Discover and read the best of Twitter Threads about #Lyme

Most recents (14)

I have a brain tumor/IIH & such severe intestinal damage that I can't digest food w/out enteral food RX.
It's $198/mo even w/a pharma scholarship.
My now 77-year-old mom is my caregiver & she can't afford it.
We get $64/mo for food + trying to save home. Please help!
In 2011, I was bitten by a tick. I contracted E. Chaffeensis, Rickettsia, & Lyme. I wasn't treated for 11 mos. The bacteria went to my spinal cord/brain.
Please help us 💔
#Lyme #IBD #Fibromyalgia #Spoonies
During 1 of my numerous hospitalizations, I caught Vanc-resistant C. Difficile for 3.5 yrs & had to have 2 FM transplants.
I can't digest/ absorb food w/out EnteraGam.
It's norm. $1600/mo but I get a pharma discount, making it $198/mo. My 77-year-old mom still can't afford it.
Read 8 tweets
I was bitten by a #tick in 2011 & it's turned my worle upside down!
I was a practicing trial atty & am now on a walker.
I contracted E. Chaffeensis, Rickettsia of unknown et., & #Lyme.
I wasn't treated for 11 mos. By then, the tick bacteria had invaded my spinal fluid/brain.
Read 12 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
Please help us! 😭
Can't afford next mos.' RX @$198/mo necessary to digest/absorb food.
My now 77-year-old Mom is my caregiver. We get $64/mo for food (long gone) + trying to save home.
#Lyme #SaveOurCare
#Fibromyalgia
#IBD
Even $5 or $10 will help + RTs are free. 🙏
I was bitten by a #tick in 2011 & it utterly destroyed my life.
I contracted E. Chaffeensis, Rickettsia, & what was later found to be #Lyme.
I wasn't treated for 11 mos. By then, the bacteria had invaded my spinal cord + brain.
#LymeDisease #healthcare #tick #foodstamps
Read 16 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
Please help us! 💔
I was a practicing trial atty when I was bitten by a tick. I contracted E. Chaffeensis, Rickettsia, & what was later determined to be #Lyme.
I also contacted Coxsackie B4 virus-a cousin of polio. I wasn't treated for 11 mos. I have lost most use of my left side (I'm left- handed)
Read 17 tweets
1) Few know the realities of today's tick borne diseases.

#RollCall ==> House orders #Pentagon to say if it weaponized ticks & released them
rollcall.com/news/congress/…
What this fails 2expose, at this time, is that the #PlumbIsland genetics lab, likely unwittingly began, a chimeric
2) nightmare when they introduced GM #Syphilis in2 the parasite's life cycle.
Today's #Lyme is hard 2detect w/the test available 2the average person.
The hoped4, end result, which was the goal of their efforts, long ago began 2change.
Bacterium have coupled w/viral & fungi
3) agents, which are carried by ticks which carry the infectious #Spirochete Borrelia burgdorferi. This is the mode of transport in nature for #Syphilis, a slow phased killer, which first debilitates those it infects, hence the move 2create for war theatre introduction.
Read 3 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
I waa bitten by a tick in 2011 & not treated for 11 mos.
Went to the Mayo Clinic-found Coxsackie B4 virus (a cousin of polio) which left me w/out most use of L side (L handed 😪).
I caught Vanc-resistant C. Difficile, had 2 FM transplants & need RX @$198/mo just to digest food.
Drs back in Louisville eventually discovered tick bacteria (E. Chaffeensis, Rickettsia of unknown etiology, & #Lyme-Dxd 1 yr later). All went to spinal fluid & brain.
Have had 8 spinal taps.
3.5 yr C. Diff/2 FM transplants left me unable to digest food w/out enteral RX @$198/mo.
Read 6 tweets
[1] When @Comey was fired, what was in his desk drawers ?

* An ENTIRE #Levinson folder - A handy contact for routing drugs and uranium through #Iran
* Two whole folders on "Going Dark" (WTF?)
* CDC Documents (FU Rosenstein - #Lyme is real)
* "HAIR Review"

HAIR Review?
[2] "HAIR"

One Initialism : "Honore Accepto Impensam Reliquit"

In fact its the only initialism I can find for HAIR
[3] Thanks to @CultKashmir , we have another one (perhaps more practical) :
HAIR = " HUMA ABEDIN INTEL REPORT "
Read 4 tweets
#LymeAwarenessMonth
B4 I was bitten by a tick in 2011, I was a practicing trial atty.
I must now use a walker & my 77-year-old mom is my caregiver. She helps me bathe/dress & is my driver.
She can't afford the @$198/mo I need to digest food. We get $15/mo -foodstamps
SOS #help
*$198/mo RX* EnteraGam
It's normally $1600/mo but I get a pharmaceutical scholarship from the manufacturer.
I normally have 2-3 Dr appts/wk. I was just in the hospital AGAIN last month: approx. 8th time, excluding ER visits.
I can't eat w/out this RX.
Please help us 💔 😭 #Lyme
Trying my best to stay upbeat, positive, & RESIST!
I make 5 calls to my MOC every day & use @resistbot.
I can't participate as fully as I would like but I am doing my best.
Please read our story above or on my & my mom's (@DemForLife3) pinned Tweets.
Plz put in any RT rooms. 💔
Read 14 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
Please take a moment & read our story. 💔
NEWS!
I just found out that I will be getting $514/mo for SSI but that has to go towards our home & bills/food.
I still need help w/$198/mo RX.
Also received notice that foodstamps will be CUT to $15/MONTH! 😭
Who could possibly eat on 50 cents a day or survive on $17.13/day?
Read 20 tweets
Thread
She takes care of ME-Life sure has a sense of humor.
#MothersDay
My brother we lost in an auto accident at age 19. #MothersDay
My best friend and reason for fighting my illnesses. #MothersDay
Read 25 tweets
Sur Insta, on m'a souvent reprochée d'être virulente contre les médecines alternatives ou les maladies "non reconnues". Je reçois parfois des messages "je sais que t'es contre, mais pour moi ça a marché, alors je partage quand même avec toi" #DONT
Voilà pourquoi ⬇
2010, je viens de me fiancer. Je prépare mon mariage et mon M1 MEFEA (pour prof d'anglais). Ma soeur a toujours eu une santé pourrie. Ma mère a passé sa vie chez les magnétiseurs, rebouteux et autres homéopathes. Culpabilité maternelle oblige face à la santé de son ainée
ma mère cherche depuis toujours "une cause" qui expliquerait pourquoi ma soeur a une santé si défaillante. Et pourquoi elle aussi, au passage, souffre de tant de choses inexpliquées (mon diag subjectif de personnel non médical : trauma psy sur trauma psy ça aide pas à aller bien)
Read 27 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
In 2011 I was bitten by a tick. I have a brain tumor/IIH & such severe intestinal damage that I CANNOT digest food w/out enteral food RX. It's $198/wk, even w/pharma discount. My (now) 77-year-old Mom is my caregiver but she can't afford it. Don't have enough to eat/save 🏡. 😭
I contracted E
Chaffeensis, Rickettsia of unknown etiology, & #LymeDisease. I just had 8th spinal tap to relieve pressure on my brain.
I'd been on antibiotics for 19 yrs.
I caught Coxsackie B4 virus-a cousin of polio. Lost most use of (L) side.
I wasn't treated for 11 mos. #Lyme
Read 17 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
Please read my mom's gofundme & help in any way possible. We are struggling to survive. RTs help. 😭
In 2011 I was bitten by a tick (after being on antibiotics for 19 yrs). My rescue dog was bitten & died the next day. Wasn't treated for 11 mos- I had E. Chaffeensis, Rickettsia, & prob.#Lyme in spinal fluid & brain. Caught Coxsackie B4, cousin of polio & lost most use of L side.
Read 10 tweets
The heavy-handed (totally out of context) physician commentary on the cases of patients they have never seen or interacted with is so irresponsible. #Afflicted
I have *never* heard of some of the doctors commenting on Jamison's case. This means they don't regularly see ME patients, don't research the disease, and have zero clinical or research expertise. #Afflicted
They filmed at a Stanford symposium that included top researchers from around the world, yet decided to use totally unrelated, nonexpert interviews to comment on Jamison's case in order to convey a POV that fit their narrative. #Afflicted
Read 106 tweets

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