Discover and read the best of Twitter Threads about #Lyme

Most recents (24)

7 million people across the world are infected with #chagas disease, according to the @WHO #ph260720
Don’t know about #chagas? You’re not alone. Nearly 90% of those who are infected don’t even know. #ph260720 world-heart-federation.org/resource/infog…
Kiss of death? This kissing bug transmits typanasoma cruzi, the tiny parasite that causes #Chagas. #ph260720
Read 10 tweets
Exciting news: We have just take on a second PhD student on a project exploring factors in the blood in ME/CFS #pwME and Chronic Lyme #lyme. We will test the energy modulating properties of samples from patients in different cell models. @MEAssociation #LongCovid
We will be use models to assess candidate factors including anti-microbial peptides, viruses, L-form bacteria and human retroviral elements. The project will further develop our diagnostic work bringing in our two partners ilof.tech and zegami.com.
We have funding for year 1 of the new PhD.
This takes us from 0 people, to 2 excellent PhD students on 3 year programmes. A really positive move forwards!! The support teams are taking shape including new areas of expertise, ethics and recruiting patients are new areas for us.
Read 8 tweets
Let’s discuss #LymeDisease #vaccines.

The topic is getting a lot of play lately, and I’m seeing people who have been socially programmed to hate “antivaxxers” jumping on the “antivaxxers killed the Lyme vaccines” propaganda short bus.

🧵
First of all, the #Lyme vaccines killed themselves. Let’s just be clear on that, once and for all. OspA in any form is not a vaccine. It is one of many lipoproteins expressed on the surface of Borrelia, the organisms that cause #LymeDisease. #LYMErix was recombinant OspA.
You can’t inject these lipoproteins… because…why would you do that when the ticks are perfectly capable??? 🤦‍♀️
Read 33 tweets
Draadje over #LongCovid. Voordat ik in de eerste golf corona opliep had ik een geweldig leven. Ik was 32 jaar, gezond en werkte fulltime als museum conservator. Ik sportte meermaals per week en ik was gelukkig. Nu verlaat ik al 1,5 jaar amper het huis en kan ik niet meer werken.
Ik ben oa zo slecht geworden doordat ik het eerste driekwart jaar steeds maar weer probeerde, enorm over mijn grenzen gejaagd werd door fysio's, psychosomatische fysio’s en artsen die het niet serieus namen. Nu heb de diagnoses #POTS en #ME/CVS.
#Longcovid is geen grap, het is ivaliderend en dit moet uiterst serieus genomen worden. Hoewel bewustwording traag toeneemt, blijft hulp en kennis van de aandoening nog ver onder de maat. Nog te veel fysio’s houden geen rekening met #PEM.
Read 8 tweets
Here are some of my favorite books, usually memoirs, written by authors showing how life-changing disease transforms us physically, mentally, and spiritually. These are my inspirations in my writing:
First is brain surgeon Paul Kalanithi’s memoir “When Breath Becomes Air.” The 2017 Pulitzer Prize finalist chronicles his journey through fatal lung cancer. It’s about all the things that make worth living and how to best use our dwindling time on earth
Another key one is @rgay’s “Hunger.” In reading a queer woman of color’s lifelong relationship to obesity and body shape, a few childhood traumas drove a lifetime of eating behaviors. Each of us has an “unruly body” somehow. Acknowledging that validates our humanity
Read 11 tweets
Body Politic has published an important open letter to the @NIH @NIHDirector urging the prioritization of #LongCOVID research that builds off prior research into #MECFS and related conditions.

👉 wearebodypolitic.com/bodytype/2021/… by @itsbodypolitic @fi_lowenstein @ItsAngInLA The organization Body Politic has written an Open Letter to
In December, Congress provided $1.15 billion over 4 years for @NIH to “support research into the prolonged health consequences of #COVID19”. With many newcomers to the field there’s cause for concern that experienced #MECFS researchers may be overlooked. nih.gov/about-nih/who-… “We are writing today to urge the NIH to prioritize fundin
#LongCovid and #MECFS have much in common and are increasingly joining forces to drive change that might lead to diagnostics, treatments, and a cure. “Long COVID patients share both symptoms and experiences w
Read 10 tweets
Basics of identifying mold toxicity: if all your blood work is normal, but your nervous system is compromised (dizziness, tremors, muscle weakness, short term memory loss, GI problems) then you probably need to get checked for mycotoxins.

Check bottom tweet for protocol
As mentioned by Dr. Andrew Campbell, one of the leading doctor and researcher in mold toxicity:
“Molds are the gun, mycotoxins are the bullet”

Severity of symptoms may relate to immune health and length of exposure to the molds.
#Lyme disease and #mold have an enormous overlap. Chronic Lyme may actually be mold.

The 7 different mycotoxins can each be tested with their IgA, IgM, and IgG giving you 21 different parameters.
Read 6 tweets
Different groups have FOIAed this #Lyme crooks email over the years. On the surface it is appalling, but what does it really mean? “This battle cannot be won on a scientific front...we need reinforcements from outside our field.”

In short, it means they’re guilty. Of what? 🧵
They rigged the #LymeDisease case definition to conform to diagnostics that were designed to detect a small minority of cases that are genetically predisposed to produce a strong antibody response.
Allen Steere had done a ton of research on the association of various HLAs with different antibody responses in #LymeDisease. Everyone knew by the early 1990s that the people with an arthritic knee had a strong immune response but weren’t very sick.
Read 21 tweets
Thread: A major barrier to progress in understanding the neurologic manifestations of #LymeDisease has been a lack of a tractable laboratory animal model to evaluate the mechanisms of central nervous system pathogenesis.
For decades we have seen study after study of Lyme arthritis. As it turns out the most frequently reported Lyme symptoms are neurological symptoms: memory loss and cognitive impairment, sleep impairment, psychiatric manifestations, headaches, neuropathy and more. 2/
This is the first study, to my knowledge, that shows how Borrelia burgdorferi gets into the central nervous system, how the immune system responds, and how the bacteria adapt to the immune system. #Lyme
Meet the researcher Catherine Brissette, Ph.D. globallymealliance.org/meet-researche…
Read 15 tweets
I deeply relate to this. After almost dying of ❤️ failure from #Lyme & being told by 11 “top” docs that in spite of my tick bite, bullseye, & classic symptoms, I could not poss still have it after a short course of doxy. Well, I did. 1/
And after the 12th doc saved my life (thx @StevePhillipsMD), I wrote my story in @HuffPost. I didn’t think anyone would care. But they did. The editor called & asked me to keep writing about this scandal as so many ppl were reading my story. 2/ huffpost.com/entry/how-11-t…
So I kept writing and began hearing from people all over the world, including a nurse from Ghana, who used my story to guide them back to health. I even interviewed celebrities who had gone through it like Daryl Hall. 3/ m.huffpost.com/us/entry/us_11…
Read 16 tweets
Wisely, @HarvardHealth likens #LongCovid to chronic #Lyme. I pray research into persistent sxs #COVID19 pts face informs medicine abt other common infections that have long wreaked havoc around the globe, yet have long been ignored. @StevePhillipsMD @DrEricDing @dianaberrent
For the record, we must abolish terms like "post-viral" or "post-infectious" that can misinform treatment. Semantics matter. Pathogenic persistence should be kept on the table unless it is thoroughly ruled out. There are many chronic, stealth infections that go unrecognized.
Read 4 tweets
Parce que je suis microbiologiste et scientifique comme lui, je voudrai ici remercier #raoult d’etre le seul à faire ce qu’il faut faire depuis le début :
Face à une pandémie liée à nouveau virus qui tue :
- observer ce que font les autres ( ici c’étaient les chinois les 1ers)
- le reproduire, et si on obtient les mêmes résultats, le publier pour partager l’info avec la communauté scientifique et médicale internationale.
- voir si on peut améliorer le ttt proposé ( ajout de l’azithro et du zinc) : publier.
- développement des tests fiables.
- tester, isoler, traiter pour limiter la propagation.
- ne pas faire de RCT vs placebo, car pas le temps quand un virus tue 500 personnes par jour en France, et surtout pas éthique ( les accords d’Helsinki , ça existe !)
Read 8 tweets
This interesting study found that skeletal #muscle cells of #ME/CFS patients showed a decrease in oxidative phosphorylation (a metabolic pathway used by #mitochondria to generate #energy). In simple terms, that caused the cells to have a dysregulated #metabolism.
2/ Not mentioned in the paper, but important to consider, is that most well-studied #viral + bacterial #pathogens “hijack” the metabolism of the cells they infect in a manner that can result in decreased oxidative phosphorylation (or similar changes in cell energy pathways).
3/ In simples terms, these #pathogens “hijack” cell metabolism to “pull” substrates out of the human mitochondrial energy pathways...and use the substrates (lipids, fatty acids, amino acids) for their own #nutritional and replication purposes!
Read 6 tweets
Qu'aura retenu, hélas, le public de @Cdanslair de la lamentable prestation de @DenhezFred sur la maladie de #Lyme ? Des énormités sur les #forêts, les #cerfs, les #loups, les #renards & les prédateurs des #rongeurs
Revue des #fakes de ce monument de loufoquerie ⤵️
[thread]
— "Comme il en a de moins en moins, de ces grandes surfaces, parce qu'elles sont fragmentées, ces forêts, le cerf s'en va"
La population de cerfs & les massifs forestiers occupés ne cessent d'augmenter…
(oui, les réalisations via les plan de chasse st un outil de suivi)
2/14 ImageImage
Plus précisément, telles qu'elles sont définies et suivies par l'#ONCFS, le nombre de zones occupées par les cerfs en France a augmenté de 37% entre 1985 & 2015. Pendant ce temps, leur superficie moyenne a progressé de 160%…
3/14 Image
Read 14 tweets
Check out this interview I did w/ @resiapretorius 👉 Resia + team have published dozens of papers detailing how inflammatory products created by #bacteria/#viruses in human blood can drive clotting, red blood cell deformability, vasculature problems etc: microbeminded.com/2020/08/06/int… Image
2/ Conditions studied by Resia and team include #Alzheimer’s + #Parkinson’s. For example they identified toxic gingipain proteins created by oral #pathogen p. gingivalis in the blood of Parkinson’s patients, and showed how the gingipains can increase hypercoagulation ImageImage
3/ I am truly excited about the fact that we are working to send her team #ME/CFS and #PTLDS (chronic #lyme disease) blood samples that they will analyze for many of the same issues 🙌
Read 3 tweets
Maladie de #Lyme.
(1/4) Des associations de patients déboutées de leur plainte pour « non fiabilité des tests de dépistages ».
Les attendus du jugement sont intéressants (…)
ouest-france.fr/societe/justic…
(2/4) Le tribunal: «Ces tests sont calibrés selon l’état de la science au moment de leur mise sur le marché, avec des limites qui sont explicitées», «les demandeurs n’établissent pas, ni ne soutiennent que des recherches plus récentes auraient permis d’obtenir d’autres résultats»
(3/4) Certes, la justice ne dit pas la science. Mais le jugement est conforme à l’état des connaissances. S’il avait été dans l’autre sens, gageons qu’il aurait été largement médiatisé par les détracteurs du consensus scientifique comme "preuve scientifique de leurs propos".
Read 4 tweets
Lecture de mon premier numéro de science et pseudo-sciences @afis_science @JeanPaul75. On peut dire que ca démarre fort : « le consensus scientifique n’est pas un supermarché » #Lyme #Vaccins #homéopathie #nofakescience #nofakemed Image
Octobre - décembre 2019, ils avaient vu juste !
Read 3 tweets
🔴Un grupo de pacientes de #EncefalomielitisMiálgica / #SíndromedeFatigaCrónica #Fibromialgia #SQM #EHS #POTS y #LYME nos hemos unido con el objetivo de dar #Visibilidad a nuestras patologías, conseguir #Investigación para que nos den una solución a nuestra enfermedad
Abro hilo👇
Nos centramos solo en lo que nos une, dejando a un lado todas las diferencias o cualquier discrepancia por pequeña que sea. Todos estamos de acuerdo en lo que necesitamos y nos centramos sólo en esto. Tenemos un proyecto para conseguir este objetivo, pero necesitamos ser muchos.
Podéis participar todos los que estéis dispuestos a ayudar: pacientes, familiares, amigos, conocidos, asociaciones, así como cualquier persona que quiera ayudarnos. Entrad aquí, en nuestro grupo de Facebook, ahí explicamos cómo lo vamos a hacer:👇 facebook.com/groups/2486980…
Read 4 tweets
1/ Classic #opticneuritis is characterized by a sub-acute loss of vision in one Eye, with central #scotoma, pain on #eyemovement, positive #RAPD
- Fundus exam is usually normal
- Age range 15-45 years
2/Talking about #MOGAntibodies:
- More frequent in #pediatric population, Associated with #ADEM
- #MOG IgG serum titers depend on disease activity and is mainly from extrathecal origin, enters #CNS from systemic circulation and reaches CSF through passive diffusion or broken #BBB
Read 10 tweets
What has the #Lyme community learned from the #COVID19 pandemic?
thread...
lymedisease.org/bureaucratic-d…
(1) In a matter of weeks, the federal government can allot trillions of dollars to one disease.
2) In a matter of weeks, the @CDCgov can develop and mass produce a new test.
Read 6 tweets
More than two decades after assaulting Czech children with lipidated OspA “vaccines,” UConn declares, “It’s the lipids, stupid!”

“Chemical removal of the lipid portion of purified M. pneumoniae lipoproteins eliminated VED...”[vaccine-enhanced disease]

scienmag.com/uconn-research…
WHY do “scientists” still think it’s cool to inject lipoproteins (especially of the highly acylated variety)? WHY is UConn suddenly saying, oh, isn’t it amazing how we solved the mystery of the century! WHY???

Because #LYMErix.
We had a #Whistleblower for that, and she, @KMDickson, got the standard whistleblower treatment so the #pharma criminals wouldn’t have to answer for their crimes. And here we are 20+ years later, with one of the same institutions involved in the OspA scam telling us #lipidsbad 🤬
Read 7 tweets
I don’t know how to get the word out about this. I am concerned about #MECFS patients who are a) having craniocervical fusions b) in Europe and c) are not actively engaged in patient groups on Facebook. [1]
My primary concern is that a significant proportion of patients who have fusions experience an initial improvement, but then have worsening symptoms roughly 5-7 months after surgery.[2]
In many cases, this is due to the “unmasking” of tethered cord syndrome, a condition many patients with craniocervical instability have. [3] me-pedia.org/wiki/Tethered_…
Read 76 tweets
My Dad's recent #COVID19. Not an academic document-just sharing a human experience of outrage & triumph.

My Dad is almost 90, frail as can be, in a nursing home. I went to visit him 3 months ago & wore a mask before it was fashionable to protect him just in case I had it.
I sent an email to 5 people at the nursing home the next day saying that I was shocked that none of the staff or visitors were wearing PPE. I warned them that the now infamous Seattle nursing home which had massive deaths early on in the #COVID pandemic was a sentinel event.
I warned them that they needed to "act now" to prevent a "major tragedy," but not a single one of the recipients responded to my email, silence. I reached out to my Dad's doctor to discuss the situation. She felt that he was a sitting duck and that prophylaxis was appropriate.
Read 12 tweets
When will @GovCanHealth update website to acknowledge mom to baby transmission #Lymedisease? Alberta Health does, CDC does, Health Canada officials did in 1988. Why take pause in alerting 🇨🇦 to what has been known + documented since 1985? See thread /1
open.alberta.ca/dataset/58776f…
Is there evidence that Borrelia burgdorferi, the agent of Lyme disease can be transmitted from an infected mother to her baby? YES! Below my 2019 presentation for
@ilads_lyme. Not sure how much more #evidence is needed to acknowledge the risk. /2
Can Borrelia burgdorferi cross the placental barrier + transmitted in-utero? /3
Read 31 tweets

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