In February 2021 Congress gave the @NIH $1.15 Billion to study #LongCovid.
They decided to start with an observational cohort.
Recruitment started October 2021.
Recruitment status as of TODAY:
13,365 out of 17,000 adults
2917 out of 6000 peds
Where did the money go????
1/
They decided to start with an observational cohort.
Recruitment started October 2021.
Recruitment status as of TODAY:
13,365 out of 17,000 adults
2917 out of 6000 peds
Where did the money go????
1/
In April 2021 @NIH put out a call to scientists to apply for trials (how things should work).
No applications were accepted and clinical trials were put on hold.
As of TODAY:
- no trial protocol has been completed
- no trial sites have been chosen
- no trials have started
2/
No applications were accepted and clinical trials were put on hold.
As of TODAY:
- no trial protocol has been completed
- no trial sites have been chosen
- no trials have started
2/
The piece de resistance of RECOVER was to be (sadly not the clinical trials) a registry*
The registry was supposed to start recruiting Dec. 2022.
As of TODAY it is on hold (pulled?)
* @Survivor_Corps @ColumbiaMed @ChanZuckerberg @Sagebio started this in Summer 2020 fwiw
3/
The registry was supposed to start recruiting Dec. 2022.
As of TODAY it is on hold (pulled?)
* @Survivor_Corps @ColumbiaMed @ChanZuckerberg @Sagebio started this in Summer 2020 fwiw
3/
The Treatments / Therapeutics Committee was tasked with identifying potential trials.
They were meeting for *one* hour *every other* week.
As of TODAY: the committee has been paused for:
1) lack of funding
and
2) there is no plan to trial any therapeutics they chose
4/
They were meeting for *one* hour *every other* week.
As of TODAY: the committee has been paused for:
1) lack of funding
and
2) there is no plan to trial any therapeutics they chose
4/
I've been asking for a RECOVER org chart for two years.
As of TODAY: it doesn't exist.
Who has received funds?
@Harvard (data) @mayo (biorepository) @nyuniversity (Admin, observational studies and tissue / autopsy collection) @RITtigers @DukeU (clinical trials)
5/
As of TODAY: it doesn't exist.
Who has received funds?
@Harvard (data) @mayo (biorepository) @nyuniversity (Admin, observational studies and tissue / autopsy collection) @RITtigers @DukeU (clinical trials)
5/
In April 2022 @WhiteHouse released the Biden Long COVID Initiative.
The primary goal was to establish an Office of Long COVID within @HHSGov @HHS_ASH's office.
As of TODAY: that office does not exist.
Nor have any (?) of its other goals been met.
6/
The primary goal was to establish an Office of Long COVID within @HHSGov @HHS_ASH's office.
As of TODAY: that office does not exist.
Nor have any (?) of its other goals been met.
6/
If you are a reporter covering health care in America and you are not covering this story you are not doing your job.
Millions are suffering from #LongCovid #MECFS and other post viral conditions.
This is science and government at its WORST and most CORRUPT
7/
Millions are suffering from #LongCovid #MECFS and other post viral conditions.
This is science and government at its WORST and most CORRUPT
7/
This is YOUR taxpayer money wasted.
#FOIA the hell out of every org involved.
Demand answers.
Demand accountability.
Demand transparency.
COVID is the largest mass disabling event in our nation's history and deserves an Operation Warp Speed type of urgency.
8/
#FOIA the hell out of every org involved.
Demand answers.
Demand accountability.
Demand transparency.
COVID is the largest mass disabling event in our nation's history and deserves an Operation Warp Speed type of urgency.
8/
I had a few things to say on the topic today on the third anniversary of my waking up with every COVID symptom in the book.
Where are we three years later? My thoughts here 👇
/End
Where are we three years later? My thoughts here 👇
/End
. @WesElyMD @panagis21 @KatiePhang @kavitapmd @AmyDMarcus @SherylNYT @drsanjaygupta @danaparish @ddiamond @DanRather @zeynep @zalaly @DrEricDing @EricTopol @katiecouric @timkaine @AyannaPressley @drgurner @morganstephensa @morgfair @RickABright @mehdirhasan @drjohnwhyte
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