Cleavon MD 💉 Profile picture
Feb 6 10 tweets 3 min read
🇧🇷 A year and half ago, before vaccines were available, 34 y.o. Dijane Silva from Taquarana Brazil developed a life-threatening condition following a COVID-19 infection that caused her to stop breathing when she fell asleep called Ondine Syndrome #TheySurvivedCovid 1/9
The name is derived from a mythical tale. The nymph Ondine was an immortal water spirit who became human after falling in love. In one of the versions of the tale, she caught her husband having an affair then cursed him to remain awake in order to control his own breathing. 2/9
Ondine Syndrome causes hypoxemia because the brain is unable to detect changes in carbon dioxide (CO2) levels in the body during sleep, which determine the breathing rate. Normally, high levels of CO2 increase breathing, whereas low levels of CO2 decrease breathing. 3/9
The resulting hypoxemia results in confusion, shortness of breath, bluish skin tone and purpling of the lips. 4/9
Ondine syndrome is very rare. When it occurs it is almost always at birth, therefore it is known as congenital central hypoventilation syndrome. There are acquired forms that result from brain and spinal injury or neurodegenerative diseases. 5/9
Dijane Silva was diagnosed with Ondine Syndrome following a sleep study with abnormal arterial blood gases. She is now dependent on a non-invasive breathing machine at night to provide oxygen while she sleeps. 6/9
Her neurologist believes she developed a chronic encephalitis from Covid-19 resulting in Ondine Syndrome. Dijane Silva may need a breathing machine for the rest of her life. 7/9
Dijane Silva lived on a farm, but to receive medical care she moved to the city. She is monitored 24 hours a day by a multidisciplinary team composed of a doctor, physiotherapist, nutritionist and nurse. 8/9
"Today, Dijane is grateful for being alive and shares her suffering so that people can take care of themselves and not run the risk of going through what she went through." 9/9
Rare post-Covid syndrome causes woman to stop breathing while sleeping metropoles.com/saude/sindrome…

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More from @Cleavon_MD

Feb 8
6 y.o. Zyaire Bell from Las Vegas #Nevada underwent more than a half-dozen surgeries as doctors worked to save his life from multisystem inflammatory syndrome in children due to COVID. The medical bill is ONE MILLION dollars. #KidsLivingWithCovid
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Feb 7
🇮🇹 28 y.o. Adriana Tanoni from Aprilia, Italy was 8 months pregnant with her second child when she died from COVID on January 20, 2022. She was turned away from hospital admission three times #PregnantSoulsLostToCovid romatoday.it/cronaca/mamma-… Image
Adriana did not get vaccinated following advice of her gynecologist, as told by her parents, who are demanding justice.
Italian-English Translation Image
Read 7 tweets
Feb 7
🇮🇹 An unvaccinated family of 6 from Enna Italy all died from COVID within a month beginning Christmas Eve. "My fellow citizens are terrified. I just can't understand. Most villagers are vaccinated," said the mayor #SoulsLostToCovid corriere.it/cronache/22_fe… Image
Italian-English Translation below
A family like many. People known by all and esteemed. Retired seniors. Vincenzo described as an honest worker, Concetta was a hairdresser and her sister Maria the housewife. The mayor knew them by sight.
Read 7 tweets
Feb 6
🕯️Moment of silence for 33 y.o. Dr. Li Wenliang, Ophthalmologist at Wuhan Central Hospital in China. On February 7, 2020 he died from COVID after warning the world of a mysterious pneumonia in late December 2019. #SoulsLostToCovid
Rest in peace Dr. Li Wenliang #SoulsLostToCovid
As coronavirus continues to kill thousands per day, it's important to humanize their deaths. These 15 threads are dedicated to the countless #SoulsLostToCovid and #TheySurvivedCovid worldwide. [Click on the photo] twitter.com/i/events/14216…
Read 6 tweets
Feb 6
🇮🇹 Biologist Franco Trinca, one of the coordinators of the “United for free choice” movement made up of various anti-vax associations died from Covid at a hospital in Città di Castello #Italy on Feb 4, 2022. #SoulsLostToCovid corriere.it/cronache/22_fe…
“Trinca has been a supporter of the use of vitamin C pills to treat COVID patients, according to Mediafax. On a TV show broadcast in September 2021, he stated that he did not get vaccinated because he "felt " that he had a good immune system”
“Franco Trinca had also been the protagonist of heated TV clashes with Selvaggia Lucarelli, expressing himself in favor of alternative therapies against covid, such as the use of hydroxychloroquine, vitamin C and flavonoids.”
Read 4 tweets
Feb 6
7 y.o. Finn from Jarrell #Texas was rushed to the emergency room severely ill from multisystem inflammatory syndrome due to COVID. "This was my healthy child, and all of a sudden he's crashing and it just was unreal" #KidsLivingWithCovid kvue.com/article/news/h…
Finn was diagnosed with MIS-C at age 7, a month after recovering from COVID-19.
"After your body has completely cleared the virus, your immune system has kind of gone hyper-inflamed and is overworking and now is gone too high and is fighting something that's no longer there in the body," Dr. Keren Hasbani, a pediatric cardiologist at Dell Children's, said.
Read 5 tweets

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