Thread by @elisaperego78

Two years ago today the term #LongCovid was first used as a Twitter hashtag. A single tweet by a patient linked together a growing, grassroots movement of people who weren't recovering from covid. Across the world, we were fighting for recognition and studying our own disease

🧵

#LongCovid is now one of most studied diseases in history. It's not "rare" or "mysterious". It was recognized by the WHO in August 2020 already, after an history-making meeting with advocates and patient-researchers. We have come that far.

theatlantic.com/health/archive…

And yet, this pandemic is a mass disabling event. Treatment options, open communication, and support for patients are still lagging behind. We will not stop fighting for the rights of people living with #LongCovid and other complex chronic diseases.

On this day, I want to thank all of those with #LongCovid and allies who have been here, fighting together, or supporting us in the recognition and research of Long Covid 💙

@CovidSolidarit1 @long_covid @apresj20 @LongCovidSOS @LongCovidKids @MartaEsperti @longcoviditalia @LongCovidAdvoc @ClareRayner6 @ClaireHastie1 @james__glen @loscharlos @clarejdaly @patientled @Ra2myl @selkieO @ShaneyWright @Food_reward @Know_HG

A special thought and thank to my co-authors in the very first pandemic months @preshitorian @LaurieStras @keyeri @felicitycallard @Dr2NisreenAlwan

@fi_lowenstein @itsbodypolitic @Elodie_A_N @TigressEllie @ErinSandersNP @RobinGorna @lilystbarth @reverseyourmind @DominicMoss13 @MaryGR65 @ahandvanish @AthenaAkrami @Doctor_IMF @DocAmali @LongCovidWales @LongCOVIDEurope @LCKNewZealand @LongCovidNZ @longcovidspain

@longcovidaragon @Savolainen_J @apuakoronaan @LongDeutschland @LauraMiers @RaviHVJ @PMGPSC @Antonio_Caramia @docdrugztore @amymitchellart @Miti_Vigliero @myrabatchelder @MarkedByCovid

@BiancaPtrignani @PDreame @Ellemarie_318 @LongCOVIDPhysio @darrenabrown @OnTapPhysio @ellbail @EfCovid19 @LongCovidCanada @jonah_mcgarva @longcovidAT @MaartePreller

@doctorasadkhan @BinitaKane @LinnJarte @LckUsa @celeste_sabato @surf4children @LCKScotland @LCKItalia @LCKCanada @jneill

@Dakota_150 @TruthAbout_ME2
@MEwarrior_au (to name just a few!) of course all the allies in the #pwME #MECFS and disability community

@zalaly @alitwy @calirunnerdoc @LCNMUK

@longcovidirl @TaniaJSpencer @BurbridgeHt

@AnkeMarsh @bcdelaney1 @amibanerjee1

@Amy_Ant =》 creator of #longhaulers Long Haul Covid @katemeredithp

I add again @james__glen for creating #FBLC Follow Back Long Covid (should have added above the hashtag too!). You can use it to connect with the community

@trifan_tatiana @amyismall @MeetJess

@EndemicPrepared

@richardvallee @thane_black

@kimisgubbed @kim_h_1

@BirgitC

@AshHultman

@Gronnet @ClaireCozler

@edsuom @IanRicksecker

@centrismxtreme

@lesleymacniven

@maureviv @OdyO11

@Amalgamquietude