“We don’t have to learn to live w/a viral pathogen when we have time, effective public health measures,& a chance at increased medical innovation. The laziest, most inhumane thought is that we have to learn to live w/this virus" BP Vice Pres Lauren Nichols instagram.com/p/CaQcANZLmTE/ "Humanity, we were so close. So close to achieving the endemic stage of COVID. So close to delaying the rate of mutation. So close to better protecting the vulnerable...So close to preventing more cases of #LongCOVID."

Graded Exercise Therapy (#GET), once recommended as "treatment" for patients with #MECFS, has been found in multiple studies to instead cause patients *significant* harm. Thread ⬇️ graphics by Body Politic Vice Pres. Lauren Nichols: instagram.com/p/CKl50EyhT84/ In 1989 an erroneous & damaging paper about a “new approach” to chronic fatigue emerged in a British medical journal.

Body Politic & 130+ other disability organizations have responded with a letter to express our horror & disappointment at recent remarks by CDC Director Walensky & outline policy shifts the CDC must make to rebuild trust with the disability community: wearebodypolitic.com/bodytype/2022/… "People w/4 or more comorbidities are people w/disabilities. People with 4 or more comorbidities are also disproportionately Black people, Indigenous people, Latina/o/x & other people of color, poor people, older people, & people who experience intersecting forms of oppression.."

“The reality of the Long Hauler - and of all infection initiated chronically ill persons (#MECFS, #POTS, #ChronicLyme, etc.)…includes an external world that inflicts pain onto our already painful internal one." 🧵 & artwork by BP Vice Pres. Lauren Nichols instagram.com/p/CXpM1gErbxR/ The external world of the #LongCOVID patient

"Talking about Omicron (or any variant) resulting in 'milder' illness is careless...It neglects to reflect on #LongCOVID statistically being more likely to occur in mild cases." Repost from BP's Vice President Lauren Nichols (@ LaurenTheMedium on IG: instagram.com/p/CXW0Wa1PAAM/) 🧵⬇️ "Talking about Omicron (or any variant) resulting in 'milder' illness is careless...It continues the spread of misinformation and ignorance surrounding the cause of the largest mass disabling event (Worsening daily) in modern human history."

Today we want to thank all the organizations in the #LongCovid, Covid-19, and disability justice space that we have worked with. We are grateful for the solidarity that exists in this movement + encourage our followers to show the groups listed below some support! 1/25 first up, @patientled: born from our support group, this patient-led, diverse, all-female leadership team was the first to study #LongCovid, with their work recognized by @NIHDirector. All the researchers are people with Long Covid and they emphasize patient privacy. 2/25

📢 Job opening at Body Politic: we are looking for a part-time remote social media manager to help run our IG & Twitter.

Experience with disability justice or chronic illness communities is a plus. BIPOC and LGBTQ+ applicants to the front!

More info: indeed.com/m/viewjob?jk=1… We are hoping to fill this position quickly with a start date in early September.

Applicants should have experience in graphic design and social media strategy and a passion for community-building.

Over the next 3 days we'll be tweeting the IACFS/ME conference! The amazing lineup is available here: iacfsme.org/2021-iacfsme-v…

Tweets by @AlisonSbrana, @ItsAngInLA, & @ahandvanish.

Follow this thread! #LongCovid

1/ Dr. Jarred Younger is up to talk about imaging techniques for neuroinflammation. He has found a way to visualize elevated temperature in the brain and found that people with ME have pockets of heat across the brain - up to 100.8F!

This is related to overactivated microglia.

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📢 Body Politic & our research partner @patientled explain President Biden’s announcement yesterday about #LongCovid disability rights in the US, with quick links to federal agency publications on #LongCovid that patients should bookmark. #ADA31
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wearebodypolitic.com/bodytype/2021/… First, links to publications from federal agencies on #LongCovid yesterday:

- Guidance from DOJ & HHS ada.gov/long_covid_joi…
- For students & educators: www2.ed.gov/about/offices/…
- Employment support @USDOL dol.gov/agencies/odep/…

- @ACLgov resources acl.gov/sites/default/…
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