An honest reality of having tics is that they can be uncomfortable and painful. But, it can also be difficult for others to know how to respond to some of these tics.
It’s important we address this if our goal is to better support people with tics and those who care about us…
1. Self-reflection.
First-and-foremost, it’s important to be aware of any thoughts or feelings that come up for you when witnessing uncomfortable tics.
E.g., are you getting impatient, upset, worried, or angry?
It’s important to first acknowledge what’s going on with you.
2. Self-management.
Your reaction is important because it could negatively impact us or make our tics worse.
Being worried, upset, or angry won’t help, so it’s important to take the time to appropriately respond to your emotions (e.g., take timeout, remain calm, seek support).
3. Check-in.
If we’re old enough, it’s okay to be honest and open with us about how you’re feeling, as long as you’re respectful and supportive.
Having open-dialogue can help us understand what’s going on for you, and can also help strengthen our relationship.
For children with tics, it may be best to share with a friend, therapist, or family member about what you’re experiencing.
This could help you to better manage some of the stress or emotions that come up for you.
At the end of the day, not all tics are easy to deal with. And it’s a very human reaction to not find them easy to witness or respond to at times.
But taking these steps can really help and show you’re willing to respect, care and support us.
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"Dr. Allen Frances is “very sorry" for helping to lower the diagnosis bar for autism and turning millions of healthy Americans into what he called “mental patients.”
There are many issues with this article, but I'll try and reduce them down to three.
1. It positions the deficit model as the only way to conceptualise autism, perpetuating the harmful and outdated belief that autism is a "problem" within the individual.
Viewing autistic people through a deficit model is harmful as it pathologises our experience while failing to acknowledge us as equals. It portrays autistic people as "less than" or "broken", setting the precedent that our very existence is something to be treated or "cured".
A substantial focus of autism research has been on its causes rather than ways to improve our lives.
However, as some have theorised 'gut bacteria' to be a cause, I think it may be useful to share what research has found.
The causes of autism are not properly understood, but strong evidence points to genetics. Additional, inconsistent, and limited research suggests environmental and neurological factors may also play a role.
This kind of belief is unfortunately all too common. However, not only is it highly harmful towards the #autistic community, it’s woefully shortsighted.
1. It implies autistic behaviour is the problem in social interactions as it causes “friction.” This demonstrates a complete lack of empathy and awareness about: a.) how autistic people experience the world; and b.) how we are treated by others because of this.
2. This kind of toxicity doesn’t acknowledge that we often experience sensory, emotional, cognitive, and social overwhelm, simply by existing. And any behaviour we use to regulate ourselves that is visibly autistic is often targeted by NTs who lack empathy, care, or patience.
- Overly shy.
- Only wanting one friend from a young age.
- Not understanding other’s intentions/real feelings.
- Reading the same series of books over and over.
- Being very talented at writing and art.
- Often in my own fantasy world.
- Being quite passive.
Adolescence:
- Playing games frequently and getting very upset if I couldn’t.
- Fitting in with the school outcasts, rather than the popular kids.
- Strange eating habits (e.g., eating the same food, not feeling hunger).
- Frequent overwhelm at school, but not outwardly shown.
1. When views are expressed that Tourettic people would be "too ashamed" to show our #tics online, & if we do we're "showing off" & don't represent what real TS looks like, there needs to be accountability. Ideally, by the speaker and your organisation.
2. While I appreciate finally receiving a response from the TAA regarding this issue, you have still not condemned this viewpoint, & it's unclear whether you agree with it or not.
3. What is clear, is the TAA has provided a platform for these views to be disseminated publicly.
4. Despite receiving clear and warranted criticism by the TS community in response to these views, the video still remains on the TAAs YouTube channel with no disclaimer or acknowledgment of the harm they may cause.
A common belief about #autism is that women are far less likely to be #autistic than men, and if we appear socially capable, smile, or make-eye contact, we 𝗺𝘂𝘀𝘁 𝗻𝗼𝘁 𝗯𝗲 𝗮𝘂𝘁𝗶𝘀𝘁𝗶𝗰 after all.
This is not only very damaging, but it's also inaccurate. Here's why🧵
1. We require additional cognitive, behavioural, and everyday functional difficulties to get referred for assessment and to receive an autism diagnosis than males, despite having similar levels of autistic traits. This may contribute to under-diagnosis. linkmix.co/13091815
2. Until fairly recently, it's been assumed that gender doesn't influence how autism presents. This appears to have had a flow-on effect in terms of adequately distinguishing autistic female presentations, particularly those of us with lower support needs. linkmix.co/13098057