Tamar Tired Profile picture
Feb 17 15 tweets 4 min read
1. Check out this great thread. Here is my own experience in this area. I have an MSc in working effectively with people diagnosed with ‘personality disorder’. This includes service design & critically using various models to inform this, ie. all systems analysis, org change >
2. group theory etc AS WELL AS ensuring needs of SUs met first. Studying as an LXP was f* hard because there was the need to constantly critique this through an experiential lens rather than the tried & tested other disciplines who have loads of academic resources to rely on. >
3. We also had to factor in issues such as the contested and western lens diagnosis designed by people from a certain demographic, how it impacted on people on end users from another demographic and intersectionality. We had to justify our positions academically and demonstrate >
4. their application into current systems, how these could be best designed to meet service user needs. We couldn’t get away with just doing a pie in the sky model. We had to demonstrate how to move the system from its existing position towards this. That includes staff who >
5. don’t want to move, people who have high levels of discrimination towards ppl dx with PD. Because good intentions get sabotaged. How would we foresee this using various models. How we could move hearts and minds along. It was hard f* work, ESP through an LXP lens! So, when >
6. a Lead post to develop PD services - EXACTLY WHAT MY MSC WAS IN - came up, I excitedly went to apply. Then I saw that they wanted a clinician with a professional registration. There was absolutely no goddam reason for this at Lead level. At this level of management, you are >
7. not doing clinical work, you are managing systems. The MSc gave me the necessary knowledge of the clinical areas but I didn’t need to be a trained clinician in each one. Bear in mind that clinicians are NOT trained in org development or service/system design. So the JD was >
8. prioritising skills that could have been covered in lower banded posts and ignoring qualifications essential for the post. I was told I couldn’t apply. I argued it was blatant discrimination, as an LXP I had no professional registration because my discipline had no structures>
9. for this, yet I was more highly qualified to do the work due to having an MSc in THAT ACTUAL FREAKING job. I applied anyway as protest, and gave examples of how the registration aspect could be overcome, ie. Job share. I also stated that since the strategy included >
10. co-production this needed to be considered at all levels of the hierarchy and decision making, in order to meet the baseline of power sharing. Did they appreciate the brilliance of the solution offered (sarcasm alert🚨)? Did they f*. So clinicians with no quals in this >
11. particular specialist area could apply, but an #LXP who had spent 5 years doing an MSc part time whilst managing disability and working could not. I give this example to show how alive and well discrimination towards us is - even when we are MORE QUALIFIED than our peers to >
12. do these posts. The reality is that whilst others hold the power to recruitment decisions, it doesn’t matter how well qualified we are. We are at the mercy of their benevolence, rather than protected by systems of equality. Care co-ordination, as mentioned in @DanniCook5’s >
13. thread is inspired but presently savage discrimination would make it impossible. However… like any good business plan, you start with where you are, where you want to be, and you PLAN HOW TO GET THERE. The excuses some NHS trusts give are not good enough if there is no plan>
14. to overcome the discrimination they have identified. It would not be acceptable for racism, ableism, sexism, discrimination against LGBTQ+ communities. Saneism is not acceptable either… ESPECIALLY from our Mental Health service providers.
15. @threadreaderapp please unroll!

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More from @tamar_whyte

Feb 15
1/Surely this indicates an overt example of discrimination - in this instance, saneism- against #LXP Peer Support Work roles? Is this discrimination on the part of #AgendaForChange #A4C or is it unscrupulous managers writing job descriptions that use keywords to dumb down roles?>
2/This is why we need #LXP senior roles so that we have recruiting managers who work within our discipline who understand the different levels of skillsets required for each type of job & ensure that these aren’t belittled by conflicting internal agendas. Presently no structures>
3/are in place in most organisations to prevent this and #LXP staff are at the mercy of benevolent individuals rather than a robust system to protect them from discrimination in the workplace structures & working environments. That just isn’t good enough. The other issue is that>
Read 13 tweets
Feb 12
This. I am diagnosed with various labels that mean I face stigma in services I access. My job is to use the insight from that to improve those services. The problem is, I face stigma in my job because of those diagnoses too. In order to mitigate the stigma, I got a >
> Masters Degree in the job I work in to so that there would be no excuse for non Lived Experience staff to continue to make decisions in how to co-produce services. Like @keirangoddard1’s question in his thread, this was treated as an obstruction to the status quo, a threat >
> something to be silenced and shown the door. Non LXP staff have ensured that future co-production will not be developed by specialist LXP staff trained in the areas of mental health they work in, as well as being trained >
Read 6 tweets
Jan 7
PLS RT: Does anyone know of any #LXP (Lived Experience Professional roles ie. Peer Support Workers, Lived Experience Researchers) that have reached Employment Tribunal stage for Disability Discrimination in the UK? All I’ve heard of reach settlement before court stage #MadTwitter
Employment & Equality of #LXP’s is something that I’m trying to build understanding of because presently it is disparate and isolated by employer or even employee. I hadn’t realised til recently that there have been quite a few Tribunal applications >
> for discrimination at work, however all I have heard of where settled prior to court. I can’t find any examples of one going to Employment Tribunal Court. I’d really appreciate if people could put this out there so I can discover & collate any examples. They will be of great >
Read 5 tweets
Jan 1
Doing a Daisy 🐈 all day today. It’s been the morn/afternoon/eve after one of the crazier NYEs in my life. But every New Years Day is a reminder of Mum. 21y, but still remembering today. The shock of learning that #Epilepsy kills. She never made a big deal/complained about it 💜>
2/ Apart from a disabled rail pass she never really seemed ill. She somehow managed 4 very strong minded kids and a difficult life. Her life got more and more difficult as her life went on and her last 7 years were very sad indeed, she was physically very disabled & very unhappy
3/ That’s the saddest thing I remember. Her being sad and having had such a shitty life, especially at the end. I think of her as a very loving Mum who was a real homemaker and an incredible cook. She could could anything. Whip up meals for a family of six out of leftovers. >
Read 17 tweets
Nov 18, 2021
1.Lots of feelings today. I’m in the middle of trying to officially get discrimination and inequality recognised. It’s really hard. I’m so fucking tired and sad. I want to fast forward to an open court where I get to say what’s happened and it’s done & over whether I win or not >
2. I’d have been happy with a systems change that would have addressed inequality. Most people can’t cope with how awful this process is and you never hear about other Lived Experience Professionals (Researchers, Peer Workers etc) who have raised grievances because >
3. organisations often give a settlement payment to keep it from going to tribunal. I don’t think anyone could offer me a big enough sum to do that. It would need to be so big they’d never, ever do that again to anybody because they couldn’t afford to. >
Read 9 tweets
Nov 17, 2021
1. Back when I was diagnosed with EUPD in 2005 I did the usual Google thing & found @Quora. I’ve never bothered unsubscribing & I keep getting email bulletins with Q&As from people who detest ‘toxic Borderlines’ and are rampant Royalists. Yet I STILL haven’t unsubscribed >
2. It winds the everlasting f* out of me, I get torn between responding to the worst of the bile & misinformation posted (bad idea: too much energy), to unsubscribe (good idea💡) or to observe occasionally (brave: a step outside my personal social media echo chamber) >
3. It’s also a reminder that even for most of the differences of opinions on Personality Disorder/‘Personality Disorder’/Trauma & it’s treatments, most of the people (clinicians/non-clinicians) taking part in these conversations care enough to do so, whether we agree or disagree>
Read 9 tweets

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