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Arianne

@ravensspirit68

Apr 29

1-Stop the, 'Over prescribing caused the opioid crisis.' narrative. I read article after article where 'liberal prescribing' is ascribed as the cause of the so called #opioidcrisis.
Many articles are written by people in our own community, self proclaimed pain pt ‘advocates’.

2-To this, I’d like to point out that in OC even a judge recently ruled:
"There is simply no evidence to show that the rise in prescriptions was not the result of the medically appropriate provision of pain medications to patients in need,"
#RxOpioidsSaveLives
#ChronicPain

3-Here is the link to that quote and ruling above: reuters.com/world/us/calif…

Read 15 tweets

Arianne

@ravensspirit68

Apr 14

Thread...How people in pain are being abused.
Let us count the ways.
1-Emotional Abuse:
Invalidation of person's lived experience
Distrust
Gaslighting
Ridicule
Threats
Constant monitoring of activities
Judgment/punishment
#ChronicPain #WeWillNotStaySilent

2-Intellectual Abuse
Being forced to prove your abuser wrong
Mind games
Making the person in pain feel stupid
Attacking the person in pain's ideas or wishes
Manipulation of information, even in medical records
Power Imbalance

3-Financial Abuse
Forcing person to attend needless appointments
requiring co-payments, transportation costs, paying for 'alternative' modalities, Coerced into costly surgeries and 'minimally invasive' procedures, endless lifelong drug testing.

Read 10 tweets

Arianne

@ravensspirit68

Apr 6

Thread...
My daughter Desiree.
Forever 35
#IllicitFentanylPoisoning
#DrugWarCasualties
#SafeSupplySavesLives

2-Cut down in the prime of life.
Victims of #IllicitFentanylPoisonings.
Deaths happening due to a deadly drug supply, deaths that could have largely been prevented.
These are people, people who were loved, not statistics.
#SafeSupplySavesLives

3-And more #DrugWarCasualties, a direct result of prohibition like policies and practices and draconian legislation that has painted a target on both physicians and people in pain alike...
thomasklinemd.medium.com/opioidcrisis-p…
#SafeSupplySavesLives
#RxOpioidsSaveLives

Read 9 tweets

Arianne

@ravensspirit68

Mar 11

1- I remember way back when advocacy for pain pts started merging with the addiction community's advocacy.
Pushed back on ADX community's mantra of opioid 'over prescribing' & stated that drugs don't cause ADX.
Maia Szalavitz chastised me, told me to basically stay in my lane.

2- In fact, many in the 'upper echelon' of advocacy still embrace the #PainParole status quo & the 'over prescribing' narrative.
Usually if one pushes back, we're blocked or put on the blacklist of CPPs, and now there's even a blacklist for 'rogue' addiction advocates. 🤔🤫

3-You see I was here advocating since the time when the first seeds were being planted on Twitter re: our E-advocacy. #ShareOurPain was a small ragtag group of CPPs who banned together for the cause. This was before there even was an 'upper echelon'.

Read 8 tweets

Arianne

@ravensspirit68

Feb 17

I commented on the CDC's rewrite.
For whatever that's worth.
I'm exhausted, angry, & now grieving a loss that no parent should ever have to face.
I've had my health & ability to live stolen and lost far too many people I love and care about to this #OpioidInsanity.
Thread...👇🏼

2- My comment?
You have no intention of ending this atrocity. You have had people in the pain community chasing their tails for years while asking for our input and 'comments'.
#Chronicpain

3-We've explained over and over that we are suffering and dying out here in the real world. That MDs tell us to our faces that they are AFRAID of the DEA, and that we are not worth risking their licenses over.
#Chronicpain

Read 10 tweets

Arianne

@ravensspirit68

Feb 1

1-Tx of pain & the role of opiate class medicines has gone from pain being inadequately treated across the board to abject insanity.
This was done in an orchestrated but convoluted way, taking pain and making it a 'bio-psycho-social' issue tied inexorably with addiction.

2-For those unfamiliar with CHOIR, it's one of Stanford's projects. It was promoted with the National Pain Strategy (when it was a thing) alongside PROPs opioid 'guideline' as a model for technology driven optimization of pain care through research and data mining.

3-The screenshot above in tweet #2 is from this link. iprcc.nih.gov/sites/default/…

Read 15 tweets

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