Across the world, today is #PANS #PANDAS awareness day. My son developed #PANS in December 2018. I will never forget the day and time it first presented itself. I did not know at that time how his and his family's lives would be irrevocably changed 🧵
Right now, my son is doing well. This is because of the help I found via the support network gathered around the UK #PANS #PANDAS charity, PANS PANDAS UK @PandasPans
#PANS #PANDAS are conditions with relatively "simple" treatment approaches. Appropriate & timely treatment is stopped by a lack of knowledge by the clinical population & by a small but influential population of clinicians who decline to treat them. Fig Swedo 2017 
I am married to a clinician. I know how hard it is to find the time to keep on top of the medical literature and research conditions that were not part of medical exams or medical training. There is a large body of literature on #PANS & #PANDAS.
Today, on #PANS #PANDAS awareness day, I'll share some of the key and useful publications on these conditions. For more information, go to the websites of any of these organizations @PandasPans @ASPIREpans @NeuroimmuneFDN @PANDASPPN
1. #PANDAS Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections: Clinical Description of the First 50 Cases. ajp.psychiatryonline.org/doi/full/10.11…
2. #PANS Clinical Evaluation of Youth with Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS): Recommendations from the 2013 Pans Consensus Conference. pubmed.ncbi.nlm.nih.gov/25325534/
3. #PANS Clinical Management of Pediatric Acute-Onset Neuropsychiatric Syndrome: Part I-Psychiatric and Behavioral Interventions. pubmed.ncbi.nlm.nih.gov/28722481/
4. #PANS Clinical Management of Pediatric Acute-Onset Neuropsychiatric Syndrome: Part II—Use of Immunomodulatory Therapies. dx.doi.org/10.1089/cap.20…
5. #PANS Clinical Management of Pediatric Acute-Onset Neuropsychiatric Syndrome: Part III—Treatment and Prevention of Infections. liebertpub.com/doi/10.1089/ca…
6. #PANS Overview of Treatment of Pediatric Acute-Onset Neuropsychiatric Syndrome. pubmed.ncbi.nlm.nih.gov/28722464/
7. #PANS Association of Pediatric Acute-Onset Neuropsychiatric Syndrome with Microstructural Differences in Brain Regions Detected Via Diffusion-Weighted Magnetic Resonance Imaging. pubmed.ncbi.nlm.nih.gov/32364596/
8. #PANDAS #PANS Immunological causes of obsessive-compulsive disorder: is it time for the concept of an “autoimmune OCD” subtype? nature.com/articles/s4139…
9. #PANS Clinical guidance for diagnosis and management of suspected Pediatric Acute‐onset Neuropsychiatric Syndrome in the Nordic countries onlinelibrary.wiley.com/doi/10.1111/ap…
10. #PANS Sars-Cov-2 Related Paediatric Acute-Onset Neuropsychiatric Syndrome. Lancet Child Adolesc Health. thelancet.com/journals/lanch…
11. #PANS Patients with Abrupt Early-Onset Ocd Due to PANS Tolerate Lower Doses of Antidepressants and Antipsychotics. pubmed.ncbi.nlm.nih.gov/33513473/
12. #PANDAS and #PANS: Clinical, Neuropsychological, and Biological Characterization of a Monocentric Series of Patients and Proposal for a Diagnostic Protocol. pubmed.ncbi.nlm.nih.gov/30724577/
13. #PANS Establishing a Pediatric Acute-Onset Neuropsychiatric Syndrome Clinic: Baseline Clinical Features of the Pediatric Acute-Onset Neuropsychiatric Syndrome Cohort at Karolinska Institutet.pubmed.ncbi.nlm.nih.gov/31170007/
14. #PANDAS #PANS Nationwide Study in Denmark of the Association Between Treated Infections and the Subsequent Risk of Treated Mental Disorders in Children and Adolescents. pubmed.ncbi.nlm.nih.gov/30516814/
15. #PANDAS #PANS Clinical-Serological Characterization and Treatment Outcome of a Large Cohort of Italian Children with Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infection and Pediatric Acute Neuropsychiatric Syndrome. pubmed.ncbi.nlm.nih.gov/31140830/
16. #PANS #PANDAS Clinical Features in Patients With PANDAS/PANS and Therapeutic Approaches: A Retrospective Study frontiersin.org/articles/10.33…
17. A Pediatric Infectious Disease Perspective on Pediatric Autoimmune Neuropsychiatric Disorder Associated With Streptococcal Infection and Pediatric Acute-onset Neuropsychiatric Syndrome pubmed.ncbi.nlm.nih.gov/30747831/
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