Today we want to thank all the organizations in the #LongCovid, Covid-19, and disability justice space that we have worked with. We are grateful for the solidarity that exists in this movement + encourage our followers to show the groups listed below some support! 1/25
first up, @patientled: born from our support group, this patient-led, diverse, all-female leadership team was the first to study #LongCovid, with their work recognized by @NIHDirector. All the researchers are people with Long Covid and they emphasize patient privacy. 2/25
next, @MarkedByCovid: as leaders in the grief space, this org provides resources to those who have lost loved ones to Covid-19 and trains their members as advocates. Founded by @kdurquiza, this org centers and is led by those most impacted. 3/25
We are hoping to fill this position quickly with a start date in early September.
Applicants should have experience in graphic design and social media strategy and a passion for community-building.
About us: Our work at Body Politic seeks to destigmatize issues facing the COVID-19 community & people w/ related chronic illnesses & disabilities, by offering alternative narratives that show what it’s like to live with a novel or chronic illness.
Dr. Jarred Younger is up to talk about imaging techniques for neuroinflammation. He has found a way to visualize elevated temperature in the brain and found that people with ME have pockets of heat across the brain - up to 100.8F!
This is related to overactivated microglia.
He talks about how we're repeating research in #LongCOVID and how we need to be focused on treatments & clinical trials right now, prioritizing the drugs we think will work, which he says there are a ton of. We can't wait for a perfect biomarker before we start trials.
One of the main takeaways:
awareness for people with #LongCovid who now realize they may be considered disabled under ADA, IDEA, etc. and therefore may be entitled to accommodations & services that make everyday life activities, work, and school more accessible.