Everyone in medical research at @Stanford, @UCBerkeley & @UCSF-- did you know about the Arc Investigator Programs? For some of the potential #grants/positions, you must work at one of those unis, but not all. (1/10)

#LongCOVID #MECFS arcinstitute.org/jobs/faculty-a…
All Arc investigators receive unrestricted, flexible #funding to pursue their most important ideas – with complete freedom to study fundamental biological mechanisms, develop new technologies, or innovate on therapeutic concepts. (2/10)
#LongCOVID #MECFS arcinstitute.org/jobs/faculty-a…
Focus is on high-risk, high-reward research with potential.

Applications are open now thru Jan 9 2023 (Science Fellows) & Jan 31, 2023 (Core Investigators & Innovation Investigators).

Read on to learn more: (3/10)
#LongCOVID #MECFS #grants
arcinstitute.org/jobs/faculty-a…
1) CORE INVESTIGATORS
Arc Core Investigators are based at Institute headquarters in Palo Alto. They & their labs will be fully funded. They may hold a faculty appointment at @Stanford, @UCSF, & @UCBerkeley)
75% protected research time guaranteed. (4/10)
arcinstitute.org/jobs/faculty-a…
Core Investigators are appointed for eight-year renewable terms at Arc.

They have three open searches for Core Investigators focused on neurobiology, immunology, & computational science. (5/10)

#MECFS #LongCOVID #grants #funding
arcinstitute.org/jobs/faculty-a…
2) SCIENCE FELLOWS
Newer MDs/PhDs: this program provides leadership training, full salary & research support for your group.

Arc Science Fellows get a five-year term at Arc, & are employed by the Institute. (6/10)

#MECFS #LongCOVID #funding #grants
arcinstitute.org/jobs/faculty-a…
3) INNOVATION INVESTIGATORS
Arc Innovation Investigators must be researchers at @Stanford, @UCBerkeley, or @UCSF.

Grant provides $1M unrestricted funding over 5 yrs to pursue visionary ideas in science & technology development. (7/10)

#MECFS #LongCovid
arcinstitute.org/jobs/faculty-a…
Arc Innovation Investigators are appointed for five yrs (competitively renewable). Awardees will be bridges between the universities & the institute, while maintaining their labs, employment, & appointments at their home uni. (8/10)

#MECFS #LongCovid arcinstitute.org/jobs/faculty-a…
We need excellent research in #MECFS, #LongCOVID & other infection-associated chronic illness, & high-risk, high-reward is where it's at!

Arc grants are a way to make a huge impact with substantial flexibility & mentorship for young investigators. (9/10) arcinstitute.org/jobs/faculty-a…
So go get that bread!

That is all.
Reach out to your science and medicine colleagues and spread the word, folks

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More from @exceedhergrasp1

Dec 22
✨ADVOCACY ACTION AHOY!✨

To all those remaining on Twitter in #NEISvoid, #MECFS and #LongCOVID circles... this is a big deal.

Looks like RECOVER is trialing exercise and CBT for #LongCOVID. Guess we have our reason why they were so keen to exclude #MECFS advocates! A 🧵
All along, #LongCOVID and #MECFS researchers, clinicians & advocates warned that RECOVER was going to be a colossal waste of time & money if they tested for values we already know are normal in infection-associated chronic illness, & therapies we already know do not work. (2)
Researchers, clinicians, and advocates begged-- in some cases, literally-- RECOVER researchers to connect more genuinely with the community rather than as a hoop to jump through so they could claim to have done so. (3)
Read 19 tweets
Dec 22
1) Those of us who are cautious are mostly staying at home; if we leave, we're masked
2) We're not going to big gatherings
3) If we have very sick relatives/kids, we're at home taking care of them.

This creates the mirage of a healthy society where few are suffering. 🧵
This is at the heart of #MillionsMissing, the original campaign for #MECFS: an infection-associated chronic illness. ~50% of people with #LongCOVID have #MECFS.

When you get this sick, you "go missing"... you disappear. meaction.net
Incautious people are sure everyone else is like them: when they look around, those are the only people they'll see.

Folks aren't gonna catch on a long while, because the world is wide and reckless ppl are innumerable. Not percentage-wise, but they don't have to be.
Read 4 tweets
Sep 30
Subtext: we let COVID and co-infections rage unchecked for so long, that no one is well enough to be present. Unless we threaten you with CPS, our school will be shut down by the county.
"Glandular fever" being mononucleosis, caused by EBV. That'd be a pathogen that triggers multiple sclerosis and ME/CFS. You should definitely both "work through" that and should totally expose others. /s
Why are the comments specifically about lice hidden?? Twitter you weirdo
Read 4 tweets
Aug 25
I'm always interested in where we find ourselves sociologically speaking, with ME. I had a bit of an interesting brainstorm just now:

Do we have a serious cognitive roadblock around the concept of muscular deconditioning?

Hear me out. (1/14)🧵
I was talking to a group of clinicians & someone said, "the patient can't walk up a flight of stairs."

I expressed worry. "That's relatively severe. Even I can walk up a flight of stairs without serious trouble."

And the clinicians all registered surprise.

(2/14)
For context, my average step count is super-low right now (due to where I live, not worsened ME). I am, in a word, deconditioned. Even in comparison to my usual. But the other day, when I *did* feel energetic & capable of it... (3/14)
Read 15 tweets
Aug 24
Thanks to @WebMD for this article on #LongCOVID and its connection to the post-viral diseases that came before it.

"When Jaime Seltzer first heard about a new virus that was spreading globally early in 2020, she was on full alert...

(1/4)
webmd.com/lung/news/2022…
...As an advocate for the [often] post-viral condition known as myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CFS, she worried about a new wave of people having long-term disabilities."
“The hair on my arms stood on end,” says Seltzer...
(2/4)
"Sure enough, later in 2020, reports began emerging about people with extreme fatigue, post-exertion crashes, brain fog, unrefreshing sleep, & dizziness... months after a bout with [COVID]. Those same symptoms had been designated as “core criteria” of ME/CFS..." (3/4)
Read 4 tweets
Aug 23
Question for the mutuals. I've got too much stuff to put on my Biosketch and CV and need someone to just take it out of my hands, put stuff where it goes & make it look nice. Obv willing to pay for that. Any suggestions?
Reason I'm asking here is that plenty of people will be like, "Biosketch, I'm sure I can figure that out!"

Ehhhhhhh pls someone who has a Biosketch of their own or who has experience in knowing what goes where under what heading. Pls retweet first tweet!
It's great to be busy! It's bad to be so busy that your last four or five projects exist not in LinkedIn, CV, Biosketch... just in your and your colleagues' heads!
Read 6 tweets

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