Thread by @MarekSJF

🧵 Essential scientific publication on ME/CFS

A list of publications you can give your doctor to read to explain what #MECFS is (i.e. papers readily available to non-experts). Including #LongCovid, #PEM, #MCAS, #POTS

Comments/DM are welcome. Scientific publications only.

NICE guideline [NG206]
Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management
October 2021
nice.org.uk/guidance/ng206

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management
November 2021
mayoclinicproceedings.org/article/S0025-…

Turning a Corner in ME/CFS Research
September 2021
mdpi.com/1648-9144/57/1…

[German]
Post-COVID-Syndrom mit Fatigue und Belastungsintoleranz: Myalgische Enzephalomyelitis bzw. Chronisches Fatigue-Syndrom
July 2022
link.springer.com/article/10.100…

Unexplained post-acute infection syndromes
July 2022
nature.com/articles/s4159…

[Study shows that #LongCovid patients can develop #MECFS]
A prospective observational study of post-COVID-19 chronic fatigue syndrome following the first pandemic wave in Germany and biomarkers associated with symptom severity
August 2022
nature.com/articles/s4146…

Definitions, Criteria and Global Classification of Mast Cell Disorders with Special Reference to Mast Cell Activation Syndromes: A Consensus Proposal
2012
karger.com/Article/FullTe…
Diagnosis of mast cell activation syndrome: a global "consensus-2"
2021
pubmed.ncbi.nlm.nih.gov/32324159/

I removed this one because I read some objections from patients.

[German]
Arbeitsgemeinschaft der Wissenschaftlichen Medizinischen Fachgesellschaften:
Leitlinie Long/Post-COVID
August 2022
awmf.org/leitlinien/det…

[Contains extensive bibliographical references]
#MEAction Network: ME research summary
June 2019
meaction.net/2019/06/12/mea…

[2-page summary of physiological abnormalities]
Advances in Understanding the Pathophysiology of Chronic Fatigue Syndrome
July 2019
jamanetwork.com/journals/jama/…