Sarah Hughes Profile picture
Feb 15, 2023 9 tweets 3 min read
This case report is of interest for a number of reasons…..Case report: Varicella associated neuropsychiatric syndrome (VANS) in ... sciencedirect.com/science/articl… 1/n @PandasPans @ASPIREpans @PANDASPPN A) the children present with a #PANS (paediatric autoimmune neuropsychiatric syndrome) presentation. But the authors have created yet another new term “VANS”, presumably to avoid the controversies surrounding PANS 2/n
Jan 10, 2023 29 tweets 14 min read
December 2022 round up of #PANS #PANDAS - relevant or related peer-reviewed papers and media articles that may be of interest. Complied with @np9000. We hope you find it useful. (1/29)

@PandasPans @theEXPANDAssoc @BPNA_org @ASPIREpans @PANDASPPN @CAMHSNetwork @NeuroimmuneFDN ImageImage Prevalence of pediatric acute-onset neuropsychiatric syndrome (PANS) in children and adolescents with eating disorders. Aman, M. et al. J Eat Disord 10, 194. 2022. jeatdisord.biomedcentral.com/articles/10.11…
(2/29)
Oct 9, 2022 17 tweets 7 min read
Here is the round-up of #PANS #PANDAS and related publications and media articles released in September 2022. Collated by myself and @np9000.
@PandasPans @ASPIREpans @theEXPANDAssoc @NeuroimmuneFDN
#PansPandasAwarenessDay
🧵1/17 Pediatric Autoimmune Neuropsychiatric Disorders Associated with Group a Streptococci: Etiopathology and Diagnostic Challenges. Hutanu, A., et al. Cureus 14, no. 8 (Aug 2022): e27729. pubmed.ncbi.nlm.nih.gov/36106298/
(2/17)
Oct 9, 2022 22 tweets 13 min read
Across the world, today is #PANS #PANDAS awareness day. My son developed #PANS in December 2018. I will never forget the day and time it first presented itself. I did not know at that time how his and his family's lives would be irrevocably changed 🧵 Right now, my son is doing well. This is because of the help I found via the support network gathered around the UK #PANS #PANDAS charity, PANS PANDAS UK @PandasPans
Jun 4, 2022 17 tweets 7 min read
Been experimenting with a brief monthly round-up of publications (peer-reviewed & media articles) that may be interest #PANS #PANDAS community. Small scale stuff, but there may be scope to turn this into a mail list so all the links would conveniently arrive in your inbox 1/n March's round-up illustrated in the two jpegs above. Thank you @np9000 for being my wingman!
OCD in Pans/Pandas in Children: In Search of a Qualified Treatment; a Systematic Review & Metanalysis. Cocuzza, et al. Children 9, no. 2 (2022). dx.doi.org/10.3390/childr…
#PANS #PANDAS 2/n
May 7, 2022 20 tweets 12 min read
The British Association of Social Workers have published Fabricated & Induced Illness & Perplexing Presentations Practice Guide basw.co.uk/resources/fabr…
(PP ~ MUS) 🧵1/20
@doctorasadkhan @NurseDiane2020 @PandasPans @LongCovidKids @FiGullonScott @BASW_UK This well-considered & positive document provides guidance to social workers (SW) to enable them to adopt professional curiosity & respond ethically to FII concerns. The following points are some that I feel are relevant to #PANS #PANDAS #LongCovid #MECFS #EDS communities 2/20