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Hannah Davis

@ahandvanish

Mar 10

There's a big reality gap right now between people who are actively staying on top of COVID research & those who just trust the current guidelines. There's no judgment here, but I'd like to try to communicate the worldview of the former based on what we know about COVID now:

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The US has chosen to prioritize the economy despite strong, countless studies that COVID harms many people, even those without #LongCovid or hospitalization. COVID predominantly affects the *vascular* system (the blood vessels), causing harm to the blood cells & blood flow;

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this has a downstream impact on nerves, immune system, & multiple organs, including the brain. Vaccination prevents against death, but not against long term damage.

3/

Read 13 tweets

Hannah Davis

@ahandvanish

Mar 10

More evidence that you're not out of the woods if you initially recover from COVID!

In a group of COVID patients, 43% had *delayed* onset of cognitive #LongCovid (1-6 months after infection). The delay was associated with a *younger* age (average 39).

ncbi.nlm.nih.gov/labs/pmc/artic… 1/

@patientled

This supports our @patientled data showing that the onset of neurological #LongCovid symptoms often happen later after the acute onset, especially between 1-3 months later:

https://twitter.com/ahandvanish/status/1343293617914458112?s=20&t=Q3gg1oTrx4dVAq6Ab5lvhQ

From the first paper: "Mechanisms that may have a delayed onset include microvascular injury, persistent immune activation, and a post‐infectious autoimmune response." #LongCovid

3/

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Hannah Davis

@ahandvanish

Feb 11

I think a lot of people assume #LongCovid is a continuation of the acute COVID symptoms, that just take a long time to get over.

In reality it is an often delayed onset of *new* neurological, immunological, cardiovascular, and systemic symptoms.

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We know a lot about #LongCovid by now. We know it has complex, multi-systemic, interlinking causes, including microclots, deformed blood cells, immune system dysfunction, dysfunction of mitochondria (which are responsible for energy production - dysfunction is a big deal!)

2/

We know enough about #LongCovid to know it's not a simple illness, & is causing major systems of the body to become dysfunctional in ways that medicine is not yet advanced enough to fix.

We know for many manifestations, incl dysautonomia, microclots, ME/CFS, there is no cure. 3/

Read 7 tweets

Hannah Davis

@ahandvanish

Feb 7

Some evidence suggesting that #LongCovid patients might be more susceptible to breakthrough infections:

1/

“The team found that [LC patients have more autoantibodies], & that as autoantibodies increase, protective SARS-CoV-2 antibodies decrease. This suggests a relationship between #LongCovid, autoantibodies and patients at elevated risk of re-infections.” 2/

bloomberg.com/press-releases…

“Many patients with high autoantibodies simultaneously have low (protective) antibodies that neutralize SARS-CoV-2, and that’s going to make them more susceptible to breakthrough infections,” said Daniel Chen, a co-first author of the paper.” #LongCovid

3/

Read 4 tweets

Hannah Davis

@ahandvanish

Feb 4

@patientled

Thank you to Mike for this piece on our #LongCovid work at @patientled & @itsbodypolitic in the context of what we're up against: a long history of medical gaslighting. Many illnesses (AIDS, cancer, MECFS, colitis, MS) were dismissed before their biomedical cause is found. 1/

https://twitter.com/mikesmariani/status/1489286258647916551

@mikesmariani

The toll of doing advocacy in this environment is high (for us now, & also everyone who came before us).

It's been hard for me to be this vulnerable about this experience so extra thanks to @mikesmariani - a #pwME himself - for treating this topic with grace. 2/

The gaslighters are loud, but they're a minority. And they are quickly being shown to be not just historically cliched, but medically wrong, given how much #LongCovid research is already available. 2 years into this we already have evidence of...

3/

Read 7 tweets

Hannah Davis

@ahandvanish

Feb 1

@RepPressley

Thank you so much to @RepPressley for meeting with leaders of the #LongCovid & disability community to talk about major treatment, research, and policy needs, and her call to the CDC to #CountLongCovid!

Our full conversation is available here:

1/

@patientled

Thank you to all the advocates (representing @patientled, @itsbodypolitic, @C19LH_Advocacy, @UTc19LongHaul & others) who spent energy giving amazing testimonies: @LisaAMcCorkell, @chiluvs1, @netiamccray, @LisaOBrienn, @SeeMiaRoll, @K_Bishof, @rubyslippahs, @annwlace409 & Molly 2/

A thing that stood out to me: Dr. Bateman (1:02:59), who spent her career seeing v disabled ME patients, saying:

"I was completely stunned by the disability & severity of illness in #LongCovid...the amount of cognitive impairment & physical impairment is just unbelievable."

3/

Read 6 tweets

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