If you're thinking about classroom policies and accommodations as you draft your syllabus, here are some things to keep in mind. I realize that many of my colleagues don't understand how it works. Feel free to drop questions after reading the thread. 1/13
Disability accommodations are in place to protect universities. They are not the best way to support a student. Getting an accommodation is dependent on a diagnosis, a thoughtful doctor, and a legitimate understanding of disability. 2/13
You may think most doctors know how to write a letter. They do not. I have written almost all of my own. My doctors have no clue what my everyday access needs are. Most do not understand the embodied experience of being disabled. 3/13
My doctor can give a medicalized description of my diagnoses. That is not the same as explaining what supports I could use. Doctors get in the habit of recommending the same token options again and again. 4/13
I have never had an office consult about what accommodations would improve my quality of life. It's always done by email or filtered through a NP so I end up doing it myself. Remember wait times for appts are excessive and accommodation requests require time for approval. 5/13
Your accommodation letter is basically a crapshoot. Oftentimes a non-disabled Dr tells the uni what they think would be best for you. Then a non-disabled disability service provider tells you what they can offer. Remember they are offering the baseline for ADA compliance. 6/13
If a student is navigating the process for the first time, or coming to terms with their disability, or they're in the process of learning about their access needs, they will just accept what's offered without thinking it's a gimmick. 7/13
You HAVE to view this system as pernicious. It is not in place to protect students' best interests or to support them in the classroom. Most students who will benefit from accommodations do not get them, and the majority do not see even granted accommodations materialize. 8/13
Students have to constantly advocate for themselves, explain access needs, disclose to multiple people, and they watch as their bodies are medicalized. It is harmful and stressful. I have cried many many times and still cry when I have to do this work. 9/13
It's not "empowering" to have to beg for access. Every service office claims it fosters "student advocacy." As if it's advocacy work to try to come up with just the right way to exact sympathy, care, and understanding from people who discriminate against you. 10/13
Please go look up stats on how many disabled people are forced to drop out of college, how many are pressured to take lengthier studies bc they've spent half their career fighting for basic access needs, and how many are failed by these processes. 11/13
I've heard a lot of educators say "it's not my job" to fix this. Yes it is. If you care about equity it is. If you value disabled lives it is. If you value the well-being of your students it is. The system is purposefully oppressive. Our classrooms have to combat that. 12/13
Lots of people have asked for advice on how to make the classroom more accessible. I just want to plug - I'm not a perfect educator. I mess up all the time. I'm also not a specialist in accessible pedagogy. I'm just one disabled person who made it through the system. 1/18
Here's a list of my top 10 recommendations. To be clear I don't always know what I'm doing. I have SO much reading and thinking I need to do to work on my pedagogy. And I need to do better to tap into pedagogy communities. So please take this all as ONE person's approach. 2/18
This year I'm making a commitment to present in virtual conferences alone. I'm going to shift my dues paying memberships to spaces that value disabled and otherwise high risk academics. And I'm going to shift my intellectual labor to these spaces alone. 1/15
Do I have the power to do this? Not really. Will anyone see this as a threat? Probably not, I'm not a big name. But I have a modicum if power and privilege, and I'm going to weaponized that power to build change. 2/15
No matter what, we have the power to shift academia by simply holding steadfast to collective demands for safety, access, and equity. We can build something sustainable by just being brave and standing resolute. 3/15
If people talking about monkeypox could just idk remember that immunocompromised people exist? And acknowledge that vaccination and treatment isn't available or effective for everyone? That'd be nice. 1/4
I do not want community transmission of COVID. I do not want community transmission of monkeypox. I do not trust that my very sick body will be up to fighting either of those things. And I do not trust hospitals to keep me alive as an individual with complex health issues. 2/4
So yes we should worry about spread, and start taking implementing meaningful policy, right now. We should have already started. Once again I fear disabled people are being shrugged off, and once again we will disproportionately face death and serious health complications. 3/4
I really need Drs to understand that when you tell a patient to change something, take a new med, or follow a certain protocol, they have often already received contrasting info from other practitioners. 1/5
My OBGYN, GI, allergist, and cardio all give contrasting protocols. OBGYN just told me to cut coffee. I explained I'm often bloated & constipated bc of gastroparesis. They told me to just up fiber intake instead. That's literally against a gastroparesis diet. 2/5
I've been having frequent urination bc I've needed to uptake fluid intake for POTS and I'm not retaining it. OBGYN told me to try to fit all of my fluid intake btw 9 am-4 pm. They also recommended supplements that my allergist warned against. 3/5
A lot of people look at the choices I make regarding COVID and try to pick them apart. This includes family members and former friends who do not understand what it's like to be making choices as a high risk person right now. 1/7
I go to work where I teach in a vaccine-required but mask-optional environment. To do that, I mask, hold virtual office hours, teach with a HEPA running, and I record everything and create alternative work so sick students can stay home without penalties. 2/7
I go to work because I need insurance and an income to afford my healthcare costs. No, govt benefits would not be the same. No, I cannot afford to quit my job. These risks are not optional for me. 3/7
My parents are heartbroken that getting a PhD didn't result in stability for me. I was so floored that I managed to do any part of this (undergrad, grad school, postdoc) and they had no experience and have been SO excited and proud every step of it. 1/5
It is crushing to know that I did this in the hopes that I could build financial stability for myself, but also for them. But I still can't do that. I'm still very very precarious, and growing more and more disillusioned. 2/5
When we collectively found out I was disabled, my parents worried about my future career. They were overjoyed when I found that I could pace myself in academia in ways they couldn't at their 9-5 jobs or manual jobs. My dad's job (mechanic) has caused irreparable damage. 3/5