My ex - who had covid initially at the same time I did & also never recovered - was hospitalized several months ago with severe lymphopenia and opportunistic infections. He died early this morning. I am beyond shaken.
Many of you know I have also been dealing with persistent cd4 lymphopenia and opportunistic infections. We were both infected in February 2020 - long before vaccines existed, before the virus was officially documented in our city, and before masking had even been discussed.
He was a vietnam veteran that served this country like millions of others when drafted at 18. The final years of his life were spent on the streets - blocks from the largest VA hospital in the nation. Like us, there was no help for him.
So many of us are dying of an AIDS-like syndrome caused by those initial SARS-CoV-2 infections but no one wants to talk about it. The known pathophysiology of sars-cov-2 & findings in those with long covid are nearly mirror images of that seen in chronic untreated HIV infection.
We need journalists like @elizabethics and @LizHighleyman to speak for us. We need advocates like @JoshuaPribanic and @dbdugger to speak for us. We need researchers like @fitterhappierAJ to speak for us.
(far from comprehensive list just who I could tag off the top my head)
Many in the #longcovid community have been forced to crowdfund to survive. We need more like @PenGwenWithLC & @LongCovidAidBot to help us meet our goals.
(Yes this is a shameless plug to get the word out about their work)
Do you have #longcovid and feel that your symptons align with that indicating #viralpersistence? Did you know a lot of research indicates that's what's wrong with us? There is some hope. Read on. 🧵
What they didn't want, though, was for the obvious parallel to be drawn between the immune deficiency they were experiencing and that other virus. The one they spent so much the me and efford demonizing. Becauase they weren't like that. 🧵
And so you probably don't realize that tye original cluster of chronic fatigue syndrome was almost certainly an infectious agent, affecting folks who attended a closed retreat in a remote area of Nevada,causing symptoms anyone paying attention to the AIDS crisis would recognize🧵
They spent the next four decades thwarting research in every way possible, all the while wringing their hands and begging for help. Whay they meant was, a magic wand to make it all go away. 🧵
its so easy to tell immunocompromised people to just stay home if they are rightfully afraid of getting Covid - or the flu, or norovirus, or even just tue common cold (which can kill us), or whatever other germs the eugenicist plaguerates demand the right to spread. 🧵
The pandemic did usher in the age of delivery apps, which does help. But its not a panacea for meeting one's basic needs, especially for follks living on a shoestring budget - which certainly describes most immunocompromised folks who are sheltering at home,
denied the right to participate in society for the plaguerats' normalcy. 🧵