Discover and read the best of Twitter Threads about #Autistic

Most recents (24)

Just before the psychologist told me whether or not the multi-disciplinary team had concluded I was #autistic, she asked me what I thought about getting an #autism diagnosis.
#AllAutistics
#ActuallyAutistic
1/
While I was being assessed I had done a huge amount of #research on #autism, I’d also joined an online forum and had conversations with many autistic people, and I’d reviewed the whole of my life from an autistic perspective.
2/
Being autistic was a much better explanation for exceptional aspects of my life than anything else I’d ever found. Not just difficulties, challenges and disasters but abilities, achievements and triumphs.
3/
Read 20 tweets
Autism and collecting - a thread.

This is old school, real time, I'm figuring it out as I go along thread time. It's like last October all over again. Strap in, share away and let's go...

#Autism #autistic #thread
Everyone knows autistic folk love to collect things. Maybe even *need* to collect things. Often these 'things' can be related to a hyperfixation, but not always. Collections are so fundamental, they often feature in diagnosis, for better or worse. /2
The classic stereotypes are very masculine - collections of model trains, road numbers, action figures, video game achievements etc. This is, of course, because autism understanding is still about 50 years out of date and still highly dependent on male tropes. /3
Read 13 tweets

This is about my brother, Robert, and his family.
My brother is #autistic and disabled, his wife is also disabled, and pregnant with high risk, and the two of his children that he lives with are disabled as well, one has #epilepsy and is possibly autistic,
and another is autistic, has epilepsy, and #AHC (Alternating Hemiplegia of Childhood). All of them are incredibly high risk for #COVID19.

The landlord harassed the family, trespassed, tried to convince their children that the landlord and her husband were their "grandparents".
The landlord's husband screamed in his wife's face. They threatened eviction during the pandemic, in March, they would evict him April 1st, because the bank was taking too long to complete the transaction. They also refused to rent to our half brother, because
Read 12 tweets
⭐ Parent Blaming & PDA ⭐

THREAD:

Unless you have an #autistic child with #PDA (Pathological Demand Avoidance) - it's very hard to fully understand the difficulties & complexities of day to day life - both for the parents/caregivers & the child
Please don't rush to judge - parent blaming is such a toxic yet common & sometimes automatic occurrence
It takes a little more effort, but pls take the time to listen, understand & remove your assumptions - when you come across a seemingly 'bad' parent.
There will always be a reason why a parent may appear to be 'too soft' towards the child;
Why they're not 'disciplining' their 'naughty' child.
Not every child responds well to 'traditional' parenting & due to the #PDA child's extremely high #anxiety, other approaches are needed
Read 9 tweets
Autistic children are going to be returning to school over the next few days. Here's some things to be aware of and things to help.

A thread.

#autism #autistic
1. Autistic children might be better informed on Covid than you expect. Talk to them maturely, don't patronise. Listen to their worries. #autism
2. Autistic children may be extremely unhappy at returning to school if they perceive it as dangerous. It'll trigger that 'unjust radar' we seem to have. Talk over the risks realistically, without hyperbole either way.
Read 16 tweets
[1/4] Important and still under the radar: Trump's cronies are pushing to get their untested and potentially dangerous drug oleandrin approved as a *dietary supplement* to sidestep the usual process of clinical trials and peer review. This would be disastrous. [cont.]
[2/4] I wrote in depth about the supplement industry in my bestselling history of autism #NeuroTribes. It's virtually unregulated, and misguided parents of #autistic kids spend thousands of dollars a month for alleged "cures" that do nothing or much worse. Now imagine... [cont.]
[3/4] ...a world in which Trump supporters create Facebook groups about the "oleandrin protocol for #COVID19" that "liberals" and "experts" are suppressing, encouraged by statements from the President himself, along with shills like Ben Carson and the MyPillow guy. [cont.]
Read 5 tweets
This hits hard. Last week at my eval I was told that if I don't start putting on a better neurotypical performance for my colleagues and evaluators, I won't pass the clerkship. PASS, not honor. Let me break it down. 🧵
"You accomplish excellent things but we have to tell you to do them first." This is literally part of #autism. If you don't tell me to do something, it probably won't occur to me that I should do it. Especially in brand new environment- I don't know what's normal/expected.
"You don't look at people enough when they are presenting on rounds" I'm concentrating. We're standing in a group outside a patient's room, and there's beeping, side conversations, people walking around, more beeping...my Autistic brain does not filter these sounds for me.
Read 16 tweets
I'm going to do a thread on things I can't do as an #autistic person. Please share/retweet this thread. #autism #ActuallyAutistic /1
I can't tell how you feel by looking at your face. #autism #ActuallyAutistic /2
I can't focus on one thing for more than 15-20 minutes. I am always switching between things. It's too difficult to focus. #autism #ActuallyAutistic /3
Read 18 tweets
A 2020 study on #autistic camouflaging strategies! They identified four types and made some interesting observations on how they affect diagnosis.

[a thread]

molecularautism.biomedcentral.com/articles/10.11…
Participants were mostly intellectually-able female autistics, and they looked at differences between diagnosed and undiagnosed people. /2
This line in the beginning was hilarious to me:

“there is growing evidence to suggest that neurotypically presenting autistic people continue being autistic at the cognitive level”

lol do you think???? /s

/3
Read 16 tweets
Non-autistic people of the world, please could you imagine something?

Imagine that you notice every sound that's made around you, all the time, and that this gets worse if you're stressed. /1
Imagine that every colour and visual detail is sad omehow more potent, more noisy, like a 4K TV with its contrast turned up, and that things you notice distract you. /2
Imagine that your train of thought is placed on its tracks do precariously that anything - any tiny thing - can derail it, leaving you bewildered as to what on earth you were originally thinking about. /3
Read 32 tweets
I finally worked out my major problem with #LoveOnTheSpectrum.

I don't think it's made *for* #autistic people.
Let me explain.

If this show was made for autistic people, I doubt we'd have them sat on a date in a restaurant.

If this show was made for autistic people, we wouldn't have those god-awful parent interviews.
If this show was made for autistic people, we'd be talked about like adults, rather than children.

If this show was made for autistic people, we'd confront how this negative "need" to be in a relationship is shaped by ableism.
Read 8 tweets
I have a very unique perspective on #ABA because I've never had it and my mom had no idea I was #autistic. Yet, my mom had the exact same version of autism as me.

So, here's a little thread about my experiences:
Because my mom knew nothing about the milestones I wasn't hitting, she didn't worry about them. She didn't notice that I didn't always respond to my name. She was the same way. So, she adapted and found ways to get my attention until I did.

Eventually, I did. But in my own time.
My mom also didn't know where I should be cognitively. So, she showed me words and math at 2 years old. She didn't brag that I was able to do math young while still not answering to my name. To her, that's just how I was and that was good enough for her.
Read 13 tweets
There's a fundamental assumption that too many non-autistic adults make about autistic children: That they don't know what's good for them and need pushing outside their comfort zone.

This is not necessarily true. /1
Fact is, a large number of autistic children - especially teenagers - know from long painful experience what is good for them and often, when they ask to be excused from something, they're basically *pleading*. /2
But the adults, who assume they know much better than a child with a developmental condition, will say 'no - you must get out of your comfort zone!'

This is find sometimes but too often, that comfort zone exists for a damned good reason. /3
Read 7 tweets
Ive read some negative comments regarding the parents of #autistic children lately. As a parent of an autistic child & many others who advocate and do everything humanly possible for theirs here, can I explain in a thread what it is like to be a parent from the start? 1/ #autism
You have a beautiful baby who misses all their milestones. You spend months thinking you are a terrible parent and that everything is your fault. Dreading taking them to checks incase the health visitor thinks you are as awful of a parent as you feel 2/
They don’t laugh, smile, look at you, mumble the words mummy, want to eat, cuddle, be touched or engage in play with you. You genuinely start to think your own child doesn’t like you very much 3/
Read 20 tweets
How can we combat anti #autism stigma: a thread
Anti-autistic ableism is unfortunately well ingrained. So how can we better support autistic people and end stigma?

1️⃣ Prioritize #autistic people in #autism advocacy. Autistic people are experts in their own lives and the oppression we face.
2️⃣ Use the term "autistic" rather than person with #autism. The community overwhelmingly prefer #autistic as it is an adjective that implies our experience is inherently connected with our autism. "Person with autism" separates the intersections of our identity.
Read 10 tweets
A lot of autistic people find eye contact during an interaction to be extremely uncomfortable - from feeling too 'intimate' somehow, to being too 'intense' and even painful. However, eye contact remains one of the most important expectations that neurotypical people have. #autism
From schools to job interviews, the primacy of eye contact is extremely common, especially in Western cultures. No one appears willing to actually challenge this and ask how necessary it is. This puts #autistic people at a huge disadvantage. #autism
So a great many autistic people teach themselves (actually, 'force themselves' would be more accurate) to maintain eye contact during interactions with neurotypical people. This is often part of masking. #autism
Read 11 tweets
Autistic people deserve the love & respect that come with acceptance, not merely acknowledgment that autism exists. Awareness is passive. Acceptance is a choice.

Here are ten ways you can honor autistic people of all ages. (Hark, a thread!)

#Neurodiversity #autism #autistic
1/
1) Honor communication. Everyone communicates. If your autistic loved one struggles with spoken language, help them find a communication system that works for them, whether scripted speech, typing, a symbol-to-speech device or app, sign language, or a letter board.

2/
Understand that an autistic person’s spoken words may not accurately represent what they’re thinking, or their intentions. My son sings “The cold never bothered me anyway!” to tell me he’s cold. If he asks me to repeat phrases after him, he's asking for reassurance. 3/
Read 29 tweets
Time for another series on recent #HCI papers from @ijhcs_journal. One a day for.. a while. ⤵️
Where do we want tech in relation to our bodies? and how close is too close for our tech relationships?

Emotions toward cognitive enhancement technologies and the body – Attitudes and willingness to use
by @BekRousi & Renko
doi.org/10.1016/j.ijhc…

@it_jyu @uniofjyvaskyla Fig. 1. Cognitive enhancement technologies referred to in th
Working with #autistic people as technology designers:

Perseverations of the Academy: a survey of wearable technologies applied to autism intervention
by @starfeuri & @DrJuanGilbert
doi.org/10.1016/j.ijhc…

They say: One of the authors is #ActuallyAutistic #AutisticAcademic A screenshot of the 3 main highlights from the paper, availa
Read 5 tweets
Hey everyone, this is my first post for #AdaptTheFeed! I'm a disabled/#autism advocate (@AspirationAutie) and this account is to share my experiences making a #documentary about growing up #autistic in rural Cape Breton Island.

How will it be inclusive? LET'S THREAD IT! A promo graphic for the documentary, "A Strong Name: Po
"A Strong Name" is the first production by myself, Taylor Linloff. I'm a queer/nonbinary femme who's multiply disabled. I'm #autistic, #MedicatedAndMighty, and have severe #anxiety and traits of #hypomania. I'm not ashamed to have invisible #disability.
#AdaptTheFeed
For the #documentary pre-production, I'm currently seeking out #autistic people of various backgrounds in my area; from #LGBTQ, to multiply disabled, to POC, to those who also have intellectual disabilities (especially those who experience intersections).
#AdaptTheFeed
Read 7 tweets
My first inaccessible place was school, explaining to teachers I barely knew for a month what my disabilities were because school trusted those teachers’ MI education over my neurologist’s. If school accessibility ed “mattered”, I might not have had to drop out. #AdaptTheFeed
I wanted to get a 504 plan for my OCD and Tourette’s (and surprise I didn’t know I was also autistic because ableism and sexism in the medical field too!!!) and they needed teachers’ “input” on how much I “struggled” and “needed” it.
There’s this idea that disabilities are clear and obvious and especially that was the assumption with my Tourette’s, as if the entire point of my getting a 504 was because it was exhausting to hide my disabilities (didn’t realize part of that was masking until literally this yr.)
Read 12 tweets
What's the impact of communication issues on #autistic people over time?

A thread where I explore my own experience. Please share and add to it as you wish. /1 #thread #autism
#Autistic people seem to lack the instruction manual for social communication. Non-autistic folk seem to have this software pre-installed and, for the most part, negotiate communication with little drama. We #autistic people tend to struggle. /2
As it's all very 'manual' for us, social communication takes way more energy and leaves many of us exhausted. All the short cuts, automatic bits and cheats that non-autistic folk enjoy are all very much hard manual labour for us. I'll give you an example. /3
Read 20 tweets
When I began my #autism assessment at the age of 58 I was sure I didn’t stim. In fact it even made me doubt I could actually be autistic. #Stimming - the word itself sounded strange to me. It wasn’t something I identified with at all. How could I be #autistic if I didn’t stim?
1/
I’d seen autistic people rocking, swaying, spinning and flapping their hands. But I didn’t think I did any of these. It was only when I began reflecting on my childhood and talking to other autistic people that I started to understand how many things can be seen as ‘stimming’.
2/
Stim objects aren’t just brightly coloured toys with satisfying clicks, textures and smells. As a child I was very attached to a flannelette square with a sharp corner I used to rub my nose with. I was devastated when it got taken away and washed as it lost its earthy smell.
3/
Read 15 tweets
If your message as a religious leader cannot be interrupted by an #autistic child...

To the point of asking that family not to return to worship...

Maybe you should change your message.
I’ve heard from too many parents this week who say they aren’t welcome in their place of worship anymore because the leader isn’t “able” to accommodate them.

How defeating is that? How isolating?
How can we expect our schools to accept, accommodate, and include our #autistic children when our houses of worship don’t?

Religious leaders influence the values of our society as a whole. Some of them are setting a very low bar.

#DoBetter
Read 8 tweets

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