Everyone in medical research at @Stanford, @UCBerkeley & @UCSF-- did you know about the Arc Investigator Programs? For some of the potential #grants/positions, you must work at one of those unis, but not all. (1/10)
All Arc investigators receive unrestricted, flexible #funding to pursue their most important ideas – with complete freedom to study fundamental biological mechanisms, develop new technologies, or innovate on therapeutic concepts. (2/10) #LongCOVID#MECFSarcinstitute.org/jobs/faculty-a…
Focus is on high-risk, high-reward research with potential.
Applications are open now thru Jan 9 2023 (Science Fellows) & Jan 31, 2023 (Core Investigators & Innovation Investigators).
1) CORE INVESTIGATORS
Arc Core Investigators are based at Institute headquarters in Palo Alto. They & their labs will be fully funded. They may hold a faculty appointment at @Stanford, @UCSF, & @UCBerkeley)
75% protected research time guaranteed. (4/10) arcinstitute.org/jobs/faculty-a…
Core Investigators are appointed for eight-year renewable terms at Arc.
They have three open searches for Core Investigators focused on neurobiology, immunology, & computational science. (5/10)
Arc Innovation Investigators are appointed for five yrs (competitively renewable). Awardees will be bridges between the universities & the institute, while maintaining their labs, employment, & appointments at their home uni. (8/10)
All along, #LongCOVID and #MECFS researchers, clinicians & advocates warned that RECOVER was going to be a colossal waste of time & money if they tested for values we already know are normal in infection-associated chronic illness, & therapies we already know do not work. (2)
Researchers, clinicians, and advocates begged-- in some cases, literally-- RECOVER researchers to connect more genuinely with the community rather than as a hoop to jump through so they could claim to have done so. (3)
1) Those of us who are cautious are mostly staying at home; if we leave, we're masked 2) We're not going to big gatherings 3) If we have very sick relatives/kids, we're at home taking care of them.
This creates the mirage of a healthy society where few are suffering. 🧵
This is at the heart of #MillionsMissing, the original campaign for #MECFS: an infection-associated chronic illness. ~50% of people with #LongCOVID have #MECFS.
When you get this sick, you "go missing"... you disappear. meaction.net
Incautious people are sure everyone else is like them: when they look around, those are the only people they'll see.
Folks aren't gonna catch on a long while, because the world is wide and reckless ppl are innumerable. Not percentage-wise, but they don't have to be.
Subtext: we let COVID and co-infections rage unchecked for so long, that no one is well enough to be present. Unless we threaten you with CPS, our school will be shut down by the county.
"Glandular fever" being mononucleosis, caused by EBV. That'd be a pathogen that triggers multiple sclerosis and ME/CFS. You should definitely both "work through" that and should totally expose others. /s
Why are the comments specifically about lice hidden?? Twitter you weirdo
I'm always interested in where we find ourselves sociologically speaking, with ME. I had a bit of an interesting brainstorm just now:
Do we have a serious cognitive roadblock around the concept of muscular deconditioning?
Hear me out. (1/14)🧵
I was talking to a group of clinicians & someone said, "the patient can't walk up a flight of stairs."
I expressed worry. "That's relatively severe. Even I can walk up a flight of stairs without serious trouble."
And the clinicians all registered surprise.
(2/14)
For context, my average step count is super-low right now (due to where I live, not worsened ME). I am, in a word, deconditioned. Even in comparison to my usual. But the other day, when I *did* feel energetic & capable of it... (3/14)
...As an advocate for the [often] post-viral condition known as myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CFS, she worried about a new wave of people having long-term disabilities."
“The hair on my arms stood on end,” says Seltzer...
(2/4)
"Sure enough, later in 2020, reports began emerging about people with extreme fatigue, post-exertion crashes, brain fog, unrefreshing sleep, & dizziness... months after a bout with [COVID]. Those same symptoms had been designated as “core criteria” of ME/CFS..." (3/4)
Question for the mutuals. I've got too much stuff to put on my Biosketch and CV and need someone to just take it out of my hands, put stuff where it goes & make it look nice. Obv willing to pay for that. Any suggestions?
Reason I'm asking here is that plenty of people will be like, "Biosketch, I'm sure I can figure that out!"
Ehhhhhhh pls someone who has a Biosketch of their own or who has experience in knowing what goes where under what heading. Pls retweet first tweet!
It's great to be busy! It's bad to be so busy that your last four or five projects exist not in LinkedIn, CV, Biosketch... just in your and your colleagues' heads!