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Sarah O'Connell Profile picture
@SarahOC_MECFS
May 18 • 3 tweets • 9 min read Twitter logo Read on Twitter
Please share this on
This is frightening. The WHO are accused of sending 'dangerous messages' simply for sharing the experience of a young person with #LongCovid!?
The LACK of awareness of #LongCovidKids is what is dangerous. We see this when kids go undiagnosed for mnths/yrs.
@astaines @jlamber55605930 @motherofmoses @vicmidnightsun @VickiMahony @vicmidnightsun @DrMaireadDB @MaireLineen @Emer49034181 @mayodweller @irish_cv_clan @amused_as_hell @KorbynDallas2 @j_b_kennedy @CiaraGlenville @wastelessme @j_corey02 @ConsumedCovid @longcovidIRE @patrickG731
@IrishTimes @irishexaminer @fionnulamac @ChristinaDub79 @GininaTeacup1 @Emily77483575 @TonightVMTV @VirginMediaNews @NewstalkFM @PatKennyNT @tinkerbell_ish @wanhybonbon @Lookng4BlueSky @GoberLass @bobbie_cal @Health_HIV2030 @kirrabrean @CiaraHendTCD @TodaywithClaire @FergalBowers

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More from @SarahOC_MECFS

Sarah O'Connell Profile picture
Apr 22
Going to ask the obvious question & there's an obvious answer.
Why aren't majority of public #LongCovid clinics in #Ireland prescribing medications to manage patient's symptoms & improve quality of life? Uncontroversial meds eg low dose amytryptyline for pain, melatonin etc 🤔🤫
These meds have been used for a long time to manage these symptoms.GPs prescribe them every dy for these symptoms.Yet in a specialised clinic FOR LC, majority of ppl getting nothing
..could it be because some of those who'd be writing these scripts aren't convinced LCs physical?
Please RT.
There should be no tolerance for allowing ppl who have outdated biased views on post viral illnesses like ME to be treating very ill & often already medically traumatised #LongCovid patients. The evidence is there. LC is a physical condition. ME also. Not tolerance!
Read 5 tweets
Sarah O'Connell Profile picture
Feb 11
Do ppl understand that ppl die from #MECFS?
Common cause is starvation as the stomach shuts down.

We're now seeing trend amongst #LongCovid patients; where many of those severely ill are seeing huge rapid weight loss. I'm begging parents to take action early if your child 1)
Has the signs of #LongCovidKids.
Majority of ppl who become severe do not start out that way. Rather they steadily decline.
Common cause of decline is pushing through PEM.This is why we talk about the importance of early diagnosis. Promise you as a parent if your child becomes 2)
Severely ill w LC, you'll need to know you've done everything to care for them from the start. There are many parents out there w sick children who
a) dont know its LC because they aren't educated about LC
b) are in denial.
Those children likely to become more sick as they 3)
Read 8 tweets

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