “Your lab results look great!”

It means science/medicine has nothing for you… or that your doctor doesn’t even believe your suffering is real.

Dr. Putrino’s perspective brings hope.

#LongCOVID #MECFS #MedTwitter

3/ Rehabilitation can help, but for many it is not a cure. Dr. Putrino offers a counterpoint to all those selling silver bullet solutions, subtly blaming all those who remain chronically ill.

Rehabilitation. Rigorous biomedical research. We need both.

#LongCOVID #MECFS

Read 10 tweets

ME/CFS Quotes

@mecfsquotes

30 Sep

@MEActNet

At an @MEActNet press briefing back in March, Dr. Anthony Komaroff confirmed his earlier prediction that we had reason to expect some w/ COVID-19 would develop a debilitating chronic #LongCOVID syndrome with symptoms similar to post-viral #MECFS. bit.ly/mecfsquotes-ko…

🧵

Dr. Komaroff suggested that the underlying pathology of #LongCOVID may be similar to problems that have been observed in #MECFS.

Long COVID researchers can refer to ME/CFS research across the past few decades for a substantial head start.