#SuperRareBears and #Elrond #community, we are family & want to look out for each other.

It's with this in mind that we have some heartbreaking news
@dnsv123 Son, Victor has recently been diagnosed with a rare condition known as SMA type 1.

#🐻to make a change
#actNow #SRB Image
The main treatment is Zolgensma by Pharma company @Novartis costing $2.1 million😱

Spinal muscular atrophy (SMA) is a genetic condition that makes the muscles weaker and causes problems with movement. Image
It's a serious condition with type 1 being the worst, chances of survival without treatment are slim

There are a few treatments available, although not a cure, they can improve quality and prolong life
Disease-modifying therapy: These drugs stimulate production of SMN protein. Nusinersen (Spinraza®) is for children ages 2 to 12. A different medication, risdaplam (Evrysdi®), helps adults and children older than two months. People take risdaplam daily by mouth (orally).
Gene replacement therapy: Children younger than two may benefit from a one-time intravenous (IV) infusion of a drug called onasemnogene abeparvovec-xioi (Zolgensma®). This therapy replaces a missing or faulty SMN1 gene with a functioning gene.
The issue is these drugs have a massive price tag.

Zolgensma, which is likely the best option is known as the worlds most expensive single use drugs with a massive $2.1 million price tag. It's manufactured by Pharmaceutical company @Novartis
They have programs which offer the treatment for free to certain people and countries.

Victor is located in Romania, our appeal today is to @Novartis, to provide treatment for a discounted price.
We as a community will help raise funds ,but 2.1 million is a very high target.

@ElrondNetwork community, do your part and let's help spread this message

Let’s give him a chance to walk and live!

🐻to make a change

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More from @SuperRare_Bears

Feb 16
Distribution phase 1.1 completed 80% , a snapshot of all #SuperRareBears holders has been taken.

Each unique address will receive an #Abominator #NFT 💉☢

This rewards every holder, regardless of the amount of 🐻s they hold.

#EGLD #SRB #REWARDS #ELROND #COMMUNITY
FAQ below 🔽 #EGLD

1.What does the Abominator do?

When used in conjunction with your SRB NFT it mints a new NFT (SRB Abomination) and burns the Abominator syringe

👇
2. How many NFTs are in the SRB Abomination collection?

There will be 3999 randomly assigned NFTs, of which several Ultra Abominations will be animated

3.When can I use the Abominator?

Once the collection has been completed, est time ~3 months
Drawing had already started
Read 7 tweets
Feb 9
#SuperRareBears, do you want your own 🐻 personalized with #NFT bot with our partner @thenamebots ?

Well we have just the contest for you!

There are 10 custom bots up for grabs, 5 for winning the contest, 5 for random participants.

See below for rules👇

$EGLD #NFT #SRB
1.🔹Create a Meme or Art work related to this Collaboration🐻🤖
and tag @ three 3️⃣ friends

2.🔺Post your Art work as a Tweet using hashtags #rarebotart #thenamebot
#SuperRareBears and $EGLD

3.🔸Comment with your #Maiar Herotag

4.Follow all of our Socials
Read 4 tweets
Feb 7
Why do we like Effort Economy and their P2E Bengga APP?

Where should we start?🐻
Thread 🧵 following 👇

#Effort Economy is a complete platform offering opportunities to earn digital assets on #Elrond chain by engaging its users in various activities,
#EGLD #BUIDL $EFFORT #SRB Image
2/
Including play to earn, creating content online and purchasing related products.

Participants in the Effort Economy will be rewarded in $EFFORT ESDT which is running on Elrond chain allowing for fast transactions and minimal cost for transfers( $ 0.03 for TXN)
3/

The $EFFORT token has already been verified and will be listed soon on #Maiar DEX

Bengga APP has already been a hit with an excess of 130k on Beta release, we will soon be able to see our 🐻 in the APP along other valuable NFT Projects running on Elrond
Read 5 tweets

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