Spent a little time in @Google and will be headed back there sometime. @Wagner_Nephro interesting thoughts. @GavinGiovannoni Just read your post on #MS & Loneliness. Will comment later. This thread reminds me of my worldwide group of Twitter friends. No pressure, Nice People.
I keep remembering a head nurse I had in ICU. She was scolding me for “making waves”. I couldn’t let wrong things just happen like burned out people often do. She said with hint of disdain “You’re always trying to fix something “ like it was a bad thing. Today it’s #Gadolinium 😎
Our worldwide support group of people feel they have distressing symptoms of #Gadolinium retention in absence of renal dysfunction/failure. At least @AuntMinnie can you tell Doctors to keep track of Agent/Dose/Dates of Gadolinium. Check purity? @US_FDA said Is Retained. Huh? Fin
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2️⃣ 👍🏼👍🏼 @FoxNews & @JesseBWatters and observers who were there deny “kill shot” actually means “kill” when talking in a conference to aspiring young journalists. It’s part of doing an aggressive interview for Press/TV/Media. He said Film it! Why would a sniper make a movie 🎥?
@JesseBWatters entire speech left out of many #MSM outlets. Speaks for itself. “Make Sure it’s Legal,” Jesse explained. @MV_Standard Great coverage. One correction: If You believe some @FoxNews are trying to appeal to #antivaxxers ?? I disagree. Fox 🦊 is Pro #SelfDetermination
Here’s what the Victims can do-loved ones of Nursing Home Residents harmed by AC’s Deadly error in judgement likely to protect/benefit owners of Nursing Homes.
Action Steps: Call Ombudsman, Letters to NY Department of Health, NY Licensing & Protection. Copy Hospital, Doctors.
Encourage Hospital and Nursing Home Employees to write letters. Did they Agree with Dumping #COVID19 positive or pending Hospital Patients into Nursing Homes with no preparation, no support, cohorting necessary, spread like wildfire. Incident reports? Risk Management?
Can Somebody test the “Free from Liabilities “ order AC made? I do Not believe that was Legal on any level. It implies nobody can Sue because they followed Governor’s order. I believe that is a lie.
Education is a big part. Empathy doesn’t hurt. I think #pwMS are wise to share among themselves: symptoms, pitfalls, what helps/harms, treatment, diagnosis, assessment. Non #MultipleSclerosis People who Love You cannot understand what You go Through. Try to give them good info 💚
Bumps in the Road shouldn’t be a sign of Failure, but a Detour. Don’t ever beat Yourself up. Don’t waste breath on loved one who can’t hear you. They can go into denial/depression too. It’s important for them to Know-it’s Normal. Sucks but that’s the MonSter I’m referring to 🐉
@Omcgill1 forgot to add ? Was he Lying when
AC stated @CDCgov and @CMSGov told Him to send Vulnerable sick elders Into ill prepared Homed with vulnerable elders? This is Contrary to Standards of Care-Nursing Homes should have been closed to admissions. 🤔 Deadly Airborne Virus 😎
Also, if CMS & CDC made such an order, believe me, HHS would have been involved as well as individuals in each State. Meaning, this would have been a Policy for Every State. Federal Policy. Not a casual phone call ☎️ or text. Weren’t there 4 Democratic Governors who ordered same?
Oh, and I forgot the immunity From liabilities thing that only benefitted the Nursing Home Owners-far distanced from the dangerous futile jobs their employees had to submit to, or be fired. Fin
There’s way too much silence about the extreme negligence of sending patients infected with untreatable high lethality newly emerged respiratory virus to Nursing Homes. @JaniceDean spoke for many victims unable to speak out. I remember You two never backed down to Imus 😎
I knew at the beginning, watching it all from my recliner chair, wishing I could be in the middle of this. Wish I had been a nurse in a hospital dumping patients out (GOMER=Get out of my Emergency Room). I would have refused. I would have sent to Mercy Ship or Javits Center.
If I was Director of Nursing at a Nursing Home where Hospitals were going to dump infected or suspected #covid patients . I would have Closed the Door to New Admissions. I would have allowed limited, controlled,patient visits. Staff came and went. It was cruel.
Excellent article #SmolderingMS
I Accept it as a Diagnosis #MultipleSclerosis
Also Dr. G wants to redefine MS as a Biologic Disease,
Currently a Radiologic Disease-MRI changes guide treatment/verifying relapse. I favor Biologic. Emphasis on Total Body Health.
@GavinGiovannoni For Me, the Patient, Monitoring my Day to Day Function, Symptoms, Impairments, Cognition, Sleep, Mental State, Activity, Trends, Social. If something out of whack, MS Team could be notified. Maybe a phone call, medication tweak, come in for eval, real time.
@GavinGiovannoni in my quest to eliminate #Gadolinium from @US_FDA approved drugs, I have done reading about MRI. I never realized active MS lesions only show up relatively briefly. Yearly MRI’s are a crap shoot. Oh look, there must be a new one…