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Feb 22, 2022 7 tweets 6 min read Read on X
How can we resolve #LongCOVID symptoms? Patients ‘feel like they’ve aged 20-30 years overnight’ or ‘couldn’t make a cup of tea’ says @MMcNarry @SwanseaUni at #LongCOVIDConference. 1/6
Shortness of breath is one of the major symptoms. Traditional pulmonary rehabilitation is difficult to implement on scale. We require a ‘highly individualised approach to help those experiencing #LongCOVID’ says @MMcNarry #LongCOVIDConference 2/6
Respiratory muscle training helps to strengthen the breathing muscles, worked for other types of respiratory conditions. @MMcNarry carried out study, where participants used a small handheld breathing device. This tracked every breath & gave participants instant feedback 3/6
After 8 weeks, there was a very large decrease in breathlessness in the intervention group compared to the control group physoc.org/news_article/h… 4/6
Intervention group says that there were improvements every week. They reported being able to do activities that they couldn’t do before, some reported being able to go to work again, and some reported a decrease in anxiety - @MMcNarry #LongCOVIDConference 5/6
This low cost, home-based rehabilitation programme could be scaled up and implemented in collaboration with healthcare providers to assess its feasibility in a real-world setting - @MMcNarry presenting at #LongCOVIDConference 6/6
Handheld breathing device could reduce breathlessness and improve physical fitness in #LongCOVID patients -@MMcNarry @SwanseaUni presents new research at #LongCOVIDConference. The intervention was developed by a UK-wide team of breathing experts physoc.org/news_article/h…

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More from @ThePhySoc

Feb 22, 2022
Aaaand that’s a wrap for day 1 of our #LongCOVIDConference! Thank you to all speakers and attendees! We end the day with an excellent panel discussion with @MMcNarry, @ollieosul and @Breathe_to_win, chaired by @hugh_montgomery.
@hugh_montgomery “What's the relationship between asthma and #LongCovid?
@ollieosul – “It seems ppl with asthma in the military fared similar to those w/o asthma
@Breathe_to_win “we were preparing for a devastating effect on asthma patients, but that wasn’t borne out”
Q: “If you were to get #COVID, would you rest & wait or try to improve your outcome through exercise” @hugh_montgomery
A: @Breathe_to_win “Data into other infections suggests light exercise if able is beneficial. Rest for 48h and then if symptoms allow – light exercise.
Read 4 tweets
Feb 22, 2022
In Brazil, response to chikungunya offers a comparable: "What made chikungunya crippling to the health system is that a small % of people who get it go on to have chronic symptoms which then have a huge impact on people and livelihood." - Prof @Daltmann10 1/4
#LongCOVIDConference Image
Awareness and knowledge are changing through the pandemic. We’re building better evidence as time has gone.
A #LongCOVID biosignature offers a diagnostic test to help us understand what’s gone wrong and where to go next. 2/4
#LongCOVIDConference Image
Omicron is significantly different form previous variants – we don’t know how it’ll affect #longCOVID and what the future holds. 3/4
#LondCOVIDConference Image
Read 4 tweets
Feb 22, 2022
‘Long COVID is an uncharted pathophysiology’ We’re still none the wiser in decoding the unknowns. Is long COVID a story of months, years or lifetime?
Prof Danny Altmann @Daltmann10 speaking at the #LongCOVIDConference 1/5
If 10-20% COVID19 infections lead to #LongCOVID. We already face a legacy of 20-240 million long term cases to manage globally 2/5
#LongCOVIDConference
A lot of the research effort at the beginning was purely observational and not interventional. Now we need to manage patients well and offer therapeutics. 3/5
#LongCOVIDConference
Read 5 tweets
Feb 22, 2022
Paul Edison of @ImperialBRC spoke about the neurological complications of #COVID19 and #LongCOVID and the wide range of tissues and systems it affects.
#LongCOVIDConference 🧵1/5 Image
#LongCOVID can trigger high level of inflammation and consequent cause damage in the brain and other organs, or blood clotting, leading to a "perpetual and viscous cycle" of chronic symptoms. 2/5
#LongCOVIDConference Image
There is no single impact either. Examples of patients scans show inflammation, ischemic lesions, haemorrhagic transformation, and microhemorrhages.
“So you can see any pattern of involvement in the brain”- says Dr Paul Edison @ImperialBRC 3/5
#LongCOVIDConference ImageImage
Read 6 tweets
Feb 22, 2022
"Long COVID is a patient made term, experienced by non-expectant risk groups. Approximately 1 in 10 experience #longCOVID not fully recovering"- @Dr2NisreenAlwan of @unisouthampton in the first session at our #LongCOVIDConference 🧵1/7
#CountLongCovid
In the initial reporting, there was a large focus on death and survival. But "LongCOVID does not paint a black and white picture," says @Dr2NisreenAlwan. The grey area of chronic post-viral illness is missing from the narrative. 2/7
#LongCOVIDConference
Even now, #LongCOVID is unacknowledged by UK policy makers and is missing from health policy discussions, despite 1.3 million people suffering from the condition. (data from ONS survey) 3/7
#LongCOVIDConference
Read 7 tweets

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