...founder of @Survivor_Corps, an advocacy group of over 200,000 members with current, chronic or past COVID-19.
2/
“When we're talking about #LongCovid, I want you to think abt our members who are in their early 30s, who were athletes, who were marathon runners, at the height of their career, who are now in wheelchairs; they're on permanent feeding tubes, they are disabled,” Berrent said."
3/
“When we looked into what the one symptom was that was most predictive of long COVID — was it having a cough, was it having a fever? No," said Berrent. "It was being asymptomatic."
4/
"So you have to remember that most of these people were not hospitalized. They had what are considered mild cases of COVID or asymptomatic cases, and they are largely the healthiest among us.”
5/
"On an individual level, Berrent said Survivor Corps receives suicide threats daily from members experiencing long-term symptoms.
“They might have their lives, but their livelihoods have been ripped from them,” she said."
6/
“And so this is more than just fatigue. This is more than just anxiety. These are lives that are ruined ... We have had many members actually take their own lives."
7/
"So that is what we're talking about here. That’s not from depression. That's from having no hope for the future because their symptoms are so ravaging.”
/end
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"We need a national, long COVID suicide hotline yesterday," Berrent said. "Mental health is a huge part of this, but I also want to be clear: There are neurological issues going on that need to be treated medically."
2/
'She said she is frightened by the long-term repercussions for pediatric COVID-19 patients."
3/
Could antihistamines help relieve #LongCovid for some?
This is a small study but it's supported by real world evidence and needs further investigation. 1/ gizmodo.com.au/2022/02/antihi…
"These cases were even brought to the attention of these researchers, primarily from the University of California, Irvine, through members of Survivor Corps, a long covid advocacy group hosted on Facebook." @Survivor_Corps@UCIrvineHealth
2/
"But near as they can tell, these are the first case reports in the literature to document the potential of antihistamines for patients with long covid, also known as postacute sequelae of SARS-CoV-2, or PASC."
3/
"One study showed that as many as 52% of teens and young adults between ages 16 and 30 may experience lingering symptoms 6 months after having COVID." @Salon
"Doctors and researchers are anticipating more #LongCovidKids cases stemming from the omicron variant, given the statistical magnitude of the spread, and the increase in pediatric infections."
"As I've talked to people who are experiencing this, there are some who just find no peace. Their bodies are no longer under their control and these symptoms are creating a living hell for them," - @hmkyale 1/ #LongCovid@TODAYshow today.com/health/do-coro…
"I've talked to maybe five or 10 people who have contemplated taking their lives because the symptoms are so severe."
2/
"The idea for the paper originated with the harrowing experience of Heidi Ferrer, a television & film writer who "had severe manifestations of the sensations of vibrations" the authors wrote. She found the symptoms intolerable and died by suicide at 50 in May 2021." 3/ @NickGuthe
My husband took my kids to eat indoors at a restaurant tonight and... 🤯🤬🤯
OMG I've been out of town for two weeks and he just admitted to taking them to dinner indoors Every. F*cking. Night. I don't know whether to be angry 🤬 or cry 😢