I have never understood the thinking behind dismissing people’s experiences as psychological. Some even imply unreal by this.

It is a person that suffers. They have a body. Their experiences are embodied.

Their experiences are their experiences. Their reality.

Cont.
Tests reveal nothing of note.

Why just assume that it must then be psychological? Or psychosomatic?

Why not consider the tests as unfit for purpose?

There is always a biology going on.

Maybe the tester does not have the knowledge.

That’s ok to admit.

Cont.
Refer to someone who may have an understanding.

Too many people are still dismissed.

One is too many.

As a society we can do better.

We must.

Especially in the light of Long Covid.

This is an opportunity to re-think.

Cont.
To re-think on a large, public scale.

ME/CFS

Persistent pain

All the conditions that are not easily detected, leaving people feeling unheard, invalidated.

Millions are affected.

Across the globe.

We can make a difference by listening & acting now.

#thepaincoach

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More from @painphysio

4 Jan
Going on a health care placement?

A thread of tips.

#thepaincoach #pain
1. Decide to enjoy the placement

You can set your intent.

Perhaps you have some ideas as to how you are going to approach it.

Your attitude, enthusiasm, willingness etc.
2. See everything you can

When I trained to be a nurse, I made it my business to get around.

I loved the learning.

And seeing as much as I could.

Volunteered for everything.

Unbelievable experiences.

Mainly learning about human behaviour under difficult circumstances.
Read 14 tweets
3 Jan
A thread of key principles to overcome pain.

Of course there are other considerations.

But this is a start.

#thepaincoach #pain #Thread

👇
Understand your pain and symptoms.

A clinician or therapist should be able to help you. They must understand pain themselves and be able to explain it to you, making it personal and giving meaning to your lived experience.

#thepaincoach #pain
Be consistent with your practices through the day.

They could incl movement, specific exercises, ways to create calm, being present, coping skills, skills of being well.

There’s much more you can do in addition, so not limited to the above.

Plus, you’ll have your own ways.
Read 9 tweets
29 Nov 21
No-one relieves your pain - #thread

(1) There is no direct way to ease pain.

It is a change in state (biology) that underpins a change in how you feel.

The change in state comes about via circumstances that are created by the person, and sometimes with someone else

#pain
(2) The way we feel is changing all the time - impermanence.

This is what allows life to be possible.

Whatever state you are in now, it will change.

But, there are things you can do to change state.

Create the conditions for a better state to emerge.

#pain
(3) When someone ‘treats’ you, and I believe there is a place for this, they are working with you to change your state.

There is no button to press; no direct way of relieving pain.

We create the conditions, whether by understanding something, moving, breathing etc.

#pain
Read 8 tweets
28 Nov 21
There’s been an increasing interest in central sensitisation: eg/ a means of diagnosis, courses.

Great on deepening understanding.

But it’s only a part of the picture.

And certainly not an explanation for persistent pain.

(1/2) #pain
(2/2) It would be easy with this to get caught up in the wrong way of thinking about perception.

Input - something happens - output…is not what happens.

Sensory signals the brain receives is only part of the picture. They shape a prediction that’s already been made.
Central sensitisation is going on — it’s a biology.

But it is not a direct cause of pain.

Pain is a perception.

The signals the brain receives can be grounded in CS processes, but that does not automatically result in pain.

We have to generate our experience…. (1/2)
Read 5 tweets
26 Nov 21
A #thread on pacing for persistent #pain

Hope it’s useful.

If so, do share 🙏.

👇

#thepaincoach #pain
1. To pace, you need to know your baseline.

To know your baseline, you need to accept this start point.

Acceptance is tricky. But possible. Sometimes it’s easier and sometimes harder. It is definitely not giving up.

It’s acknowledging where you are now.
2. Pacing helps by organising your activities within windows of tolerance.

You curate good experiences to build upon.

Pushing through etc., is not needed to progress. In fact, pushing usually makes things worse.
Read 12 tweets
26 Nov 21
There are different barriers to overcoming #pain.

One is pre-existing beliefs: eg/ possible causes, the types of things that will relieve it, the types of things that won't, how much influence you have, other people fix me etc.

These are all conditioned, so no blame.

1/2
But some may be right and some maybe wrong.

The more we hold onto them without considering other possibilities, the more we may be following the wrong path.

It's tough.

#thepaincoach
Having expectations that exceed the current possibilities is a barrier.

Part of us says 'you should' or 'you must', so we push on.

Even though this is not the best decision right now.

#pain
Read 5 tweets

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