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Irish ME/CFS Association Profile picture
@IrishMECFSAssoc
May 1, 2023 • 20 tweets • 26 min read • Read on X
May is Myalgic Encephalomyelitis (ME) Awareness Month.

You can help by liking and/or retweeting this video. This 2017 TED talk features @jenbrea.



#MyalgicE #MyalgicEncephalomyelitis

Day #1 Image
@jenbrea 2/

May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by sharing and/or liking this video. It is 3 minutes 5 seconds long.

---
This film will give you an introduction to PEM (Post Exertional Malaise).

Once you've understood what PEM is… twitter.com/i/web/status/1…
@jenbrea 3/
May is Myalgic Encephalomyelitis (ME) Awareness Month.

You can help by sharing and/or liking this video (9 minutes) This is ME (2020) "A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/Chronic Fatigue Syndrome"… twitter.com/i/web/status/1…
@jenbrea (2 minutes)
"What is ME/CFS (#MyalgicEncephalomyelitis/#ChronicFatigueSyndrome)?"



You can help by sharing and/or liking this short video

#MEcfs #CFS #MyalgicE
Day #4
@jenbrea 5/
May is Myalgic Encephalomyelitis (ME) Awareness Month.

You can help by liking +/or retweeting this 102-second video. "What is ME/CFS?" (excerpt from LEFT OUT, reproduced with kind permission from UpNorth Film, Norway)

#MyalgicEncephalomyelitis #MEcfs… twitter.com/i/web/status/1…
@jenbrea 6/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.

You can help by liking +/or retweeting this video. It's a preview of a documentary, formerly called "Blue Ribbon" (now called @forgottenplague)
(3 minutes 5 seconds)



Day #6

#MyalgicE… twitter.com/i/web/status/1…
@jenbrea @forgottenplague 7/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.

You can help by retweeting and/or liking this video.

It's been approved for continuing medical education in the US


Day #7

#MyalgicE #ChronicFatigueSyndrome
@jenbrea @forgottenplague 8/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this video. It was made by a woman, @DreamsAtStake, with severe ME
Living with Severe ME
(5 minutes 13 seconds)


Day #8

#SevereME #SevereCFS
@jenbrea @forgottenplague @DreamsAtStake 9/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retweeting and/or liking this documentary, "Mom Needs to Lie Down".

It's a short Canadian film made in 2014. (11 minutes 25 seconds)



Day #9

#MyalgicE #MyalgicEncephalomyelitis
@jenbrea @forgottenplague @DreamsAtStake 10/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retweeting and/or liking this documentary, "Invisible".

It's a 60-minute documentary made in 2009 (but is timeless) [Skip forward to 14:50 to go to the start of "Invisible" proper]… twitter.com/i/web/status/1… Front cover of DVD box for ...
@jenbrea @forgottenplague @DreamsAtStake 11/

#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day

&

May is #MECFSawarenessmonth

Please help by retweeting and/or liking this 12-minute
documentary which features @DafoeWhitney & others

#Day11

#PwME @JanetDafoe
@jenbrea @forgottenplague @DreamsAtStake @DafoeWhitney @JanetDafoe 12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by retweeting and/or liking this (well-made) video.

(3 minutes)


Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #WorldMEDay2023… twitter.com/i/web/status/1…
@jenbrea @forgottenplague @DreamsAtStake @DafoeWhitney @JanetDafoe 13/
This is a short (78-second) video about postexertional malaise in ME/CFS.

It uses the battery analogy, but also highlights the effects of payback i.e. the unusual results of exertion in ME. There is no sound.

May is #MEAwarenessMonth.

You can help raise awareness and… twitter.com/i/web/status/1…
14/
(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"
May is ME Awareness Month.

You can help raise awareness and understanding by retweeting and/or
liking this video


Day 14
#MyalgicE #MyalgicEncephalomyelitis
15/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by retweeting and/or liking this 7-minute @ABrokenBattery video, "What is ME? (#MyalgicEncephalomyelitis aka #ChronicFatigueSyndrome #CFS)".



Day 15
@ABrokenBattery 16/

May is #MEcfs awareness month.

Please help by retweeting and/or liking this extract from a Golden Girls episode on #CFS


(part 1 of 2)

Day 16
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@ABrokenBattery 16b/
May is #MEcfs awareness month.

Please help by retweeting +/or liking this Golden Girls episode on #CFS


(part 2 of 2)
Day 16
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
17/
May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS) Awareness Month

Please help by sharing +/or liking this 6-minute Paper Stop-motion Animation About ME/CFS

18/
May is #MyalgicEncephalomyelitis (ME) Awareness Month.

You can help to raise awareness and understanding by retweeting and/or
liking this 7 minute 8 second-video made on young UK woman with severe
ME

Day 18
#SevereME #SevereCFS
19/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by re-tweeting and/or liking this @MEAssociation video.

"A wonderfully illustrated comic to explain M.E also known as #ChronicFatigueSyndrome (#CFS) to other people" (2 minutes)
… twitter.com/i/web/status/1…

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More from @IrishMECFSAssoc

Irish ME/CFS Association Profile picture
Apr 1, 2025
🧵
This information bundle has gone out to 3600 Irish GPs in advance of the webinar on April 8.

Just 48 hours left if you want to send in your GP's details to get a bundle.

People in Ireland can also request a copy of the bundle for themselves

#MEcfs #CFS

1/ Logo of Irish ME/CFS Association - for Information. Support & Research In March 2025, we sent nearly 3600 Irish GPs the following bundle: - 2-page covering letter - Flyer for free GP webinar with Dr Ros Vallings, "Key messages for Primary Care on the Diagnosis and Management of Post-Viral Fatigue Syndrome and ME/CFS" - Flyer for free 1-hour CPD course, "Improve your knowledge on diagnosis and management of myalgic encephalomyelitis (ME/CFS)" whose chief author is Dr Nina Muirhead - "Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"...
2/
First enclosure & first item mentioned in covering letter:

Flyer for "Educational event for GPs: 'Key messages for Primary Care on the Diagnosis and Management of Post-Viral Fatigue Syndrome and ME/CFS'"



#MEcfs #CFS 1drv.ms/b/s!AoHfldspRk…Educational event for GPs: "Key messages for Primary Care on the Diagnosis and Management of Post-Viral Fatigue Syndrome and ME/CFS" Time & date: Tuesday, April 8, 2025. 7:30 PM Duration: For just over one hour Cost: Free This is a *doctor-only* event Venue: Online Format: Dr Ros Vallings will give a general talk on the diagnosis and management of post – viral fatigue syndrome and myalgic encephalomyelitis/chronic fatigue syndrome, which often follows a virus. This will be followed by a question-and-answer session. About the speaker: Dr Ros Vallings MNZM, MB BS is a GP who is reco...
3/
One of the items that went out in a mail-out to 3612 Irish GPs in the last few weeks

This free 1-hour CPD course can be taken by professionals around the world



#MEcfs #CFS studyprn.com/p/chronic-fati…Free CPD Improve your knowledge on diagnosis and management of myalgic encephalomyelitis (ME/CFS) CPD module (https://www.studyprn.com/p/chronic-fatigue-syndrome)  Diagnose ME/CFS  Recognise post-exertional malaise (symptom exacerbation)  Prevent worsening of symptoms through pacing advice  Consider relevant tests and investigations On successful completion you will gain 1 CPD point and a certificate Course author, Dr Nina Muirhead BA (Oxon), BMBCh (Oxon), MRCS HOHNS, MEd, PGCipDerm ME/CFS is one of the most fascinating and important diseases of our time. In writing this module I start...
Read 21 tweets
Irish ME/CFS Association Profile picture
Nov 16, 2023
🧵
These have all gone out now in advance of the GP webinar on Tuesday.

#TogetherWeAreStronger #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #LongCovid
1/ In November 2023, we sent 3215 Irish GPs the following bundle: - 2-page covering letter - Flyer for free GP webinar with Dr Ros Vallings, "Key messages for Primary Care on the Diagnosis and Management of Post-Viral Fatigue Syndrome and ME/CFS" - Flyer for free 1-hour CPD course, "Improve your knowledge and diagnosis and management of myalgic encephalomyelitis ME/CFS)" whose chief author is Dr Nina Muirhead - What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults (Kingdon et al., 2022) (...
2/
 The first item in our postal mail-out to 3215 Irish GPs was the flyer for the free GP webinar on Tuesday, November 21, which can be downloaded here

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE 1drv.ms/b/s!AoHfldspRk…screenshot of flyer
3/
 The 2nd item in our postal mail-out to 3215 Irish GPs was the flyer for the free educational course which gives 1 hour of CPD credit (accessible worldwide). Flyer is here

#MyalgicEncephalomyelitis #MEcfs #CFS #PwME #MedEd #MedTwitter 1drv.ms/b/s!AoHfldspRk…Free CPD Improve your knowledge on diagnosis and management of myalgic encephalomyelitis (ME/CFS) CPD module (https://www.studyprn.com/p/chronic-fatigue-syndrome)  Diagnose ME/CFS  Recognise post-exertional malaise (symptom exacerbation)  Prevent worsening of symptoms through pacing advice  Consider relevant tests and investigations On successful completion you will gain 1 CPD point and a certificate Course author, Dr Nina Muirhead BA (Oxon), BMBCh (Oxon), MRCS HOHNS, MEd, PGCipDerm ME/CFS is one of the most fascinating and important diseases of our time. In writing this module I starte...
Read 26 tweets
Irish ME/CFS Association Profile picture
May 1, 2023
🧵
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by liking and/or retweeting this image.

#MyalgicE #MyalgicEncephalomyelitis #Day1 Image
2/
 May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retweeting and/or liking this image.

Day #2
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome Image
3/
 May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by re-tweeting and/or liking this image.

Day #3

#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
#ChronicFatigueSyndrome MUSCLE Myalgic Encephalomye...
Read 5 tweets
Irish ME/CFS Association Profile picture
Apr 30, 2022
🧵
In this thread we'll give links to each of the items we're sending to Irish GPs, along with some other info.

Feel free to submit your GP's details to us: you can private message us if you prefer. We won't mention your name.

#MEcfs #CFS #MyalgicE #PwME #ME #MyE #MEeps

1/ Image
2/
The longest document we are sending out was created by the US ME/CFS Clinician Coalition, “#MyalgicEncephalomyelitis /#ChronicFatigueSyndrome: Essentials of Diagnosis and Management” & published in Mayo Clinic Proceedings



#MEcfs #CFS #MyalgicE #PwME mayoclinicproceedings.org/article/S0025-…Image
@LBatemanMD @jencurtinmd @DrTaniaDempsey @ngklimas @JosGilbertoMon1 @RichardPodell @RuhoyMD 3/

Our committee member @TomKindlon previously did a thread with short extracts from this important document.

See here:


#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #ME #MyE #MEeps
Read 11 tweets

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