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LymeDisease.org Profile picture
@Lymenews
May 6, 2022 • 21 tweets • 11 min read • Read on X
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Next speaker
Alison Rebman, MPH
Instructor in Medicine @HopkinsMedicine
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
The history of Lyme disease. First detected in Europe 5,300 years ago.
#LymeDiseaseAwarenessMonth ImageImage
Alison Rebman, MPH
We know that Lyme disease is underreported by a factor of 10-12 fold.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
A better way of monitoring Lyme disease cases is to monitor the number of positive tests.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
Other data sources for Lyme disease.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
Another data source for predicting #Lyme disease is veterinary data.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
Another source for Lyme disease is to track the search engines.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
There currently is no way to track how many patients remain ill after being treated for Lyme disease.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
Lyme disease diagnosis peaks in the summer months.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
Lyme disease is found throughout the U.S.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
The number of Lyme disease is steadily increasing.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
Lyme disease is increasing not just in the East but also in states where we don't traditionally associate like Oregon.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
Lyme disease data sets throughout the world.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
There may be sex/gender differences in Lyme disease
#LymeDiseaseAwarenessMonth ImageImage
Alison Rebman, MPH
Demographic data indicates patients of color tend to have delayed diagnosis.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
Interesting study on racial differences in Lyme disease.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
Education level & socio-economic status affects all medical conditions including Lyme disease.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
Why the demographic differences in Lyme disease?
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
Delayed treatment and females are at higher risk of chronic symptoms of Lyme disease.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
There are many factors associated with increased risk for Lyme disease.
#LymeDiseaseAwarenessMonth Image
Alison Rebman, MPH
Conclusion: Data source is important for Lyme disease. Hopefully with the increased understanding of Long COVID we will have a better understanding of Long Lyme.
#LymeDiseaseAwarenessMonth Image

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More from @Lymenews

LymeDisease.org Profile picture
Aug 30
In 14 days the California Board of Pharmacy (BOP) could vote to restrict a long list of legal and widely used natural compounds. This discussion and potential vote will take place at their 9/12 public board meeting.
Learn How You Can Help 🧵 1/ Image
1. Sign and share the petition today! (or link in bio)

2. Alert your representatives: Visit to find them. Not in California? No problem. You can still contact Gov. Newsom to defend your California neighbors! 2/change.org/stopthebop
findyourrep.legislature.ca.gov
3. Call or email The BOP your objections: 916-518-3100 or debbie.damoth@dca.ca.gov
4. Attend the 9/12 Board Meeting via Webex or in person and exercise your 1st amendment right by giving a public comment! Access links and instructions will be available at stopthebop.com/actnow
Read 5 tweets
LymeDisease.org Profile picture
May 7, 2022
Dr. Scott Commings. Beyone Meat: What alpha-gal syndrome teaches us about the immune response to tick bites.
Dr. @scott_commins says they first began to notice patients complaining of delayed reactions to beef in mid-2000's.
Commings says Initially the only test they had for Alpha-gal was a two step skin test.
Read 13 tweets
LymeDisease.org Profile picture
May 7, 2022
Next is Dr. @aucott_john on Lyme disease and infection associated chronic illness. Lessons from COVID Long Haulers and ME/CFS.
Infection associated illness is not new. #LymeDiseaseAwarenessMonth
Dr @aucott_john quickly noticed the symptoms of #LongCOVID were very similar to #LongLyme. Can occur in patients with mild illnesss. Something similar in how these diseases are affecting humans (P.S. Long-haul does not occur post-flu.) #LymeDiseaseAwarenessMonth
Patients with chronic illnesses are often disbelieved. It is difficult as there are no diagnostic tests to prove "Long haul" is real.
Read 16 tweets
LymeDisease.org Profile picture
May 7, 2022
Jeff says they were able to present the @liv_lyme @TicktrackerAPP to the The National Association and County and City Health Officials (NACCHO) and the Centers for Disease Control and Prevention (CDC) during Vector Week. #LymeDiseaseAwarenessMonth
Since it's launch in 2018 @TicktrackerAPP has had over 8,000 submissions. Submissions peak in May-June. American dog tick was number one tick identified. #LymeDiseaseAwarenessMonth
Detail on @TicktrackerAPP submissions. They are working to improve the program to help better identify ticks especially nymphs. #LymeDiseaseAwarenessMonth
Read 5 tweets
LymeDisease.org Profile picture
May 7, 2022
Tickborne Disease Updates from Sue Visser, DrPH, MS Associate Directors for Policy and Extramural Program @CDCgov Division of Vector-borne Diseases Image
Visser pointing out that surveillance is comes from the states. ImageImage
Visser. Pointing out the challenges and opportunities for #LymeDisease surveillance. #LymeDiseaseAwarenessMonth ImageImage
Read 7 tweets
LymeDisease.org Profile picture
May 7, 2022
Dr. Jayakumar Rajadas on the striking similarities & possible therapeutic options for #LongCOVID & #LongLyme #LymeDiseaseAwarenessMonth
Dr. Rajadas, a pharmacologist by training, finding doxycycline is not clearing infection in the lab. However, mitomycin & azlocillin are working well. Prefers fewest number of molecules as treatment option (1 or 2 at most). #LymeDiseaseAwarenessMonth
Rajadas finding TLR2 interaction in both Borrelia and SARS-Cov-2 surface proteins, also elevation of quinolinic acid. #LymeDiseaseAwarenessMonth
Read 9 tweets

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