Binita Kane Profile picture
Mar 15 4 tweets 2 min read
I posted this in May 2021.

4 trips to Germany & 12 months of treatment, she has managed to do a handstand again (3 seconds!)

Not exercising yet, but otherwise able to live her life carefree.

With the right support and care recovery is possible (1/3)

#LongCovidAwarenessDay
This was filmed just over a year ago (Jasmin from 3 mins), she has since started High School full time and had no time off.

This time last year she was largely housebound and needing a wheelchair for distance (2/3)
Here’s a 10min talk I did for @TheWHN outlining her journey and how we got here.
Key points; there’s lots we can do with the right tests, expertise, courage & a leap of faith.

#TeamClots doing what we can to drive research. Making good progress 🤞🏽(3/3)

NB In anticipation of comments;

Jasmin did not have HELP Apheresis, it was tablet treatment only.

I deliberately do not share the name of meds as they require tailoring to the individual & careful supervision.

I am not endorsing experimental treatment without oversight.

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More from @BinitaKane

Jan 12
I endorse vaccines, I have personally had 5 mRNA vaccines, globally the impact has saved millions.

However, like with any good treatment an unlucky minority will suffer adverse effects. The support available to those is woeful. We need to understand adverse events (short 🧵)
..and understand why some people have a multi-system reactions.

For example, with the drug Azathioprine. Studying adverse events mean we now can check for a rare genetic mutation before starting it to prevent it from happening dtb.bmj.com/content/47/1/9 (2/3)
The politicisation of vaccines and anti-vax rhetoric means it’s very hard to have a sensible discussion about this. It’s harmful and prevents the work that needs to be done. Like everything that becomes polarised, it prevents progress.
Read 6 tweets
Nov 20, 2022
While certain UK paediatricians close ranks and defend a misguided (or guided?) trainee in promoting infection and reinfection of children with #COVID19 as a means of building immunity, I would like to tell you the story of a young boy, who I will call Jack (not real name) 🧵
I have family consent to share his story. Jack was previously healthy with no underlying health issues. He developed typical COVID symptoms in Apr 20 aged 9, and never recovered. After 18 months of being unable to tolerate an upright position, he was finally diagnosed with POTS.
Over the following year he had a lot of input from the NHS and had some treatment for POTS, despite this he was managing only a few hours at school.
Read 16 tweets
Nov 15, 2022
The stuff they don’t teach us at medial school!
Cold water therapy reduces inflammation, improves mental health & cardiovascular fitness.
Plus a great way to meet people and be outdoors.
Would love to do some research on effects in #LongCovid, anecdotally some great results.
Breathwork session using a modified Wim Hof breathing method before going for a dip - Wim Hof is designed for health and can be a bit much for longhaulers, so Jane has changed it to slower breaths and reduced breath holds. Image
Breathwork & cold showers are a way of gaining some of the benefits for those who are too poorly to do this outdoors.
The brilliant @MedCrisis did a video in 2019 critically appraising the science on the Wim Hof method (it’s long but worth a watch!) ⬇️

Read 4 tweets
Aug 7, 2022
Very interesting story of Dr Alice Stewart and Sir Richard Doll.

Dr Stewart first discovered the association between X-raying pregnant women and the risk of developing childhood cancer. Her work was ‘debunked’ by a prominent epidemiologist Sir Richard Doll /1
Dr Stewart doubted herself but the evidence was there loud and clear. The damage that Doll had done with opposition took years to unravel. Meanwhile thousands of childhood cancers could have been avoided.
Why? ‘Her findings undermined the prevailing mental model of disease’ 3/
‘She had to be wrong. If she was right, too many other assumptions had to be re-examined.’

‘What Dr Stewart had provoked in her scientific colleagues was cognitive dissonance: the mental turmoil that is evoked when the mind tries to hold 2 entirely’ incompatible views’. 4/
Read 5 tweets
Jul 23, 2022
Schools Unions have written to The Secretary of State outlining an urgent need for a summer action plan to prevent a winter of disruption due to #COVID19 in schools. Measures they are calling for are; 🧵
1/ Provide additional funding to schools to improve ventilation.

This will help not only reduce spread of #COVID19 but also reduce the impact of #airpollution which is harming our kids' health in multiple ways.
2/ Provide HEPA air filtration devices to all schools for September as an immediate measure while schools improve their ventilation.

Sensible strategy as improving ventilation takes time and we need to keep children safe in the interim.
Read 11 tweets
Jul 7, 2022
My husband has tested positive for COVID this week. The mystery of the ‘gastro bug’ we’ve had has been solved…mine and J’s LFTs were neg, but husband couldn’t have got it anywhere else other than the house 1/
On Monday he wasn’t feeling great but went to the school production. He was LFT neg but wore an FFP2 mask throughout. I also emailed school in the morning to ensure the doors would be open to ventilate the hall (they were). Hopefully no-one else was put at risk 2/
Jasmin had removed her FFP2 in school for the rehearsals of the production. I’m pretty sure that’s where she picked it up. No HEPAs in the hall, lots of singing and shouting at close range. I then looked after her when she was ill and started feeling unwell 5 days later 3/
Read 9 tweets

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