"Talking about Omicron (or any variant) resulting in 'milder' illness is careless...It neglects to reflect on #LongCOVID statistically being more likely to occur in mild cases." Repost from BP's Vice President Lauren Nichols (@ LaurenTheMedium on IG: instagram.com/p/CXW0Wa1PAAM/) 🧵⬇️
"Talking about Omicron (or any variant) resulting in 'milder' illness is careless...It continues the spread of misinformation and ignorance surrounding the cause of the largest mass disabling event (Worsening daily) in modern human history."
There are dozens of studies and hundreds of news articles illustrating the growing impact of #LongCOVID, even in people with originally “mild” illness
While vaccination helps and is a contributor in the milder acute cases seen in omicron, #LongCOVID can and does result in a statistically significant portion of break-through vaccination infections.
“And all those people leaving their jobs? With over 115 million globally with long COVID & 86.2% of long haulers reporting being mildly to severely unable to work, do you really think a ‘mild’ infection is worth the risk?”
“…Any resource that neglects to connect mild accute illness to the serious chronic illness known as Long COVID is complicit in the spread of misinformation and the virus. Full. Stop.”
“You might be opportunistic by thinking you'll unmask and risk mild infection before global vaccine equity is up, but #COVID is more opportunistic within and outside of the body. Keep masking. Get boosted.”
“This isn’t about fear. It’s about being proactive. It’s the reactive response when many warn and few listen. That’s fear inducing.”
Today we want to thank all the organizations in the #LongCovid, Covid-19, and disability justice space that we have worked with. We are grateful for the solidarity that exists in this movement + encourage our followers to show the groups listed below some support! 1/25
first up, @patientled: born from our support group, this patient-led, diverse, all-female leadership team was the first to study #LongCovid, with their work recognized by @NIHDirector. All the researchers are people with Long Covid and they emphasize patient privacy. 2/25
next, @MarkedByCovid: as leaders in the grief space, this org provides resources to those who have lost loved ones to Covid-19 and trains their members as advocates. Founded by @kdurquiza, this org centers and is led by those most impacted. 3/25
We are hoping to fill this position quickly with a start date in early September.
Applicants should have experience in graphic design and social media strategy and a passion for community-building.
About us: Our work at Body Politic seeks to destigmatize issues facing the COVID-19 community & people w/ related chronic illnesses & disabilities, by offering alternative narratives that show what it’s like to live with a novel or chronic illness.
Dr. Jarred Younger is up to talk about imaging techniques for neuroinflammation. He has found a way to visualize elevated temperature in the brain and found that people with ME have pockets of heat across the brain - up to 100.8F!
This is related to overactivated microglia.
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He talks about how we're repeating research in #LongCOVID and how we need to be focused on treatments & clinical trials right now, prioritizing the drugs we think will work, which he says there are a ton of. We can't wait for a perfect biomarker before we start trials.
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One of the main takeaways:
awareness for people with #LongCovid who now realize they may be considered disabled under ADA, IDEA, etc. and therefore may be entitled to accommodations & services that make everyday life activities, work, and school more accessible.
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