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Jennifer Brea🦒 Profile picture
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12 Dec, 5 tweets, 2 min read
I am concerned these are going to fly well under the radar #LongCovid
Cerebellar tonsilar herniation following infectious mononucleosis: academic.oup.com/neurosurgery/a…
Tonsillar herniation and hydrocephalus following mycoplasma pneumoniae and unknown infection: sciencedirect.com/science/articl…
I’m seeing a number of scattered case reports of cerebellar tonsillar herniations in SARS-CoV2 patients but they are mainly written about hospitalized patients with severe brain swelling who ultimately died.
Could “less severe” versions of this be happening in community settings and going completely undetected?

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Jennifer Brea🦒 Profile picture
13 Dec
Watching #Succession and trying to understand why kids worth billions can’t just use those billions to start new businesses…
I observe the family dynamics and understand family systems like this. I still think the question is fundamentally unanswered. The show would benefit from someone speaking for the audience in this regard, just to better understand each character’s motivation.
As well as just the practical aspects of what it is to HAVE billions v. run a company WORTH billions.

Do they fear loss of status? Power? Losing the chance to prove themselves? I’m not convinced we are actually shown enough to know each individual character’s motivations.
Read 5 tweets
Jennifer Brea🦒 Profile picture
11 Dec
What are your favorite strategies for coping with the psychological tax of the pandemic?
Thanks everyone for all of your answers (and ideas!) I thought I’d respond to my own question.
The first 6-9 months of the pandemic, I was sick with COVID (from very first wave) and it took that long to recover. I then had to re-do all my post-surgical rehab as deconditioning while sick with COVID wreaked havoc on my post-op body.
Read 10 tweets
Jennifer Brea🦒 Profile picture
11 Dec
SVP stop saying Omicron is “not severe” as if that matters for the overall # of people who will ultimately die from it or the 50-70% who will develop #longCOVID and become ill for months, years, or decades.

Almost every MD and Ph.D in my feed is saying this and it is inaccurate.
Also, the most plausible models of ME (post-viral condition first recognized in the wave of 100+ epidemics over the span of decades, please God, this is not new) are “multi-hit.” Meaning that your chances of developing it increase as you experience additional insult events.
So please do not act as though so long as you get infected, you don’t die, that getting infected over and over again is an unfortunate inconvenience.

For some, this is simply ratcheting up the cumulative risk of becoming long-term disabled.
Read 4 tweets
Jennifer Brea🦒 Profile picture
11 Dec
Vaccines help prevent severe disease, which is wonderful. However, I am far more worried about transmission. What happens in ICU’s is important but a very small % of what this virus is doing to us all.
We need to make sure we are not only looking where the light is. Far more is happening that what can be gleaned from studying patients in hospitals or talking to experts who work there. (I was mostly bedridden for 7 years and it took 7 years to even get admitted to a hospital.) Image
I look at MDs, Ph.Ds, and science journalists all over my Twitter feed, and while the information they are offering the public is largely accurate, it is incomplete. They have sold the public a false picture of their actual risk by focusing on death and on the “at risk.”
Read 8 tweets
Jennifer Brea🦒 Profile picture
9 Dec
I am so glad that @LisaBeilfuss wrote about this but I want to push back gently on this point. #longCOVID is not really a mystery. And the reason why we don’t know how many people are not working due to #longCOVID is because WE AREN’T COUNTING THEM.
.@uscensusbureau’s Household Pulse Survey could do this. There is a long history in reporting of calling medical conditions “mysteries.” Much of the time the “mystery” is some combination of politics, low awareness, ignorance, discrimination, poor priority setting, etc.
And I would submit we have enough literature and reports on #MECFS not to term it a “mystery.” Or at least, we know enough about the ubiquity of post-viral symptoms not to call #longCOVID a surprise.
Read 5 tweets
Jennifer Brea🦒 Profile picture
8 Dec
So excited to watch this interview between @polybioRF s @microbeminded2 and @MS_SouthNassau’s @RuhoyMD that I’m going to live tweet it. Dr. Ruhoy is a neurologist with a Ph.D in environmental medicine who works with #longCOVID #mecfs #EDS patients.
Ruhoy describes her long-standing interest in integrative medicine, natural approaches, and environmental medicine. She’s even a certified medical acupuncturist! She now helps lead a neurosurgery practice. 😍😍😍
Ruhoy: “I was an environmentalist from when I was very young and I believe that the world around us plays a role in our health. Even before I was a doctor, I would always try to find ways of living a healthier life. I saw no reason why I couldn’t combine it.”
Read 58 tweets

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