I just want to scream as loud as I can, then cry into my pillow. I’m trying to find a new #SickleCell doctor, but the program I want to go to isn’t accepting new patients. I don’t feel comfortable enough to go to a private practice so I’m doing the intake for the SCD program at the main campus of the same medical network. Hopefully the medical care will be just a good, but I’m not holding my breath.

Hey #CPP fam! Have any of you ever felt blackmailed or coerced into talking medication just to get your pain meds? Details will follow in the enclosed thread. 1/? I’m currently #inpatient for a #SickleCellCrisis and the morning attending talked with me in front of the nurse that instead of getting pain meds every two hours, It would be every three hours, but I would get some breakthrough doses so my pain doesn’t spiral out of control.

Hey #CPP fam! Can someone please point me to the right direction? I’m currently inpatient due to a #SickleCellCrisis and I usually get IV Benadryl because I’m severely allergic to CHG and adhesive tapes. However the docs are only giving me oral meds which just isn’t working. The allergic reaction I get is that my skin blisters with extremely intense itching to the point that it causes pain. The blisters are delicate and pop open with the slightest touch, even when rubbing against clothing and eventually everything scabs up.

Dear #MedTwitter, you need a be more aware of the after effects of #MedTrauma. Intense research or questioning/constant second opinions doesn’t always mean hypochondria. Maybe someone was misdiagnosed one too many times which led to too many life threatening situations. Constant over-explaining doesn’t mean that they’re trying to make up a story. Maybe they just want to make sure that you have all the details to avoid misdiagnosis. Maybe they just want to make sure that you BELIEVE THEM.

I’ll say it AGAIN for the people in the back... I DON’T WANT A “CURE” FOR #SICKLECELLDISEASE! What I DO want is for our pain to be TREATED NOT IGNORED. I DON’T want to worry about the ER docs labelling me as a drug seeker out of IGNORANCE/BIGOTRY. 1/? When I come to the ER, I want to be BELIEVED when I say I’m having crisis pain. Followed by PROMPT AND EMERGENT administration of the dose of pain medication I NEED! Sickle Cell crises are an #ActualEMERGENCY and require immediate treatment! More time in pain = MORE COMPLICATIONS