Melissa Barber Profile picture
Jun 1, 2022 12 tweets 10 min read Read on X
Are you a pharma company who just put up a 🏳️‍🌈logo but have not yet announced meaningful efforts to improve the lives of LGBTQ+ people?

To help you really celebrate this #PrideMonth #Pride2022 right here's a🧵of some actionable ideas you can implement this month. (1/11)
Sky high prices for insulin mean that people are rationing and dying because they cannot afford it.
-jamanetwork.com/journals/jamai…
-t1international.com/access-survey/

LGBTQ+ ppl are disproportionately affected bc discrimination-> poverty + job discrimination
williamsinstitute.law.ucla.edu/publications/l… (2/11) Image
1 in 4 teens are forced to leave home after coming out.

Many ppl under 26 are on their parents' health insurance, making coming out even scarier than it already is bc it might mean that you need to find new insurance fast- not easy & $ in the USA (3/11)

lesley.edu/article/the-co…
In honor of this #PrideMonth, would love to see @LillyPad @sanofi @novonordisk commit to:

1) redirecting lobbying $ spent on protecting insulin markets to instead pushing for #MedicareForAll

2) lower insulin prices to $35/vial for insulin (that's a price cap, not co-pay) (4/11) Image
Let's move on to @ViiVHC.

I'm not sure what charging $22k/year for HIV prevention drugs that cost $20/year to make is, but it's not being an ally.

Nevertheless,👍for reversing a bad decision to not license long-acting injectable cabotegravir for HIV to
@MedsPatentPool (5/11) Image
Looking forward to seeing a licensing deal announced asap @ViiVHC
statnews.com/pharmalot/2022…

If you really want to earn the 🏳️‍🌈on your twitter banner, commit to not enforcing patents in LMICs, lowering prices in HICs, & ensuring robust access plans for those w/o insurance (6/11)
.@abbvie: No specific asks here, just want to encourage folks to read the '21 House Cmte on Oversight + Reform report (excerpts below)

tldr: Questionably legal practices-> $19bn costs to US healthcare

Maybe put some of that $19bn to good use (7/11)

oversight.house.gov/sites/democrat… Image
.@GileadSciences: Your portfolio includes a significant number of drugs essential for treating HIV and HCV, diseases the disproportionately affect LGBTQ+ people.

This is not how you end an epidemic: statnews.com/pharmalot/2020… nbcnews.com/nbc-out/out-he…

Do better. (8/11) Image
.@moderna_tx: Your vax was funded by the public ($10bn)

Stop standing in the way of global vax equity & share IP w/the @WHO mRNA Tech Transfer Hub + anyone else that needs it

Let's not have another year of virtual #Pride bc the pandemic rages on
devex.com/news/moderna-s… (9/11) Image
You too, @pfizer and @MSDintheUK.

Nice job licensing your antivirals to the @MedsPatentPool but you forgot a few countries. (PS Pfizer you also forgot your vax.)

Let's get that sorted this month, ok? (10/11) ImageImage
LGBTQ+ people have done incredible work in the fight to demand accountability & expand access to medicines. But there's still a long way to go.

Thanks for logos, but looking forward to hearing meaningful pledges worthy of #PrideMonth.

Drop any further suggestions ⤵️ (11/11) Image
(excerpts) ImageImage

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More from @mellabarb

Jan 17, 2023
It's wild and bad that Biontech tried to get public mentions of #CTAP, a @WHO housed initiative to pool intellectual property, scrapped as "vaccine misinformation".

This is not the pharma's first bizarre anti-generics campaign. A quick bit of history.🧵1/
My 'favourite' absurd anti-generics lobbying story is the time PhRMA commissioned a novel about why generic medicines were bad.

It never was published because even the paid ghostwriters wouldn't take it as far as PhRMA wanted.

I wrote abt it here ⬇️2/

The authors re-wrote a less terrible version, and PhRMA freaked out that it might be published / tried to get a court order to recall all copies.

The attention to detail is extreme, including getting CNN to get Larry King to recall a cover blurb. 3/
huffpost.com/entry/phrma-co…
Read 12 tweets
Jan 12, 2023
Jan 2023 #Paxlovid costing update:🧵

9 months later, no real news.
❌generic supply is still not widely available
❌Pfizer is refusing to expand licensing
🥴no trial data on how it works in key populations

Updated cost-based estimated generic price: $15
scholar.harvard.edu/melissabarber/…
Here's the top-line summary, using current prices of API traded in global markets.

#Paxlovid is $530 in the US. It has been reported that in China right now, desperate people have been paying as much as $7,000 to get it for their loved ones. 2/
reuters.com/business/healt… Image
Cost-based estimated generic prices use the price of active pharmaceutical ingredient (API) traded in global markets, and a cost estimation algorithm we developed in earlier research (see gh.bmj.com/content/3/1/e0…)

Costs come down exponentially when there is competition, but.. 3/ Image
Read 14 tweets
Oct 14, 2022
I saw videos I posted retweeted out of context, so I want to be clear abt a few things.

What has happened this week is pharma's failure to show up & be transparent abt contracts and pricing has fanned the flames of of distrust about vax effectiveness.

That's a problem.🧵1/5
I encourage folks to read the linked tweet (above) on the transmission q.

I really wish MEPs had the opportunity to pose questions to someone who had been involved in the R&D side of things rather than the business side of things so their questions could have been answered. 2/5
BUT I want to correct the record bc some news has reported on the committee meeting as if it were entirely abt that, when in fact most MEPs were focused on concerns abt democratic process: public money shd be accounted for in transparent contracts. 3/5
Read 5 tweets
Oct 11, 2022
To sum up today's @Europarl_EN hearing w/@Pfizer on #COVID19 vaccines:

1) member states are furious by the lack of transparency & #SMSgate
2) @AlbertBourla miscalculated that this was something he could skip.
3) The committee is ready to recommend consequences

Summary in 🧵1/
I don't usually do full 🧵 detailing hearings (apologies in advance), but what happened yesterday was pretty extraordinary and I think will be important in setting the course for ongoing future pandemic planning.

You can watch the full hearing here: multimedia.europarl.europa.eu/en/webstreamin… 2/
***First: Where is @AlbertBourla?***

.@SincicMEP sums up the general mood in the room:

"I must say that it is a disgrace that @AlbertBourla is not with us today and an even greater disgrace that he doesn't have any real intention of showing up."
3/
Read 41 tweets
Aug 4, 2022
Pharma is really good at creating narratives with half-truths (or just outright lies) that narrow the policy space to their desired outcome.

So good that even @jacobin- a rare US socialist magazine-has accidentally repeated a few of their greatest hits. A (gentle) correction 🧵1
Let's unpack this:

"The sheer complexity of insulin production makes it financially unviable for generic companies. Thus, instead of generic insulin, we speak of biosimilar insulin — a biosimilar is a biologic drug that is extremely similar but not identical to the original." 2
First, generic insulin markets are 100% financially viable. I hate to be that academic that says "I have a paper on that" but
gh.bmj.com/content/3/5/e0…

We assume a 10% profit margin (which is more than average) & estimate costs at ~$3/vial for NPH + $5 for glargine. V. viable! 3
Read 12 tweets

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