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One of the keys to #patientled research movement and the @eperlste n=1 to n + treatment model is that patients provide not just essential knowledge about their disease but that they are the ones that will take the brunt of the risk in finding a cure. 1/n
…mcoyneakacoyneoftherealm.substack.com/p/should-autho…
…mcoyneakacoyneoftherealm.substack.com/p/should-autho…
at @remissionbiome we are proud to be PhD-patients and both @tessfalor and I think of ourselves as 'medical researchers' foremost now instead of a 'space physicist' and a 'systems ecologist'. 2/n
Our backgrounds ARE important but our personal experience with #MECFS and our experience of ACTUAL remission events is much more important to where we are going with the protocol. 3/n
Declare, declare the 'conflict of interest' - it is a badge of knowledge and a badge of integrity. 4/n
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