If youre a disabled student trying to choose a graduate program from those you were accepted to, here are some things I should have asked or negotiated in my acceptance 1/7
1. Housing. Ask upfront for accessible campus housing. If you can negotiate at all, tell your program you can't consider relocation without stable, affordable, accessible housing. 2/7
2. Ask current grad students about public transport. Does it exist? Is it accessible? How will you get to/from campus? How will you get everyday goods like groceries etc.? 3/7
3. Medical care. Is there a large uni hospital system? Check FB groups to figure out if there are specialists for your particular issues. Book appts before you even move. 4/7
4. Health care cards. Stress to student affairs that you MUST have access to your uni health benefits AT THE TIME OF YOUR ARRIVAL. No you cant wait a month for a card. Have them look up the details on the back end (dont accept no when they say they cant - they absolutely can) 5/7
You deserve to enter your program with institutional support and understanding! I hope you find thoughtful advisors, who push back against discriminatory systems, and that you can access the services you deserve. 6/7
"In an incredibly shortsighted approach, ignoring a prevalence of data stating otherwise, the US federal government removed all meaningful COVID protections, enacting widescale ableist policies reminiscent of the era of institutionalization." 1/4
"At the same time, away from public eyes, leadership enacted clean air policies for those with wealth, while launching widespread misinformation tactics to keep the general public worry free and complacent. Hospitals were encouraged to end testing, and to stop reporting." 2/4
"Regardless of a lack of menaingful reporting, excess death rates and disability rates for the past thirty years evidence a total failure of public health responses in America." 3/4
The past like 6 months I've had terrible urogyn care. I had a UTI, gyn didn't do a culture, gave me 3 day course of meds, I didn't get better. I waited weeks to get a simple appt to do a sample and see an NP. She dismissed my issues entirely. But culture comes back positive. 1/11
Then tells me I'm "too complex" and drops my care. I scramble and go with an infection for weeks waiting for urogyn opening. Surprise I still had the same infection, the 3 day course of meds didn't treat it bc I have a shitty immune system and it was already too severe. 2/11
Then first urogyn decides I need thousands of dollars in tests and tries to convince me I need surgery. When I explain some EDS issues she tells me I'm "using my disability as a crutch and would get better if I just centered myself." So I switch care again. 3/11
There's ample evidence that clean air matters when it comes to COVID. And while we've long known this, we're getting more and more studies proving how important this is in #HigherEd. We can keep our classrooms safe with HVAC systems, HEPAs, masking, and other mitigations. 1/12
If you've seen me on campus this term, you will know me as "that lady wheeling around a cart." That is right. I am the lady wheeling around my own HEPA filter because I am high risk for COVID. So having clean air + masking in the classroom/office are vital for me. 2/12
I'm engaging in a lot of encounters lately where people see me masked and ask "oh should I grab a mask?" And I know it comes from a good place, but it can be really exhausting. Why? Let's talk about access labor. 1/10
Time and time again disabled people have to ask permission to be in the same spaces as non-disabled people. We need to ask for access to the building, we need to ask for layouts, we need to ask for captioning, we need to ask for interpreters. 2/10
I am constantly asking for permission to simply get into the room. And now let's compound that with masking. I'll use my own access needs as an example here. Just to get into the office to work I have to ask for so many things. 3/10
Not wearing a mask indoors right now is the perfect analogy for ableism. When you don't wear a mask, and you look over and see me masked, here's what I can read in your action: 1/7
1. Annoyance. Maybe you think "wow that's excessive." Maybe you roll your eyes. You think I'm over exaggerating the risk and performing for attention. You might think I'm making up a threat that's not there. 2/7
2. Short-sightedness. You think that if you survive COVID you're fine. You don't think about organ damage that might come months or years later. You're not worried about early Alzheimer's. I am. I know what our healthcare system does to you when you're disabled (it kills). 3/7
If you're teaching this year - brush up on your emergency medic skills. We're seeing unprecedented rates of cardiac issues due to COVID. Do you have protocols in place for emergency med? 1/6
1. Know who to call and try to brush up on your campus/school map. Make sure you know who to call for what issue. Obv 911 will get you a team, but it's good to be generally aware of how close help may be. 2/6
2. Keep a med pack on you. I keep one in my work bag (for my own health issues and others). For meds I have Tylenol, ibuprofen, antacids, antihistamines, and epi pens (for me). 3/6