Centenarians/supercentenarians are one of my special interests but the recommendations for a long life are always frustrating.
It's basically, "be neurotypical, abled and don't be a marginalized person".
Many autistics are introverted (either naturally or exogenic due to trauma), awkward, multiply & repeatedly traumatized, terrified in social situations, and unable to adapt to a hostile, rigid and inaccessible allistic society.
We are passionate, goal oriented & creative though.
"Adaptation strategies" is a bit of a normative dog whistle. Literally everything you do in life is an adaptation strategy. But the dominant culture/neurotype decides which adaptation strategies are valid.
Stimming is a healthy adaptation strategy but is rejected as abnormal.
A child sickened by school, now refusing to go to school, is applying a healthy adaptation strategy, but adults decide it's unhealthy & criminal.
Claiming disability income is an adaptation strategy, to feed and house oneself, but is considered a failure of character.
Choosing a more healthy but still unhealthy samefood is a positive adaptation strategy.
Compromising on the best of two bad situations is a positive adaptation strategy.
But privileged outsiders would only see bad choices rather than carefully calculated decisions.
I have made many healthy but unpopular choices in life that have been misconstrued by ableds/allistics as unhealthy -- because they can't see how inherently unhealthy and damaging their lifestyle is to me.
And of course, there are many things I have no control over, like being able to access healthcare and other services, be safe from government policies, not have people abuse or neglect me.
"Resilience" engenders so much self-blame.
Every time I'm triggered or newly traumatized by something & I feel the cortisol washing through my body, I feel "oh no, that's another few days chopped off my life expectancy."
If only I could control basic biology. 😔 Silly me.
• • •
Missing some Tweet in this thread? You can try to
force a refresh
Just realized that nuclear fusion is an accurate metaphor for #ActuallyAutistic school refusal/non-attendance.
I exerted vast amounts of energy, designing my whole life around this routine, only for a miniscule amount of learning to be generated in return.
The morning routine, the journey to school, being in school, the journey home, and the long recovery period took an obscene amount of time and energy from me.
All of it, in fact.
And the required recovery time was longer than the time available to me.
Say I need a few days to recover from a day of phyiscally being at school ...
I only had a few hours after school. Hours that also required me to eat, do homework, clean myself. I didn't have the energy because of school so those areas deteriorated.
💔 I keep feeling this heartbreak that allistics want to eradicate me. They only want an allistic planet. They consider me to be deficient, broken, sub-human and requiring "prevention" from existing.
Allistics' sense of supremacy is so ironic. They exhibit deficits in so many things, like tolerance, imagination, empathy, rationality, sensory joy, systematizing.
And yet they consider me the deficient one. They're foolish and arrogant.
I can humanize an inanimate object, but allistics can't humanize an actual flesh person like me.
They consider me to have some pieces missing. 50% human, 50% deficit void where the allistic bits should be.
Who has a theory of mind deficit?
Who's the narrow-minded one?
Sometimes I'm oblivious while doing a task because I'm busy fixating on a thought stream, then realize I've finished a task but can't remember what I just did.
So I have to look around me and declare to myself what I just did.
If my age 14 burnout, in which I "regressed" and lost all of my functioning skills, had happened when I was 4 years old, I would have been diagnosed as #ActuallyAutistic in a heartbeat.
In my case, the only difference between "high functioning" and "profound" Autism, is age.
A seemingly functional 14 year old girl with an advanced reading age, doing well in all her subjects, previously a "delight to have" etc ...
... gradually became a non-verbal school refuser who didn't bathe, barely ate, had no friends.
And I still haven't gained those skills back, 11 years later. I am permanently in the "low functioning" camp that allistics are obsessed with.
I can't live an independent life beyond my front door, can't do social tasks, still don't bathe, never finished school & am NEET.
This was something neurotypical schooling just didn't get. I couldn't wake up twenty minutes before school like other people, even if it had been across the road (it wasn't).
I needed 2 hours to process the sensory discomfort of every morning task & mentally prepare for school.