"Talking about Omicron (or any variant) resulting in 'milder' illness is careless...It neglects to reflect on #LongCOVID statistically being more likely to occur in mild cases." Repost from BP's Vice President Lauren Nichols (@ LaurenTheMedium on IG: instagram.com/p/CXW0Wa1PAAM/) 🧵⬇️ A woman with hands covering her eyes and around her throat.
"Talking about Omicron (or any variant) resulting in 'milder' illness is careless...It continues the spread of misinformation and ignorance surrounding the cause of the largest mass disabling event (Worsening daily) in modern human history." Talking about Omicron (or any variant) resulting in milder i
There are dozens of studies and hundreds of news articles illustrating the growing impact of #LongCOVID, even in people with originally “mild” illness Text that says “there are dozens of studies,” with  screText that says “there are hundreds of news articles,” wi
While vaccination helps and is a contributor in the milder acute cases seen in omicron, #LongCOVID can and does result in a statistically significant portion of break-through vaccination infections.
“And all those people leaving their jobs? With over 115 million globally with long COVID & 86.2% of long haulers reporting being mildly to severely unable to work, do you really think a ‘mild’ infection is worth the risk?”
“…Any resource that neglects to connect mild accute illness to the serious chronic illness known as Long COVID is complicit in the spread of misinformation and the virus. Full. Stop.” Text on a plain background says “Resources sharing about t
“You might be opportunistic by thinking you'll unmask and risk mild infection before global vaccine equity is up, but #COVID is more opportunistic within and outside of the body. Keep masking. Get boosted.” A hand holding a wine glass. Text on the glass says “You m
“This isn’t about fear. It’s about being proactive. It’s the reactive response when many warn and few listen. That’s fear inducing.” A hand holding a wine glass. Text on the wine glass says “
Cited Long COVID “Mild Illness” Articles continued: 17. directorsblog.nih.gov/2021/04/20/stu…
18. cnet.com/google-amp/new…
19. arstechnica.com/science/2021/0…

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More from @itsbodypolitic

26 Sep
Today we want to thank all the organizations in the #LongCovid, Covid-19, and disability justice space that we have worked with. We are grateful for the solidarity that exists in this movement + encourage our followers to show the groups listed below some support! 1/25
first up, @patientled: born from our support group, this patient-led, diverse, all-female leadership team was the first to study #LongCovid, with their work recognized by @NIHDirector. All the researchers are people with Long Covid and they emphasize patient privacy. 2/25
next, @MarkedByCovid: as leaders in the grief space, this org provides resources to those who have lost loved ones to Covid-19 and trains their members as advocates. Founded by @kdurquiza, this org centers and is led by those most impacted. 3/25
Read 25 tweets
20 Aug
📢 Job opening at Body Politic: we are looking for a part-time remote social media manager to help run our IG & Twitter.

Experience with disability justice or chronic illness communities is a plus. BIPOC and LGBTQ+ applicants to the front!

More info: indeed.com/m/viewjob?jk=1…
We are hoping to fill this position quickly with a start date in early September.

Applicants should have experience in graphic design and social media strategy and a passion for community-building.
About us: Our work at Body Politic seeks to destigmatize issues facing the COVID-19 community & people w/ related chronic illnesses & disabilities, by offering alternative narratives that show what it’s like to live with a novel or chronic illness.

More: wearebodypolitic.com/about-body-pol…
Read 4 tweets
19 Aug
Over the next 3 days we'll be tweeting the IACFS/ME conference! The amazing lineup is available here: iacfsme.org/2021-iacfsme-v…

Tweets by @AlisonSbrana, @ItsAngInLA, & @ahandvanish.

Follow this thread! #LongCovid

1/
Dr. Jarred Younger is up to talk about imaging techniques for neuroinflammation. He has found a way to visualize elevated temperature in the brain and found that people with ME have pockets of heat across the brain - up to 100.8F!

This is related to overactivated microglia.

2/
He talks about how we're repeating research in #LongCOVID and how we need to be focused on treatments & clinical trials right now, prioritizing the drugs we think will work, which he says there are a ton of. We can't wait for a perfect biomarker before we start trials.

3/
Read 141 tweets
27 Jul
📢 Body Politic & our research partner @patientled explain President Biden’s announcement yesterday about #LongCovid disability rights in the US, with quick links to federal agency publications on #LongCovid that patients should bookmark. #ADA31
1/
wearebodypolitic.com/bodytype/2021/…
First, links to publications from federal agencies on #LongCovid yesterday:

- Guidance from DOJ & HHS ada.gov/long_covid_joi…
- For students & educators: www2.ed.gov/about/offices/…
- Employment support @USDOL dol.gov/agencies/odep/…

- @ACLgov resources acl.gov/sites/default/…
2/
One of the main takeaways:
awareness for people with #LongCovid who now realize they may be considered disabled under ADA, IDEA, etc. and therefore may be entitled to accommodations & services that make everyday life activities, work, and school more accessible.
3/
Read 20 tweets

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