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NEW for @PsychToday: A march on Washington of those too sick to leave to leave bed.
I report on Friday's #MillionsMissing event in DC. As officials declare end to pandemic, #longcovid & #mecfs patient groups set up 300 empty beds on National Mall.
bit.ly/3MxyNmK
I report on Friday's #MillionsMissing event in DC. As officials declare end to pandemic, #longcovid & #mecfs patient groups set up 300 empty beds on National Mall.
bit.ly/3MxyNmK
With red blankets topped with white pillows, the beds seemed reminiscent of the women with red cloaks and white bonnets in The Handmaid’s Tale, a metaphor that for chronic illness sufferers might be fitting given their own movement building solidarity amid gaslighting.
16 million Americans are believed to have #longcovid.
"Every one of those numbers has a name, and every name is at the core of a story of profound loss,” said @exceedhergrasp1 during a press conference at the foot of the Washington Monument.
"Every one of those numbers has a name, and every name is at the core of a story of profound loss,” said @exceedhergrasp1 during a press conference at the foot of the Washington Monument.
Patient groups called on leaders to create a 'Operation Warp Speed' for #LongCovid fast-tracking new treatments.
“Patients must be leading the charge on research into deciding how the research funding is allocated, and which clinical trials to prioritize,” said @gabrielhse.
“Patients must be leading the charge on research into deciding how the research funding is allocated, and which clinical trials to prioritize,” said @gabrielhse.
The installation of empty beds aimed to capture same spirit permeating the HIV movement of the 1980s. They recall iconic imagery like when the AIDS Quilt was displayed on Washington Mall, or when disabled activists crawled up the steps of the US Capitol demanding ADA passage.
“We need to build a scientific, political, and social structure that differs not just a little from the current state of things, but to take the kind of care of one another that is nothing less than revolutionary,” says @exceedhergrasp1
Ultimate message: solidarity across society for those with lived experience to "own" science.
Patients can “become the authors of our own destinies," says @dunkindona.
"When we transform the conditions of our own suffering, those conditions will be transformed for others too.”
Patients can “become the authors of our own destinies," says @dunkindona.
"When we transform the conditions of our own suffering, those conditions will be transformed for others too.”
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