Thread by @MEActNet

The government's public health crisis may be officially ending, but for millions of people with ME/ Long Covid, we are #StillSickStillFighting.
#MillionsMissing 2023 is May 12th at the Washington Monument featuring an art installation & press conference. millionsmissing.org

ME/CFS is a neurological disease with symptoms in all body systems that affects people of all ages and backgrounds. Most cases of ME/CFS are triggered by infection, often a viral infection. Before the pandemic, there were millions of people in the US living with ME/CFS.

Now, half of the Long COVID community meets the diagnostic criteria for ME/CFS. This more than quadrupled the number of people living with ME/CFS in the US.

#MECFS #LongCovid

ME/CFS is a highly debilitating neurological disease affecting systems throughout the body. 25% of people with ME are housebound or bedbound, and only ~13% are able to work full-time. People with severe ME are often forced to exist in their beds in isolation for years. #SevereME

We are fighting for a warp speed response to Long COVID & ME/CFS; for a massive clinical response that educates our medical community; for patients to lead the charge in determining how to prioritize research; for societal & economic support.

We are fighting for our lives.